Hannah Siller 🦋 Serene Life

After 5 years Doctors have finally made a diagnosis of immunodeficiency and hyperPOTs (with maybe a still hidden autoimmune condition or something). I will be starting monthly IVIG treatments for the next 6 months and go from there! Keep up to date here: gofund.me/4f5325bd

@AimieNiamh Feels like less control of my body. Things look like they are moving at a different speed then me, I can understand people talking but answering seems extra hard. Kind of like trying to brake through a veil or thin paper barrier. Everything is right there but not quite reachable.

What does disassociation feel like to you?

Finally had covid back in November. Vaxed and triple boosted so it wasn't super bad but the cough since has been brutal! 3 weeks now, meds don't touch it and I've resorted to wearing pads (yeah TMI sorry). Suggestions?

Look what my sister made me for my #IVIG treatments 🖤 #thinkzebra

@Written_OutLoud It was pretty great, I miss living in that area. This was the sort of place where they went caroling, everyone sat outside to give out candy on Halloween...heck they even helped us move in. Good people.

@Written_OutLoud I've had a few exchange situations in the past around the holidays...Eggs for sugar, Cranberrys for butter. It was often a whole community affair 😅

@AuthorJFuller Funny enough I also saw them play... in a garage with a friend who lived near them lol. But technically my first concert was America when I was like 2 weeks old.

What was your first concert? Mine was Blink 182 before they were even famous, got to hang out with them at a bunch party (before anyone knew who they were)

@stephenson_ned Lol yeah basically how it feels. Dentist was shocked then I got them so young and extra shocked then I had an extra. I knew from other x-rays I had 2 more but they were sure at my age they wouldn't come in.

@RC_Rose20 Reminds me of this pic showing a baby’s jaws and why they kick up a stick when teething!

When I was 11 I have 5 wisdom teeth removed (yes 5). So the last thing I expected in my late 30s was another wisdom tooth breaking through!

@stephenson_ned Tell me about it. And here I was thinking I was about to have a break from medical stuff (just started a trial of immunotherapy treatment after 5 years of testing and being a medical mystery...for completely non tooth reasons)

@RC_Rose20 Dear god!

@steinthethird Same thing I wear in summer, spring and part of winter...because we have no seasons (typically sandals, capries and and a t shirt or casual dress to answer the question lol)

What’s your go to favorite thing to wear in fall?

@life1ntroverted Lol yeah I don't have that problem

@RC_Rose20 My sister still calls me mine, but an abbreviated version which sounds even worse to anyone who doesn't know it 😂

Did you have a strange baby name and does your family still use it for you?

@life1ntroverted Luckily no one actually uses it. But every once in a while my husband will throw it out there to irritate me. Greatest mistake in my life was telling him 🤦🏻‍♀️

@RC_Rose20 😂 same

@Radarsteal1 10 months? Dear lord, I'm lucky if I get a real vacation every year.

First IVIG treatment yesterday and overall it went well (got super dizzy during but no allergic reaction). I credit that with all the awesome advice I got. While the fatigue is no joke (slept like 10 hours) the headache is super manageable. #spoonie #IVIG #chronicillness

@digitaldraco @HaileyPiperSays @mattstandiford @LiminalEarth @ShannonEichorn Thank you! Taken care of. I literally don't think I've ever seen a post from this person on my feed but better safe then sorry.

I have a lot of mutual following this person. Their page is full of anti trans posts.

@BrainWars6 I appreciate this. Luckily my committee chair has been very understanding, granting extensions and working around all my medical trips. And the GoFundMe has helped. But yeah it's been harder then I let on. Still, I have my first treatment Friday so staying optimistic 💕

@RC_Rose20 Oh honey. So sorry to hear this! 💔 Doing a doctorate is hard enough without having to deal with that. Hope the treatments work to the best of their capacity!

After 5 years Doctors have finally made a diagnosis of immunodeficiency and hyperPOTs (with maybe a still hidden autoimmune condition or something). I will be starting monthly IVIG treatments for the next 6 months and go from there! Keep up to date here: gofund.me/4f5325bd

Good news! Insurance has approved my #IVIG and my first infusion is next Friday! Treatments are 4 hours, every 4 weeks and not fun...So check out the cute "infusion day" travel bag I made! 😁 #Spoonies #chronicillness Follow my story or Support me here: gofund.me/ad2f810a

@MaryAndersonp Getting ready for school my senior year of high-school.

@NatashaCL7 Yoda looking pretty

I’m wallowing, send hugs or pet pics.