Canadian Association for Porphyria

The Town Hall Clock Tower & CWOOD sign will shine purple tonight, May 18, for International Museum Day and Global Porphyria Day💜 Celebrate our museums and shine #PurpleforPorphyria to raise awareness and support. Learn more at collingwood.ca/arts-culture-h… and @PorphyriaCanada

@TownCollingwood 💜💜💜💜💜

Canadian Association for Porphyria Treasurer Derry Wilcox collaborated on an article in the @TorontoStar for Rare Disease Day 🦓🩷🩵💚💜 healthinsight.ca/advocacy/rare-…

The Rogers Centre Ottawa is glowing purple tonight in support of Global Porphyria Awareness Day. 💜 Together, we shine a light on this rare disease and stand with those affected. @PorphyriaCanada #PorphyriaAwarenessDay

@RogersCentreOtt 💜💜💜

It's Global Porphyria Day! More than 60 landmarks across Canada will light up #PurpleforPorphyria to raise awareness about this rare condition. porphyriacanada.ca/events #GlobalPorphyriaDay #PorphyriaAwareness #PorphyriaCanada

Listen to our CAP Treasurer, Derry Wilcox, on the American Porphyria Foundation's "Rarely Discussed" podcast! Derry joined the November 6th episode which is linked here, or available for listening wherever you find great podcasts. youtube.com/watch?v=y3hNYq…

Canadian Porphyria patients, if you haven’t already, please sign up as a member of the Canadian Association for Porphyria. porphyriacanada.ca/become-a-member Your membership allows us to demonstrate our strength in numbers while advocating on your behalf.

Make sure your doctor has a copy! For the first time there is guidance for Canadian medical professionals on diagnosing and treating acute porphyrias like AIP, VP and HCP. Get a copy at sciencedirect.com/science/articl… #porphyria

@hornjohnhorn We are very happy to hear that! 💜💜 Thank you for sharing your journey!💜💜

I'm late to the game here (because I was on a cycle trip across Washington State ... wearing shorts!). Thanks to @PorphyriaCanada I have been connected to treatments that are helping me manage #myporphyria. #PurpleforPorphyria #globalporphyriaawarenessday #porphyriacanada

In recognition of #GlobalPorphyriaDay this past weekend, we acknowledge the unique journey and challenges experienced by individuals affected by this rare disease. Our mission is to drive scientific discovery in support of those impacted by #porphyria.

Tonight, #Newmarket’s Fred A. Lundy Bridge will be lit purple for #GlobalPorphyriaAwarenessDay to raise awareness for this rare blood disorder. #purpleforporphyria

Some days with #porphyria are so hard to get through. What has helped you keeping going? Follow us to hear more stories of patients like Gabriela and visit myporphyria.org to get your #MyPorphyria templates to share your experience. #GlobalPorphyriaDay

Severe pain, nausea, seizures and paralysis are just some of the bewildering array of symptoms when you live with Acute Intermittent Porphyria (AIP). Hear what patients have to say about their #porphyria 💜 youtube.com/watch?v=10GHEW… #MyPorphyria #GlobalPorphyriaDay #RareDisease

In anticipation of Global Porphyria Day, we're highlighting our commitment to the #porphyria community. Danielle Wall, Associate Director of Clinical Operations on our EPP team oversees our efforts in advancing research and care for those impacted by this rare disease.

"It's the struggle of running errands that day, or figuring out if you'll have a reaction on your way to work" 💜 Check out this EPP #porphyria video: bridgebio.com/wp-content/upl… #GlobalPorphyriaDay #MyPorphyria #Porphyria

Tonight, we are lighting the #Mississauga Civic Centre clock tower purple for Global Porphyria Awareness Day. Learn more at porphyriacanada.ca #purpleforporphyria #porphyriacanada #globalporphyriaawarenessday #myporphyria #porphyria

Today’s Science World Lights: Porphyria Awareness Day #porphyria #porphyriacanada #globalporphyriaday

At the request of the @PorphyriaCanada , the City of Vaughan has illuminated City Hall purple this evening in recognition of Porphyria Awareness Day. Learn more about City flag-raising, illumination and proclamation requests at vaughan.ca/ProtocolServic…