RareNewEngland

Get your tickets ASAP! 📅 April 18, 2026 📍 Museum of Science, Boston 🕔 5:00 PM – 7:30 PM ✨ Register today! 👉 ow.ly/14Vh50XK5aB

Join us on April 18th from 5-7:30pm at the Museum of Science in Boston! Meet one of our exhibitors! Registration is still open: ow.ly/Mw5H50YEFYx #raredisease #museumofscienceboston #rarenewengland #rne #advancingraretogether

✨ SAVE THE DATE, RARE COMMUNITY! ✨ 📅 April 18, 2026 📍 Museum of Science, Boston 🕔 5:00 PM – 7:30 PM ✨ Register today! 👉 ow.ly/14Vh50XK5aB

Thank you to our wonderful sponsors for supporting Advancing Rare Together – A Night at the Museum with Rare New England! Make sure to register at: ow.ly/OKva50YEFVT #rne #raredisease #rarenewengland

The LEND Fellowship Program is designed for people who wish to develop or further sharpen their leadership skills. Applications accepted now. #raredisease ow.ly/pjZp50XVS8M

On April 18, 2026, from 5:00–7:30 PM at the Boston Museum of Science, we are proud to present: Advancing Rare Together – A Night at the Museum with Rare New England Register Here: ow.ly/zFPR50YEFOz #raredisease #rarenewengland #rne #advancingraretogether

Don't forget our caregiver support group meets the 2nd Tuesday of every month! #raredisease rarenewengland.org/rare-connectio…

On April 18, 2026, from 5:00–7:30 PM at the Boston Museum of Science, we are proud to present: Advancing Rare Together – A Night at the Museum with Rare New England Register Here: ow.ly/zFPR50YEFOz #raredisease #rarenewengland #rne #advancingraretogether

"Drug repurposing flips that model on its head. Repurposing looks for new ways to use existing drugs to treat diseases that they weren’t originally designed for. And now there are groups that are using AI to make that process more efficient." #raredisease ow.ly/shMV50YATCS

'I want her to just enjoy life like we would. She’s going to have so many difficulties in comparison to me and you, but I just want her to know she is loved and we are doing everything we can for her' #raredisease ow.ly/iSAk50YxT8F

✨ SAVE THE DATE, RARE COMMUNITY! ✨ 📅 April 18, 2026 (New Date!) 📍 Museum of Science, Boston 🕔 5:00 PM – 7:30 PM ✨ Register today! 👉 ow.ly/14Vh50XK5aB

"Every March, my wife and I travel from our home in New Hampshire to Capitol Hill to meet with our elected members of Congress. We do this with over 100 patient advocates from across the country." #raredisease ow.ly/iHL350YxT7Z

Don't forget our patient support group that meets the 1st Tuesday of every month! #raredisease rarenewengland.org/rare-connectio…

The LEND Fellowship Program is designed for people who wish to develop or further sharpen their leadership skills. Applications accepted now. #raredisease ow.ly/pjZp50XVS8M

The LEND Fellowship Program is designed for people who wish to develop or further sharpen their leadership skills. Applications accepted now. #raredisease ow.ly/pjZp50XVS8M

"Yu said there has been a “rising tide” of identified disease genes, from just a handful in the 1980s to nearly 7,000 today — and yet fewer than 500 therapies have been produced." #raredisease ow.ly/R2vF50Yvt6R