Runwillyrun

195 posts

Runwillyrun

Runwillyrun

@Runwillyrun2

Katılım Şubat 2016
71 Takip Edilen32 Takipçiler
Runwillyrun
Runwillyrun@Runwillyrun2·
@Cylebo Please reconsider Right To Try for NurOwn.
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Craig Reagan
Craig Reagan@CraigReagan2·
Brainstorms NurOwn works for ALS! There is undeniable proof of this! I understand that it will not work for everyone, no treatment ever does. However, it has & does work for some. This is more hope than we have ever had. Why is @US_FDA dragging their feet on this? Opinions please
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elsie johnson
elsie johnson@elsiejo22955940·
FDA PROTEST JUNE 12TH tweets got hundreds of impressions but almost no engagements. Why don't people care😞pALS should want this day to b epic & others should care- this can easily b u or a loved one tomorrow. I feel so..empty, hard to keep fighting..but failure is not an option
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BrainStorm
BrainStorm@BrainstormCell·
Check out this short 3D video clip on the science and proposed mechanism of action of #NurOwn technology platform here: vimeo.com/330580798 $BCLI #ALS #MS
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elsie johnson
elsie johnson@elsiejo22955940·
1 of 2018 @US_FDA approval was Adcetris 4 Hodgkin lymphoma, phase 3 wasn't completed, phase 2 was open label no placebo. 23% efficacy ????Why hasn't @BrainstormCell or CuATSM been given an interim reviews? @SGottliebFDA had Hodgkins, curious? @Cylebo TRANSPARENCY & OBJECTIVITY
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Alfred Miller,M.D.
Alfred Miller,M.D.@dralmiller·
@lymetreatmentfd Every #ALS patient I encounter is positive for #Borrelia Burgdorferi (#Lyme Disease) when properly tested (not CDC). This infection must be eradicated with appropriate antibiotics to halt the progressive neurological damage. Then autologous Stem Cells to repair damaged neurons.
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elsie johnson
elsie johnson@elsiejo22955940·
I don't know what's worse, having ALS ten years ago when there was no hope or now when there are actual proven treatments but @alsassociation isn't helping with grants and @US_FDA isn't acting with any urgency to #EndALS so we suffer unnecessarily #NurOwn #CuATSM #TREGS
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Runwillyrun
Runwillyrun@Runwillyrun2·
@hopkington 2014 Boston Marathon start line -8 time runner 2007-2014 /in a different Marathon now !
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Brian Wallach
Brian Wallach@bsw5020·
A few weeks ago there were 60 tweets with #EndALS Yesterday there were over 1,000. Advocacy demands a commitment to making the impossible real. Every. Single. Day. Thank you for being those voices yesterday, today, and until we have a cure.
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I AM ALS
I AM ALS@iamalsorg·
Today we testified before Congress. Tomorrow we continue building the army of #ALSChampions. Together, we will cure ALS. Full testimony here: youtu.be/ZOHaL8RWu54
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