Screen4Rare

One more month to go until International Neonatal Screening Day 💙👶 Together, let’s raise awareness of the importance of #NeonatalScreening for every newborn ✨ #INSD #NeonatalScreeningMatters

“Our son’s disorder was identified thanks to newborn screening.” 💙👶 Behind every early diagnosis is a family whose life changed forever — not by fear, but by the chance to act early, access treatment, and move forward with hope. As International Neonatal Screening Day 2026 approaches, we join the global community in highlighting the importance of newborn screening and advocating for equitable access for every child 🌍🩺 #INSD2026 #NewbornScreening #RareDiseaseAwareness

🩺 Every 15 minutes, a baby is diagnosed with a rare disease through newborn screening. Yet in many places, newborns are only screened for a small number of conditions, if at all. 🔬 Newborn screening is a simple but powerful public health program that can detect rare conditions before symptoms appear — giving families the chance for earlier diagnosis, faster treatment, and better outcomes. 🌍 Expanding access to comprehensive newborn screening can change — and save — lives. Early detection matters. 👉 lnkd.in/gZzUn9JP #NeonatalScreeningMatters

🧠 Quiz time! “A silent condition…” 👶 Newborn diagnosed with Phenylketonuria — no symptoms. What prevents complications?

✅ Answer: Screening isn’t a diagnosis; it flags babies who need further testing.

🧠 Quiz time! “An abnormal result… what does it mean?” 👶 Newborn screening comes back abnormal. Parents worry: “Is our baby sick?” What’s true?

Early detection means early action ✨ Through #NeonatalScreening, newborns with treatable rare disorders can access life-saving care before symptoms develop 💙 More on #INSD 👉 lnkd.in/gZzUn9JP #NeonatalScreeningMatters #NewbornScreening #RareDiseases

Let’s turn awareness into action 🚀 International Neonatal Screening Day (#INSD) is an opportunity to highlight the importance of screening from day one. Tell us how you are taking action: bit.ly/3WccQwQ #INSD2026

👶 Many babies are only screened for one or two conditions. Despite this, one baby with a rare disease is diagnosed by newborn screening every 15 minutes. 🧬 Neonatal screening is part of a life-changing public health initiative that has the power to speed up diagnosis and treatment of rare diseases in their earliest stages. 🔗 lnkd.in/gZzUn9JP #INSD #NewbornScreening

#InternationalNeonatalScreeningDay is two months away! 🌍 Join us as we start the countdown and raise awareness together. 👉 More info: lnkd.in/ejB_cCJV #NewbornScreening #INSD2026

Did you know? 💡 Ireland began screening for all types of SCID (Severe Combined Immunodeficiency) and for SMA (Spinal Muscular Atrophy) on April 13. 👶🧬 This milestone highlights the importance of early detection as we mark International Neonatal Screening Day on June 28. 🔗 Learn more: lnkd.in/ejB_cCJV #NewbornScreening #EarlyDetection #SCID #SMA

Why do we celebrate International Neonatal Screening Day? 💙 Early detection through newborn screening can change the course of a child’s life, prevent severe health outcomes, and enable timely treatment. On 28 June, we raise awareness about the transformative potential of newborn screening and celebrate its global impact and achievements. 🔗 Learn more: lnkd.in/ejB_cCJV #NeonatalScreeningDay #NewbornScreening

Keeping #INSD in the spotlight reminds us that newborn screening is essential for protecting infant health. It highlights the importance of early diagnosis, promotes scientific progress, and supports the global exchange of knowledge to improve outcomes for every newborn. 💛 Learn more: 🔗 lnkd.in/gZzUn9JP #INSD #NewbornScreening #GlobalHealth #EarlyDiagnosis

👏 Screen4Rare’s work was highlighted at the ERN RITA General Assembly.

A strong start in life begins with early care. As Rare Disease Day approaches, we highlight how #NewbornScreening plays a vital role in early diagnosis and timely treatment for rare conditions. Learn more 🔗lnkd.in/gZzUn9JP #INSD #NewbornScreening #EarlyDiagnosis #RareDiseaseDay

New year, new beginnings, and a peaceful sleep for your newborn. Together, we can ensure every child has a healthy start, share the importance of newborn screening 💛 👉 screen4rare.org #INSD #NewbornScreening