SickKids Complex Care Research Program

Hello From the Complex Care Research Team!

🧩 Who are CMC (children with medical complexity), and why does care coordination matter? Join Dr. Catherine Diskin & Michelle Ho, NP @SKComplexCare for Introduction to Complex Care and Care Coordination - the first session in our Core Competency series. 📅 Oct 16 | 12–2 PM 🔗 Register⤵️ sickkids.echoontario.ca/complex-care-z…

💡 “When complexity meets compassion, care gets creative.” Join Dr. Catherine Diskin for Management of Multi-system Comorbidities in Children with Medical Complexity in the Complex Care, Core Competency series. 📅 June 26 🕛 12–2 PM 🔗 Register: echo.zoom.us/meeting/regist…

📣 ANNOUNCING THE 2026 CHILD-BRIGHT CONFERENCE! Join us in Toronto on Feb. 2 and 3, 2026 for a unique opportunity to connect with the child disability research community in Canada. Learn more: child-bright.ca/new-blog/save-…

Join us for a webinar hosted by @ChildBrightNet on 📅May 27 at noon. We will be speaking about supporting parents in the transition home from the NICU and first year of life with a baby with high medical needs. Register here: child-bright.ca/event-listings…

@FabianaBacchini @IEMH_Promotion A wonderful day sharing our stories and research about supporting parents through the transition from NICU to home at #ExpandingHorizons2025! Thank you to everyone who attended and we look forward to sharing more of this work soon.

Looking forward to our team's presentation at #ExpandingHorizons2025 on May 8 where Kayla Esser and @FabianaBacchini will present about using nurse navigators to support parents transitioning from NICU to home! @IEMH_Promotion

✨Learn about trauma-informed practice and supporting families. Join our ECHO Paediatric Complex Care session on "Caring for Children with Medical Complexity and their Families: Perspectives from Social Work" with Ashley Edwards, RSW @SKComplexCare. 🗓️May 8 🕛12-2pm REGISTER⤵️ echo.zoom.us/meeting/regist…

Join the launch of our Children with Developmental Disability Series for Peds Complex Care. ✨Learn about caring for neurodiverse patients in hospital with experts from the ABILITY Program @SickKidsNews. 🗓️May 1 🕛12-1pm REGISTER #CMEcredits⤵️ echo.zoom.us/meeting/regist…

"Moving from 'What's wrong with you?' to 'What's happened to you?' is key in understanding parents' needs." - Ashley Edwards, Social Worker @SickKidsNews & Co-Lead @ECHOPaeds Complex Care. Celebrate #SocialWorkMonth by exploring session resources⤵️ sickkids.echoontario.ca/supporting-par…

Transitioning from paediatric to adult care is a critical and often challenging process for young people with complex medical needs. #TemertyMed experts say more must be done to ensure smoother, more compassionate transitions. bit.ly/4fnSOYf

Read about increasing caregiver access to psychiatry through partnership, from Complex Care research manager and MPH graduate Kayla Esser's @LeongCentre studentship research: leongcentre.utoronto.ca/news/partnerin…

#PrimaryCare providers, join Dr. Nayantara Ghosh, GP & community hospitalist @NYGH_News for our peds #ComplexCare "Health Equity Series" session: "Breaking Borders: Exploring Healthcare Access for Newcomers" 🗓️Nov. 21 | 12-1pm Register⤵️ echo.zoom.us/meeting/regist… #CMEcredits

#PrimaryCare providers/#HCPs, join Ashley Edwards and Sara Rumble, RSWs in Complex Care @SickKidsNews to discuss: "Lessons Learned: Caring for the psychosocial needs of children with medical complexity" 🗓️Nov. 14 | 12-2pm Register⤵️ echo.zoom.us/meeting/regist… #CMECredits

🚨 Exciting News from Dr. Orkin's Lab! 🚨 We have an infographic in the IHDCYH Talks competition highlighting our CCENT findings: The Transition from NICU to Home 🍼💙 🗳️ TO VOTE: bit.ly/IHDCYH-Vote-ID…, select “INFOGRAPHIC” #NICU #KnowledgeTranslation #CCENT #IHDCYHTalks

Learn more about the results of our CCENT Study exploring parental experiences in the NICU, during transition, and their first year home:

@JCVenterInst @sickkids @geoffreyhinton @MCRI_for_kids @UofT @cancersociety @SciReports @CGEnSeq @grandi_sonia @NicolaJGI @Nature @CAHS_ACSS @DrJenStinson @RubinsteinJohn @src_rsc Dr. @julia_orkin found that caregivers of children with medical complexity who were given online access to edit care plans experienced enhanced autonomy and improved cohesion with health-care teams. Read in @AmerAcadPeds ➡️bit.ly/4e21IKD [🧵10/10]

@julia_orkin @claramoore14 @maddybeatty

Check out a new article from our research team examining Caregiver & Care Team Perceptions of Online Collaborative Care Planning for CMC pubmed.ncbi.nlm.nih.gov/39188252/#:~:t….

We're looking for passionate individuals to join our Patient and Caregiver Advisory Committee. If you want to make a difference in #PedsPain and ensure that the voices of patients and caregivers are heard, apply at bit.ly/3zlyU0A by August 2nd, 2024!

Read a new publication from our research team on a quality improvement evaluation of a standardized intervention for children with medical complexity transitioning to adult care in Paediatrics & Child Health doi.org/10.1093/pch/px…