rebecca mudd

@TeamBeansFund I agree. Holidays suck now.

Been feeling really raw about Francesca today. Something about holidays makes me feel like so sad. Just another day she won’t get to experience.

@TeamBeansFund Ballon’s are the best ❤️ their up there in heaven playing with them together.

Balloons are fun!

1 month and 2 days with out you. Yet it feels like an eternity. My heart still longs for your kisses cuddles. #fuckcancer

@TheWife88 I’m so sorry. The heart break is real. Brain cancer is an ass hole. We lost our son 1 month and 2 days ago to childhood brain cancer. It’s not fair. 💔 no one deserves this.

Rest easy little one. Mommy loves you. #kidsgetcancertoo #hope4atrt

Why can’t people let me do my job. I didn’t get my coaching title out of a damn crack Jack box. I’ve Been skating 27 years! 🤦🏼‍♀️

This is childhood cancer. Mask and drs appointments. More in a month then most have in a year. #ChildhoodCancerAwareness #makechildhoodcanceranationalpriorty

#makechildhoodcanceranationalpriority #gogold #knowbetterdobetter

Just take a moment to see what cancer treatment does to a kid. UL-before we knew LL-radiation UR-chemo LR-after #makechildhoodcancerapriority #childhoodcancerawareness🎗 #hope4atrt #remission #thisiscancer #dobetter #ourkidsmatter #morethen4 #wedeservemorethen4

@kierstenrenae18 He can. But he doesn’t eat enough some days he won’t eat at all.

@RebeccaMudd Can he not eat ?

Worlds best sister. #hope4atrt #BestFriends #skatergirl

@anna_catherinee Lol no she was paying attention not to feed to fast.

@RebeccaMudd She looks annoyed.

@bridaddyy Nothing i had mine at 19 she’s now 9!

@RachelEnsignWSJ @KFILE @nytimes My husband just lost his job. And our insurance. My son has ATRT like Francesca did. We have a load of medical bills. Despite doing a st Judes trial. Since we’re not at at Judes they only pay for the medicine. Not anything else. We have 18k so far in hospital bills. R

Each day Francesca battled cancer was horrific. But truth is, we were among the lucky ones. Many families also battle extreme financial strain after their kids’ diagnosis. My amazing husband @KFILE in the @nytimes today on how to fix this injustice: google.com/amp/s/www.nyti…

@carter_ckw7 he loves it!

@kierstenrenae18 I agree.

Some people just shouldn’t have kids 🤦🏻‍♀️

We took this boy swimming yesterday (private pool) he was so happy in the water! #endchildhoodcancer #hope4atrt

@AmandaHaddock @TeamBeansFund yes we have followed you for awhile now! We are so great full for what you do!

@AmandaHaddock This is so true! My son has ATRT he went through the same treatment as “x” well “x” has little to no side effects. Except issues eating.. my son can’t walk, talk, or sit up, also not eating. Both boys diagnosed at the same age. Both 3y and 1m. 🥴

As humans, I think we want to put people (patients) into groups - like with like - but we need to remember that each person is an individual. Same cancer doesn’t equal same reactions or outcomes.

@AmandaHaddock Thank you. unfortunately childhood cancer is way under researched. And even more is his form of cancer. We did the SJ trial alsertib. There is very few treatment plans for ATRT. I believe there is only 1 more option he can do if he relapse. Because he has had radiation already.

@RebeccaMudd I’m so sorry. I know work is advancing, but it is never fast enough.