SRFCure

What's next for scleroderma treatment? Dr. Dinesh Khanna, MD, is returning this year to break down what's coming: new therapeutics, clinical trial findings, and T-cell therapy research. 🗓️ Thursday, June 11 ⏰ 9:00 AM PT / 12:00 PM ET Register now: bit.ly/40LlmG3

This year's SRF Scleroderma Patient Forum is just around the corner—and Dr. Trojanowski is back! Catch this clip from his Scleroderma 101 session at the 2025 Forum. Register today and be entered into a special giveaway celebrating our 5th anniversary: bit.ly/40LlmG3

"Scleroderma has changed my life," says Jaclyn R. (dx 2019). "It has made me understand how to have patience. I have learned to not take things for granted, and to live life to the fullest." Read her full story: bit.ly/4tQNRyX

Notably, one of the identified drugs—amlitelimab—is already being evaluated in the SRF's CONQUEST clinical trial, a platform study testing multiple potential scleroderma treatments in parallel. Read full article here: bit.ly/47IwxU5

What is calcinosis and how does it affect people living with scleroderma? 🔍 Learn more about calcinosis and other scleroderma complications on our website: bit.ly/4c12Crp

This year, for our fifth annual SPF, we're introducing a new session: Scleroderma 201—designed specifically for those who are ready to take a deeper dive into understanding this disease. Learn more and secure your spot at this year's event: bit.ly/40LlmG3

Living with scleroderma and looking for answers? Our Chief Medical Officer, Dr. Greg Gordon, is here to break it down 💡 Read the newest column here: bit.ly/4bSmKMw

Scleroderma is known for what it does to the skin—but it can also affect the organs you can't see. Check out this clip to hear Dr. Toby Maher explain what ILD does to the lungs 🎥 Watch the full session on our YouTube channel: bit.ly/3IaeT22

"Because scleroderma is a 'rare' disease, it often doesn't get the same level of funding as others," Skylar H. explains. "My goal is to raise money to help ensure that other families don't have to lose their grandmothers to it." Read about her fundraiser: bit.ly/4sZ2jUN

Check out the latest research updates from the global community from this month 💡 While we didn't fund these projects, we're encouraged to see a continued focus on understanding scleroderma. Discover and read the full articles on our blog: bit.ly/3NggJ3Z

Sunny Sidhu was a filmmaker, advocate, and beloved member of the scleroderma community. We want to give a thank you to his brother and the film's director, Akash Sherman, and co-producer Shane Fennessey for helping raise awareness and honoring Sunny's legacy with this PSA.

Did you know that interstitial lung disease (ILD) affects about 40% of people living with systemic sclerosis? Check out the ILD page on our website to understand more about this common scleroderma complication: bit.ly/4epfHdQ

A new study published in Nature, led by SRF-funded investigator Ryan Flynn, PhD, sheds light on how the body controls the growth of new blood vessels, a process known as angiogenesis. Check out the publication in Nature: go.nature.com/4110gUl

What keeps the Kosmach family showing up for scleroderma research year after year? Read about their 16th annual Bet on a Cure, and how it's part of their inspiring 30+ year commitment. Read the full story: bit.ly/47EGBx4

A long road to answers: watch Rosa D. (dx 2019) tell her story of navigating her scleroderma diagnosis 🔍 At the SRF, we are dedicated to advancing research that can help promote earlier diagnosis. Learn more about diagnosis and treatments on our website: bit.ly/45gjUw4

Register now to join us in celebrating five years of the SRF Scleroderma Patient Forum! 🌐 🗓️ Thursday, June 11 ⏰ 9:00 AM PT / 12:00 PM ET Register here: bit.ly/40LlmG3

Curious about joining a clinical trial? Amy G. shares what participating in research means for her. 🔬 Learn more about SRF Carebox Connect: bit.ly/3WyHBhh

Your nutrition plays an important role in managing scleroderma symptoms and supporting overall health 🍎🥕 Learn more about strategies and recommendations for diet and nutrition while living with scleroderma on our website: bit.ly/4nCHa00

Today is Rare Disease Day—swipe through to see why the scleroderma community is speaking up and taking action! Together, we can turn awareness into action. Learn more about Rare Disease Day and access resources: bit.ly/4rCtjt7

Check out this video from Kim A. (dx 2003) as she shares her experiences living with Raynaud’s and scleroderma 🧤 February is Raynaud’s Awareness Month— let us know how you participated to enter for a chance to win SRF swag in our special giveaway: bit.ly/3NTsltF