ShadowJumpers

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ShadowJumpers

ShadowJumpers

@ShadowJumpers_

Shadow Jumpers provides meaningful experiences and a sense of community to individuals and families living with sun-related disorders and disabilities.

Katılım Kasım 2017
63 Takip Edilen30 Takipçiler
ShadowJumpers retweetledi
San Jose Sharks
San Jose Sharks@SanJoseSharks·
Addison and the Kypreos family are back with us tonight for the game! First up…warmups from the bench 🤳
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San Jose Sharks
San Jose Sharks@SanJoseSharks·
Addison, let 'em know who's starting 👏
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San Jose Sharks
San Jose Sharks@SanJoseSharks·
Got to see Kyle Burroughs score his first goal as a Shark from the press box! 😍👏
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San Jose Sharks
San Jose Sharks@SanJoseSharks·
Riding in style through the first intermission 👋
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San Jose Sharks
San Jose Sharks@SanJoseSharks·
Tomorrow the Kypreos family will be in the building as the #SJSharks take on the Ducks. Addison will be crossing off some more cool experiences so tune in 👀
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San Jose Sharks
San Jose Sharks@SanJoseSharks·
Addison and the fam got a tour of the locker room with @aduclair10 and @JustinBailey95. And got to shop a little in the equipment room 😏
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San Jose Sharks
San Jose Sharks@SanJoseSharks·
✅ Practice faceoffs ✅ work on your one-timers ✅ skate with your favorite players
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San Jose Sharks
San Jose Sharks@SanJoseSharks·
It wouldn’t be a true weekend with the Sharks without @sjsharkie 🫶
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San Jose Sharks
San Jose Sharks@SanJoseSharks·
Meet Addison and the Kypreos family 👋 Addison has Erythropoietic Protoporphyria, a rare disorder that makes her extremely sensitive to the sun. Because of her disorder and subsequent liver failure, Addison had to temporarily give up her favorite sport; hockey. The #SJSharks and @ShadowJumpers_ teamed up to give her the ultimate hockey weekend with her favorite team!
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ShadowJumpers
ShadowJumpers@ShadowJumpers_·
*Looks like a dark rainy morning when I pick out my outfit* Sun one Hour later:
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ShadowJumpers
ShadowJumpers@ShadowJumpers_·
They’re a 10 but their bio says “Sun Kissed”
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ShadowJumpers
ShadowJumpers@ShadowJumpers_·
Triathlon? ✔️ Doing it while covered up? ✔️✔️ Beating the sun like it’s no problem? ✔️✔️✔️ Congrats to Addison, who crushed her Triathlon this past weekend sun and all. #shadowjumpers #longsleevecrew
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