ShadowJumpers retweetledi
ShadowJumpers
12 posts

ShadowJumpers
@ShadowJumpers_
Shadow Jumpers provides meaningful experiences and a sense of community to individuals and families living with sun-related disorders and disabilities.
Katılım Kasım 2017
63 Takip Edilen30 Takipçiler
ShadowJumpers retweetledi
ShadowJumpers retweetledi
ShadowJumpers retweetledi
ShadowJumpers retweetledi

Tomorrow the Kypreos family will be in the building as the #SJSharks take on the Ducks. Addison will be crossing off some more cool experiences so tune in 👀

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ShadowJumpers retweetledi

Addison and the fam got a tour of the locker room with @aduclair10 and @JustinBailey95.
And got to shop a little in the equipment room 😏



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ShadowJumpers retweetledi
ShadowJumpers retweetledi

ShadowJumpers retweetledi

Meet Addison and the Kypreos family 👋
Addison has Erythropoietic Protoporphyria, a rare disorder that makes her extremely sensitive to the sun. Because of her disorder and subsequent liver failure, Addison had to temporarily give up her favorite sport; hockey.
The #SJSharks and @ShadowJumpers_ teamed up to give her the ultimate hockey weekend with her favorite team!


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Triathlon? ✔️ Doing it while covered up? ✔️✔️ Beating the sun like it’s no problem? ✔️✔️✔️ Congrats to Addison, who crushed her Triathlon this past weekend sun and all. #shadowjumpers #longsleevecrew




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