Save Our Maddi

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Save Our Maddi

Save Our Maddi

@saveourmaddi

Maddi was diagnosed in 2016 with an extremely rare disease called SPG15 (Spastic Paraplegia Gene 15). It’s a severely life limiting type of MND. She is 16. 💞

United Kingdom Katılım Mart 2018
128 Takip Edilen162 Takipçiler
Save Our Maddi retweetledi
The Mirror
The Mirror@DailyMirror·
Today's front page: World Cup hero Sir Geoff Hurst pledges to donate brain for research after dementia tragedy for 1966 team mates mirror.co.uk/sport/football…
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Save Our Maddi
Save Our Maddi@saveourmaddi·
Today is Rare Disease Day! Maddi is Rare. No 1 in the U.K, to have SPG15. A cruel disease but we will never stop advocating and raising awareness. We may have to do things differently than most and it may take us longer. #ShareYourRare #RareDisease #RareDiseaseDay #Saturday
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Save Our Maddi
Save Our Maddi@saveourmaddi·
@AmericanAir 21257640 with British Airways your partner American Airlines treated us so bad on our flight back with my disabled daughter with motor neurone disease after her surgery, your staff lied to us and showed disrespect to our situation.
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British Airways
British Airways@British_Airways·
From 2 January 2020 we’ll be launching a new joint business with @CSAIRGlobal. We’ll be codesharing with China Southern on routes from London to cities such as Beijing, Shanghai and Guangzhou, as well as expanding to Chinese domestic routes. Discover more: ba.uk/2eXdJ9
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British Airways
British Airways@British_Airways·
For the fourth consecutive Games, we’re excited to be official airline partner for @TeamGB and @ParalympicsGB for #Tokyo2020. We'll be flying hundreds of athletes to Tokyo ahead of the Games this summer, supporting them from start to finish 🏅 Learn more: ba.uk/zPhDes
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Save Our Maddi
Save Our Maddi@saveourmaddi·
Shame on @British_Airways and @AmericanAir Maddi had serious spinal surgery in Oct in America, we booked better seats for Maddi’s return to be comfortable after surgery. THEY messed up and downgraded us. NOW they deny they did this, so no refund. Shameful!!
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Save Our Maddi
Save Our Maddi@saveourmaddi·
This would help so much to add you as our sponsor at our Charity Ball next week, fundraising for a new cure soon for children with rare diseases.
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Save Our Maddi
Save Our Maddi@saveourmaddi·
Shame on @AmericanAir & @British_Airways for downgrading from premium to economy, a young girl who had serious spinal surgery in the USA. Family saved up to pay for her travel to be comfortable after surgery. Both companies are inefficient blaming each other!
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Bradley Lowery Foundation
Bradley Lowery Foundation@Bradleysfight·
Today is Sean’s Birthday!! Happy Birthday from the whole foundation team, we hope you have a fantastic day Sean! Make sure you send Sean your birthday wishes in the comments ❤️
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@gofundme @AmericanAir @CSAIRGlobal @British_Airways @TeamGB @ParalympicsGB @mnd @BradleyWalsh