HannahRachel

Tw: suicide, pain I will no longer be trying to justify my fears to commenters on here about why I think the #AssistedDyingBill will be a terrible thing for disabled people in the long term. I can't deal with the gaslighting & dismissal of entirely reasonable concerns.

@NarcissistBox They also HATE people who genuinely have chronic illnesses because we take up space and attention

@greyscribbles I'm really sorry. I know it doesn't feel like it but there are alternatives to what you're experiencing with the sunken cost fallacy. But it's ok not to know what those are right now and to feel lost.

Choosing medicine was the worst decision of my life, and I literally pay the price everyday, I have no passion for this soulless joyless field left in me, yet I keep clinging to one wrong decision made years ago on my behalf because I don’t know what else to do

@sunsweptforest @Sally_writes Thank you for the resources! Very helpful 💜

@RachelListening @Sally_writes Yes, PEM can be triggered by physical stressors (including sitting/standing up), mental activity (including reading or thinking), social interaction, environmental & sensory exposure (noise, visual stimuli, chemicals) & even in some cases emotional stress. mefacts.wordpress.com/pem/

I know some people wonder how I can write books whilst having Severe ME. Here’s how: 1) It takes me years (and years and years) 2) I rest in bed. Loads. And pace my mini activities carefully (shower, eating etc) so I can feel semi alive (1/?)

@Sally_writes P.S. I'm now aware as well that potentially asking for replies might be asking for exertion. So thank you for responding to me so fully

@Sally_writes That sounds awful. What I'm hearing is that post exertional malaise is beyond just "physical exertion" (which I feel like is what is often understood by PEM) and includes mental effort as well?

@xevekiah This was my heart tracing. I was told I was "just anxious" despite showing this to the cardiologist. Ended up in hospital for three weeks on cardiac monitoring and bed rest while they sorted it.

what’s a clear example of medical misogyny you’ve witnessed or experienced?

@BovrilG It's funny how people say "we don't have a village anymore" but forget that the village requires that some people have time, energy & inclination to help raise others' kids. I'm a highly involved aunt but wouldn't be if I had my own kids

One of my more controversial opinions is that the nuclear family DOES function better if a non-zero number of Cool Wine Aunts/Creepy Beer Uncles are in the mix. The one time where the family functioned like Trads imagine it always did (absolutely everyone marrying, generally in their late teens) was a twenty year period immediately post-War and it was such a disaster that it irreparably harmed the institution of marriage.

@_sorrengailll Anyone even touches my cuticles I get chronic infections (I am immunosuppressed). Would also rather spend my money on other things (Lego sets for example) but that's a personal preference 😊

Girls that don't get manicures and pedicures.... Why???

@teachthemx3 I work in a therapeutic school in the UK. While a lot of our students have difficulties with learning (esp language delays) many are also very bright but struggle with emotional regulation & anxiety. They need that 1-2-1 attention & engagement of their clever brains!

One of the students in my behavior classroom has an IQ of 128. He is a textbook example of how the school system fails gifted children. This peer-reviewed article further highlights issues with teachers' perceptions of gifted children. Teachers assume they can ignore gifted students and focus on the students who are struggling. Then we wonder why gifted students disengage or act out.

@MarthaAhumuza As a person who spent formative years in strict purity culture and now has severe vaginismus / endometriosis, I agree. And this is not just anecdotal: christianitytoday.com/2022/09/sheila…

I have a theory some part of this is because of purity culture. By instilling shame and fear around bodies and penetration it may contribute to why some people experience vaginismus or hesitation around using menstrual cups and tampons.

@PaulaMc007 I was assaulted by a doctor whilst hospitalised. When I disclosed the nurse said "I know him, he wouldn't do something like that" & the police said "it was a doctor doing a medical procedure in a hospital so it's nothing to do with us". I quit the NHS because of it

#Oliverscampaign How on Earth did this rape and sexual assault of children whilst in hospital, go unnoticed bbc.com/news/articles/…

@adamfare1996 A couple of years ago I was really unwell (they thought I had meningitis) and for complicated reasons I had to stop my ADHD meds. Let me tell you it made a bad hospital stay 10x worse!

@_celia_bedelia_ Oh my goodness! This is me currently. Thank you for saying this I always get strange looks when I say this to people

My endometriosis was so bad I could not wear tampons because it hurt to much to insert one

@adamfare1996 💯. Activities of daily living include sex and given the stigma, patients might not ask (and for hip replacements it is highly relevant)

@adamfare1996 @Carlynotcarley 💯 this. We recognise each other. I have a colleague who is very good at masking but I can always tell when she's having a flare.

Are they really this stupid?

@JoshuaBarzon B. I was in the Highlands of Scotland for a week this Autumn and this is what I saw

You just won a 2-week, all-expenses-paid vacation. But there’s a catch: you have to stay within one region the whole time. What are you picking?

@DrNeenaJha And it's not as if there's a big surplus of those professions either...the phrase "robbing Peter to pay Paul" comes to mind

Do HCWs not question WHY the gov are actively funding shortcuts for almost every other health care profession - pharmacists, physios, nurses, PAs, social workers, dieticians, ODPs - to replace doctors in their own job ….whilst doctors are facing mass unemployment???

@DrNeenaJha Doctors do make mistakes but I don't think I've ever heard of a doctor prescribing beta blockers for "anxiety and calf pain" and if they did they'd be (rightly) struck off. Undifferentiated patients require a huge degree of training. I'm baffled by the watering down I'm seeing

“Doctors make mistakes too” 100% true DESPITE the longevity & depth of medical training, drs make mistakes. The more experienced you are, the more complex you realise medicine is That’s an argument for higher training, NOT the opposite - replacing drs with LESS trained staff?!

@DrNeenaJha When I worked in the NHS as a SaLT I didn't use Doctor as my title even though I had a PhD in a relevant field. Patients struggle enough to differentiate roles. We need to think about what's best for patients and that is clarity above all (and seeing a Dr when they need to)

This is blatant misrepresentation. Yes this person may have a PhD, but stating “consultant cardiologist” on an NHS hospital website IMPLIES medical consultant cardiologist with a medical degree. It’s grossly misleading for patients & compromises consent.