SRFCure

Check out the latest research updates from the global community from this month 💡 While we didn't fund these projects, we're encouraged to see a continued focus on understanding scleroderma. Discover and read the full articles on our blog: bit.ly/3NggJ3Z

Sunny Sidhu was a filmmaker, advocate, and beloved member of the scleroderma community. We want to give a thank you to his brother and the film's director, Akash Sherman, and co-producer Shane Fennessey for helping raise awareness and honoring Sunny's legacy with this PSA.

Did you know that interstitial lung disease (ILD) affects about 40% of people living with systemic sclerosis? Check out the ILD page on our website to understand more about this common scleroderma complication: bit.ly/4epfHdQ

A new study published in Nature, led by SRF-funded investigator Ryan Flynn, PhD, sheds light on how the body controls the growth of new blood vessels, a process known as angiogenesis. Check out the publication in Nature: go.nature.com/4110gUl

What keeps the Kosmach family showing up for scleroderma research year after year? Read about their 16th annual Bet on a Cure, and how it's part of their inspiring 30+ year commitment. Read the full story: bit.ly/47EGBx4

A long road to answers: watch Rosa D. (dx 2019) tell her story of navigating her scleroderma diagnosis 🔍 At the SRF, we are dedicated to advancing research that can help promote earlier diagnosis. Learn more about diagnosis and treatments on our website: bit.ly/45gjUw4

Register now to join us in celebrating five years of the SRF Scleroderma Patient Forum! 🌐 🗓️ Thursday, June 11 ⏰ 9:00 AM PT / 12:00 PM ET Register here: bit.ly/40LlmG3

Curious about joining a clinical trial? Amy G. shares what participating in research means for her. 🔬 Learn more about SRF Carebox Connect: bit.ly/3WyHBhh

Your nutrition plays an important role in managing scleroderma symptoms and supporting overall health 🍎🥕 Learn more about strategies and recommendations for diet and nutrition while living with scleroderma on our website: bit.ly/4nCHa00

Today is Rare Disease Day—swipe through to see why the scleroderma community is speaking up and taking action! Together, we can turn awareness into action. Learn more about Rare Disease Day and access resources: bit.ly/4rCtjt7

Check out this video from Kim A. (dx 2003) as she shares her experiences living with Raynaud’s and scleroderma 🧤 February is Raynaud’s Awareness Month— let us know how you participated to enter for a chance to win SRF swag in our special giveaway: bit.ly/3NTsltF

Rare Disease Day is coming up on February 28—discover what makes a disease rare and why awareness matters 💡 👉 Re-share this post with your community to help spread awareness and stand with the rare disease community!

We welcome the news that Jeff Bluestone, PhD, has joined Vie Ventures—a biotech venture capital firm that advances therapies for autoimmune diseases, co-founded by SRF Board Chairman Luke Evnin, PhD, and Steven St. Peter, MD. Read more: bit.ly/4c2LUtx

Do you have questions about scleroderma? Our Chief Medical Officer, Dr. Greg Gordon, has answers 🔍 Read the new column and submit your questions at the links in the first comment below!

Happy Valentine's Day from the SRF 💙 Today, we’re reminded that love should be in abundance—and that abundance is reflected in the way this unstoppable community shows up for one another and for research progress.

“Raynaud’s has never really sidelined me. I just roll with whatever my body serves up as best I can," says Julia P. (dx 2011). Read her full story: bit.ly/4kBFiV1

In response to a recent powerful Washington Post op-ed describing the consequences of the anti-vaccine movement, we invite the community to stand up for vaccines and the science that promotes lifelong health. Read the op-ed here: wapo.st/4bNID18

Mark your calendar—this year's SRF Scleroderma Patient Forum is coming soon! Save the Date: 🗓️ June 11, 2026 ⏰ 9 AM PST/12 PM EST Can’t wait until this year’s Forum? Watch past Patient Forum sessions here: bit.ly/4a4CCf6

February is Raynaud’s Awareness Month, and awareness starts with understanding. We want you to get involved this Raynaud’s Awareness Month— check out our giveaway to learn about ways you can make an impact and win some SRF swag! Learn more and enter: bit.ly/3NTsltF

Earlier this week, in recognition of Raynaud’s Awareness Month, the SRF hosted a webinar on Raynaud’s and digital ulcers featuring Dr. Tracy Frech (Vanderbilt University). Watch the full session recording here: youtube.com/watch?v=iaO2U2…