Renal Patient Led Advisory Network

We’re back everyone, supporting patients all over the UK! Come say hi and get involved! 💜💜 #patientssupportingpatients

We thought we'd answer some of your most commonly asked questions ahead of #OrganDonationWeek next week. Confirming your decision on the NHS Organ Donor Register is the best thing you'll do today. #ODW25 #OrganDonation

🎧 It’s here! New episode of #DiaryOfAKidneyWarriorPodcast is LIVE. @ChristyMillarUK 's journey through CKD, advocacy, and empowerment. Listen now 👉🏽👉 kidneycareuk.org/get-support/po… Please RT or share with someone who needs this story. 💚 #CKD #KidneyWarrior #ChronicIllnessSupport

We are looking for #kidneytransplant recipients in the UK to complete a short study on symptom experience. Details below 👇🏻 thank you for considering #transplantation #kidneydisease #UKKW2025 #ukkw25 link: qualtrics.kcl.ac.uk/jfe/form/SV_1T…

Christy is waiting for her third #KidneyTransplant, and as she waits she works on her podcast entitled 'Chronically Christy'. Having been through many surgeries, years of #dialysis and #transplants she hopes to help others on their #kidney journeys ❤️ facebook.com/share/15BVfMFv…

Ahead of #InternationalNursesDay tomorrow Christy, who has had a #KidneyTransplant, says thank you to her renal nurses: “I’m still friends with my renal nurses nearly ten years post transplant. They saw me at my worst and my best. My transplant is failing, I hope they’re...1/4

Happy #InternationaNurseDay from all at RPLAN

Ever used patient transport in the North West? Then please help us by filling out this survey…. forms.office.com/pages/response…

Amazing turn out for such an early start for the North West! Exciting to see so many people enthusiastic about using PREM to drive imrovement @KidneyNW22 @kidneycareuk

BLOG: Fez is a patient advocate for those living with chronic kidney disease (#CKD) and has lived with it his whole life. He shares his experiences, the importance of early diagnosis & tackling health inequalities within underserved communities.​ 🔗ow.ly/g7jF50R13lO

📣 Our 2024 research grants are open for proposals aligned with our key priorities: transforming treatments, multiple health conditions️, health inequalities. 📅 Deadline: 5pm, Wed 24 April 2024 Learn more and apply now! 👇 bit.ly/3vdK3yZ

🏥🔍🖥️ E-JOURNAL OF THE WEEK 🖥️🔍🏥 Hemodialysis International is the must-have journal for nephrologists, nurses and technicians worldwide. Access today with your OpenAthens account 👉 bit.ly/3xg4rjB Please share with your colleagues!

A groundbreaking clinical trial, with input from a kidney patient in our lay advisory group, has demonstrated that fostamatinib can effectively decrease protein levels in the urine of individuals with advanced IgA nephropathy (IgAN). Learn more below 👇 bit.ly/48V8Wgw

On #worldkidneyday @Fezy shares his compelling life journey, filled with trials,setbacks,& triumphs. An undeniable testament to the strength of human spirit, Fez’s story serves as a beacon of hope for those in their darkest times. Out now on: kidneycareuk.org/get-support/po… @kidneycareuk

It’s all about you our renal nursing team North West. NWKN renal nurses event today Thankyou to all our attendees

What an inspiration so proud to have you are part of this workstream @ChristyMillarUK thank you so much for sharing your incredible and emotional journey. You inspire us all to continue to fight for quality patient centred care ❤️ looking forward to tomorrows podcast releases 😊

Did you know in the UK, 7.2 million people have kidney disease & yet 1 million don't even know it!😯 Kidney disease is common, but awareness remains low. Help us make a difference by simply sharing this post. Find out more: worldkidneyday.co.uk #WorldKidneyDay

Chaos at Manchester Arndale as huge crowds gather and 'fireworks and alarms set off' manchestereveningnews.co.uk/news/greater-m…

Great to see so many healthcare professionals, industry and patients coming together face to face; working in partnership to improve kidney services in the region. @KidneyNW22 @rdonne10 @RPLANNW #NWKidneys