Rich Collins

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Rich Collins

Rich Collins

@Rich_Collins

This account is dormant awaiting the day that Twitter becomes free once more

Lincolnshire, UK Katılım Temmuz 2009
642 Takip Edilen471 Takipçiler
Rich Collins
Rich Collins@Rich_Collins·
The focus was on Ross who is likely to have his recovery curtailed before he is ready. This is happening a lot at the moment and is a big worry for folk with complex recoveries from conditions such as Guillain-Barré Syndrome
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Rich Collins
Rich Collins@Rich_Collins·
Did some TV the other day. It was on last night but I only featured very briefly. It was about time restrictions on Neuro rehab services in the North-East of England which are really impacting people.
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Rich Collins
Rich Collins@Rich_Collins·
Really pleased to hear @TheSHCA talking about accessing data from the NHS. I have been shouting about this since I joined @gaincharity and we could do with raw (anonymous) data as well as dashboards. You never know we may actually be able to do some good work with it
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Rich Collins
Rich Collins@Rich_Collins·
Well that’s gone cold… again. A call out to fellow community sector CEOs, when was the last time you actually got to finish, or even start a cup of tea? #CharityCEO
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Rich Collins
Rich Collins@Rich_Collins·
Down in London today at the British Peripheral Nerve Society Autumn Meeting. Hoping to learn a lot and meet the best minds in #GuillainBarreSyndrome and #CIDP
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Rich Collins
Rich Collins@Rich_Collins·
On my way back to the UK after an incredible 2 days with my most excellent colleagues from GBS|CIDP Foundation International. Good times, good people 👊
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Rich Collins
Rich Collins@Rich_Collins·
First day at the @gbscidp European Workshop and we are starting off by highlighting issues across all countries and regions. Lots of similarities and themes cropping up around diagnosis, ongoing support, and lack of knowledge amongst physicians
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Rich Collins
Rich Collins@Rich_Collins·
Left London this morning for a trip over to Amsterdam to spend a few days with the good folk from @gbscidp . I expect it will be proper enlightening
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Rich Collins
Rich Collins@Rich_Collins·
Stopped the night in Bolton before on to visit the @gaincharity Lancashire and Cumbria group. I must say I do like this stadium
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Rich Collins
Rich Collins@Rich_Collins·
Cracking opportunity to come work with me at @gaincharity. If you are a #Marketing 💫 in a #Charity role then have a look or drop me a DM. And please share and lets reach as many people as possible. People with lived experience of inequality more than welcome
Inflammatory Neuropathies UK@InflamNeuroUK

GAIN are hiring. We support people impacted by Guillain-Barré Syndrome and other related conditions. We are in a period of development and are looking for a bright and bold #MarketingExecutive to support our #communication and #engagement.

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Rich Collins
Rich Collins@Rich_Collins·
Sounds promising
Neuroscience News@NeuroscienceNew

New Multiple Sclerosis Drug Regenerates Myelin, Improves Movement Researchers have developed a new drug, PIPE-307, that targets nerve damage caused by multiple sclerosis (MS) by promoting the regeneration of myelin, the protective insulation around nerve fibers. This drug focuses on a specific receptor known as M1R and has shown promising results in early animal studies, demonstrating its potential to reverse MS-related damage. PIPE-307 is currently undergoing Phase II clinical trials, offering new hope for those with MS by not only stopping disease progression but potentially reversing its effects. If successful, this therapy could transform MS treatment by addressing both symptoms and underlying damage. 1/3

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Rich Collins retweetledi
Evie Aspinall
Evie Aspinall@EvieAspinall_·
Ngama has been in the UK since she was 11. She can't return to Cameroon where homosexuality is illegal. GB Boxing backed her visa application, to no avail. Heartwarming that the Refugee team has won a medal, heartbreaking how her story reveals the cruelty of the UK refugee system
IOC MEDIA@iocmedia

Cindy Ngamba's name gets etched in the Olympic record books. @CindyNgamba beat French Davina Michel to reach the 75kg boxing semi-finals, becoming the first ever athlete from the IOC @RefugeesOlympic Team to secure an Olympic medal. Read more: olympics.com/en/news/cindy-… (Photo credit: Getty)

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Rich Collins
Rich Collins@Rich_Collins·
I've completed this (through my lived experience of MS) & suggest that anyone else with a neurological condition should complete it as well. The more of us that do, the better levels of data and information (and evidence) that we have to work with @NeuroAlliance #GBS #CIDP
Inflammatory Neuropathies UK@InflamNeuroUK

1 in 6 people have a neurological condition, including #GuillainBarreSyndrome.That’s why we’re supporting @NeuroAlliance #MyNeuroSurvey. Share your experiences & improve care for people affected by neurological conditions. ow.ly/OboY50SMg4j #GBS #CIDP #MFS

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Keşfet

@CHazelgroveMP @JimBethell @NavPMishra @BambosMP @ImmunoUK @NHSEngland @TheSHCA @gbscidp