Sammy Ashby

💜🧡💙💚❤️

More than 1,200 people have shared their experience of loss through our Epilepsy Deaths Register. If you would like to contribute details of an epilepsy-related death, please visit epilepsydeathsregister.org and help us in our fight to reduce epilepsy deaths. #SUDEP #epilepsy

& will always be there to support bereaved families to find answers, accountability and change in memory of their loved one.

It is unacceptable that people are dying preventably because of gaps in care & failures in the systems they find themselves in. We won't stop fighting to keep ALL people with epilepsy safe...

Whatever your path in life, if you have a health condition known to be dangerous such as epilepsy, the least you should expect is to be able to live safely and to receive the care and medication you need....

Congratulations to Callum MacArthur, Jeanette McDonald and Liv Lynan who ran the Liverpool Half Marathon and raised £3,504. This challenge was in memory of Jasmine MacArthur, Callum’s eldest daughter. “Losing Jasmine came as a shock to us... we were never made aware of SUDEP.”

Vote for us! 🚌 We have entered in the Oxford Bus Company competition to get our name on their buses for a full year – advertising SUDEP Action: oxfordbus.co.uk/vote-now This level of awareness for those living with epilepsy and families dealing with loss is invaluable.

Clive Treacey was failed in life, but his family are ensuring there is a lasting legacy in his name. For #worldautismawarenessday, learn more about the Clive Treacey Checklist: sudep.org/checklist-must… #SUDEP #epilepsy #epilepsyawareness

“Only by properly understanding past deaths can lessons be learnt for the future.” The EDR is where the bereaved and health professionals can share info about epilepsy-related deaths. Those who report will be helping research and improve epilepsy safety: tinyurl.com/edrplayskeyrole

Epilepsy Memorial Day this year will take place on Wednesday 6th May. It is a special day in our charity calendar about remembering all those we have lost to epilepsy, including SUDEP (Sudden Unexpected Death in Epilepsy). Learn more: sudep.org/events/epileps…

"We support those who have lost someone to epilepsy..." That's TV spoke to @SudepAction's Rob Harris about the wider impact of epilepsy this #PurpleDay. #epilepsy #awareness #oxford #oxfordshire

Thanks to all who joined us and shared our messages of #epilepsyawareness for Purple Day – we hope to see you again next year! 💜 If you have any purple photos to share, email fundraising@sudep.org For more info about our important work, head online: sudep.org

Thank you all for supporting us for #PurpleDay 2026! We appreciate everyone who has shared our messages and helped us to reach those who need information about epilepsy and support the most. We couldn’t do what we do without you 💜

We have free tools to keep those that live with epilepsy safe, including guidance for health professionals: EpSMon app: sudep.org/about-research… SUDEP and Seizure Safety Checklist: sudep.org/about-research… Children’s Checklist: sudep.org/about-research…

Today is Purple Day! 💜 Purple Day is the international day of epilepsy awareness and is a global effort to spread information and facts about epilepsy. Find out about our work: sudep.org #epilepsy #PurpleDay2026 #SUDEP

Tomorrow is #PurpleDay and we want your help to spread awareness of epilepsy! Get ready to share our posts, tagging us @SudepAction 💜 Don’t forget to register your interest today: sudep.org/purple-day/ #epilepsy #SUDEP #epilepsyawareness

Are you supporting us this Thursday 26th March for Purple Day? Get all our free resources for raising epilepsy awareness, registering takes only a moment: register.enthuse.com/ps/event/Purpl… #SUDEP #epilepsy #epilepsyawareness

There is less than a week until #PurpleDay2026 💜 How are you helping spread epilepsy awareness? Share our #PurpleDay Pointers or sign up to receive our free resources, including posters and ideas on how to go purple! Learn more: sudep.org/events/purple-… #SUDEP #epilepsy

💜 Have Your Say! Shape our future events and let us know what you would like to see in a future SUDEP Action event. Share your thoughts here: sudep.org/have-your-say-… 📱 Or simply scan the QR code to take part.

“All people with epilepsy have the right to information about risks to help them live as safely as possible – young people are no exception.” Simple actions taken today can go a long way to saving lives. Register today for the Children’s Checklist: sudep.org/about-research…

Without this support, we can't fight for a future where there are no preventable epilepsy deaths - will you join them by donating today? sudep.enthuse.com/donate#!/

Not only that, but the majority of our funding comes from our wonderful, dedicated supporters - many of whom have lost a loved one to epilepsy or SUDEP or who are living with epilepsy themselves....

Did you know @SudepAction's services, tools & resources are for free to those who need it? That includes our: 🔸 bereavement telephone support & counselling, 🔸 advocacy services for bereaved families to navigate inquests, & for people with epilepsy worried about their safety...