Project Lyme

Living with Lyme looks different for everyone, but shared experiences can make all the difference. We want to hear from you. Share one thing that has made a difference in your journey. Your experience could help someone else feel less alone 💚

Small habits matter, especially when healing feels slow. These are 10 daily habits that can support your healing journey. What helps you most? Remember: Healing is not always linear. Give yourself credit for the little things. They add up. 💚

3/3 Do you have a story to share? Connect with us at projectlyme.org/share-your-sto…

2/3 Like many in our community, Taylor understands that recovery from tick-borne diseases is a process with many ups and downs, but it is achievable. Now she wants to pass along her strength and some of the lessons she’s learned to others whose lives have been impacted by Lyme.

🧵1/3 Taylor from Upstate New York was just 10 years old when she began feeling sick due to unexplained symptoms. Eight doctors, 12 years, and countless complex and costly treatments later, she has her diagnosis of Lyme plus Bartonella, but she isn’t fully healed.

For the month of May, Project Lyme Board Chair Ali Moresco, together with @TickBootCamp, is launching a nationwide movement: “31 Million Tick Checks in 31 Days." Learn more at 31milliontickchecks.com

Project Lyme is hosting a webinar with Dr. Richard Horowitz, a leading clinician & researcher in tick-borne illness, on May 28th at 7 p.m. ET. @DrRHorowitz will explain the relationship between Lyme & Alzheimer's & what it means for testing & treatment: projectlyme.org/event/the-rela…

2/2 Check out our website for more information about Lyme symptoms: projectlyme.org/resource/what-…

🧵1/2 Many signs of Lyme disease are overlooked or mistaken for something else, which can delay getting answers. This list highlights commonly reported symptoms, but experiences can vary from person to person. If something feels off, trust your body and seek medical guidance.

Healing isn’t linear, and it doesn’t need an apology. 💚 Give yourself permission to rest, reset, and do what your body needs. #lymediseaseawarenessmonth #tickbornediseases #invisibleillness #chronicillness #healingjourney

A Maine family learned just how serious tick-borne illness can be after their young daughter, Cameron, was diagnosed with Lyme meningitis affecting her brain and nervous system. Read more: newscentermaine.com/article/news/h…

4/4 Science is moving fast—and for the Lyme community, that progress matters. Learn more in this piece by @TuftsUniversity now.tufts.edu/2026/04/28/har…

3/4 👉  These are narrow-spectrum antibiotics, meaning they target Lyme without disrupting healthy bacteria AI can even help design new drugs, cutting years off traditional research timelines. This kind of innovation could lead to more effective treatments & fewer side effects.

🧵1/4 💡 What if we could find better Lyme treatments faster and more precisely? Researchers are now using AI technology that can analyze massive amounts of data to identify drugs that specifically target Lyme bacteria without harming the rest of the body.

If you feel dismissed, keep going. You know your body better than anyone. If something does not feel right, you deserve answers, clarity, and care that actually helps. Too many Lyme patients are dismissed before they are diagnosed. That is why self-advocacy matters. 💚

Living with Lyme disease can feel overwhelming. The people who show up make all the difference. Tag the people who have supported you through your journey, in ways big or small. 💚 And if you’re that person for someone else, remember that what you do matters more than you know!

Behind every breakthrough is a donor who believed. Lyme disease is still widely misdiagnosed and under-researched. Better testing and better treatments start with funding. Research changes what’s possible. Support the work that leads to answers.

Are you a man whose life has been affected by Lyme disease or tick-borne illness? Our next free online men's meet-up, hosted by Lyme advocate David Butler, features special guest Dr. Bill @RawlsMD. Join us on Thursday, May 14th, at 7 p.m. EST. RSVP today: projectlyme.org/event/mensuppo…

4/4 With Lyme Disease Awareness Month around the corner, stories like Annette’s emphasize the growing threat of tick-borne diseases and the importance of better diagnostics and treatments. Read more from @people people.com/woman-says-she…

3/4 Now that she has finally been diagnosed with Lyme disease, Annette is speaking up about her experiences and pushing for better insurance coverage and more awareness. Lyme disease cases are on the rise — Michigan alone has seen an increase of 168% over the past 5 years.

🧵1/4 Annette Jackson, from Michigan, first noticed a tick bite after playing at the park with her family. But instead of answers, she spent years struggling with painful symptoms that were dismissed by doctors.