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Shane 🇺🇸
46K posts
Shane 🇺🇸
@Shane_maps
Fund orphan diseases research, Big Pharma Enjoyer, Stage 3 cancer survivor fighting Round 4, Truman Democrat, Proud US patriot, Trekkie, #ElectionTwitter
United Federation of Planets Katılım Ocak 2021
3.6K Takip Edilen4K Takipçiler
Shane 🇺🇸 retweetledi
A Greater Cincinnati man born with a rare genetic disorder that leaves skin as fragile as a butterfly’s wing has helped inspire federal legislation aimed at reducing the high cost of care for families nationwide.
tinyurl.com/vwta5fpd
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Shane 🇺🇸 retweetledi
We have a moral duty to accelerate biomedical innovation.
Crémieux@cremieuxrecueil
Trikafta is one of the most inspiring medical advances in decades. Approved in 2019, the drug at first makes cystic fibrosis patients vomit up mucus for a whole day. But while they lose that day, they gain a lifetime–a healthy, *normal length* lifetime. It's a miracle drug.
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Shane 🇺🇸 retweetledi
A mother of a child dying of bone cancer—a kid getting end-of-life-care who has been pushing for the passage of the Give Kids a Chance Act—posts a note wondering how the law has not passed the Senate. I wrote about the failure here: thebulwark.com/p/pediatric-ca…
Her note is below:
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@SciGuySpace @pintleinjector And why does Elon want to withdraw? I hadn’t heard about this.
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@pintleinjector My sense is that if, absent other consequences, Elon would withdraw if he could. But I haven't asked him directly. Also, I doubt SpaceX will.
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NET August 24. After several missteps there is a lot on the line here for SpaceX and the Artemis Program.
SpaceX@SpaceX
Watch Starship's tenth flight test → spacex.com/launches/stars… twitter.com/i/broadcasts/1…
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Shane 🇺🇸 retweetledi
The #ADA opened doors for millions of people living with disabilities to live with greater dignity, independence, equality, and opportunity.
As we celebrate its' 35th anniversary, let us keep working to ensure every aspect of American life can be accessible for all.
hoyer.house.gov/media/press-re…
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Shane 🇺🇸 retweetledi
Conservatism consists of exactly one proposition, to wit: There must be in-groups who can post mean tweets without consequences, alongside out-groups who must be punished for every mean tweet they post
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Shane 🇺🇸 retweetledi
this must’ve been how Churchill felt when Hitler broke Molotov-Ribbentrop
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@Blake_Allen13 @cinyc9 But why would Marshallese people, of all people, be in the meat packing industry in Arkansas of all places?
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@cinyc9 @Shane_maps Yup. Tyson and one other company I cannot remember off the top of my head
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@cinyc9 Arkansas probably. Tons of Marshall Islanders live in the NW part of the state
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@TrumpDailyPosts If he’s so insignificant, why are you posting about him?
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Donald J. Trump Truth Social 06.02.25 12:24 PM EST
Michael Wolff, a Third Rate Reporter, who is laughed at even by the scoundrels of the Fake News, recently stated that the only reason I’m “beating up” on Harvard, is because I applied there, and didn’t get in. That story is totally FALSE, I never applied to Harvard. I graduated from the Wharton School of Finance at the University of Pennsylvania. He is upset because his book about me was a total “BOMB.” Nobody wanted it, because his “reporting” and reputation is so bad!
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@parshalltalk @TrumpDailyPosts It’s funny you people don’t believe this for due process.
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If this is true, this needs to be undone immediately. Firing someone for their religious beliefs is not only viewpoint discrimination, it is unbridled bigotry. Either we all have religious liberty, or none of us have it.
Floyd Brown@floydbrown
I was fired yesterday by @RichardGrenell from the John F Kennedy Center for the Performing Arts. One month ago, I was recruited to join the Kennedy Center as a Vice President. My firing came approximately two hours after @CNN sent an email asking me to comment on my past writings and statements about traditional marriage and homosexual influence in the @GOP. Here is the response I sent to @CNN: “It is an honor to work at the John F. Kennedy Center for the Performing Arts and with the many amazing people who are employed here. Comments rooted in my personal Christian views, which I have made in the past, have no impact upon my work here at the Kennedy Center nor do they impinge on my interactions with colleagues who do incredible work for the patrons of the Center. As a Christian I am called to work with others of different beliefs and worldviews. I am honored to work for President of the Kennedy Center, Ambassador @RichardGrenell and Chairman of the Kennedy Center, President @realDonaldTrump . I am united with them in their mission to bring wholesome entertainment showcasing the best of performing arts and music to America. It was truly not my intention to offend anyone with my comments. I have never intended to attack or demean any person in my statements, and have always shared the mission of Jesus, striving to love others unconditionally. The amazing beauty of the MAGA movement is we have people of many different beliefs inside our tent. We are all working together in unity to Make America Great Again.” CNN also contacted @RichardGrenell , who is a professing Christian and is married to a male spouse. As anyone that has followed my x account knows, I am also a professing Christian. I am at times outspoken on public policy, having authored seven books, my latest being CounterPunch: An Unlikely Alliance of Americans Fighting Back for Faith and Freedom. I also frequently speak at churches and Christian conferences. I had met @RichardGrenell during my time as a political organizer in Arizona. I asked for an explanation of my dismissal, and I asked to speak to @RichardGrenell --Both of those requests have been ignored. The only explanation is the one given to me at the time of my firing. “Floyd, you must recant your belief in traditional marriage and your past statements on the topic, or you will be fired.” Needless to say, I refused to recant and was shown the door. My beliefs are much more common to Biblical Christianity. My only conclusion is @RichardGrenell was intimidated by a @CNN story, which hasn’t been aired or published, so he preemptively fired me for my Christian beliefs on marriage.
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@TrumpDailyPosts Lmao not even a month out from accepting a massive Arab bribe and our president is already simping for a foreign country
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Donald J. Trump Truth Social 05.17.25 10:29 PM EST
Why doesn’t Chairman Bob Iger do something about ABC Fake News, especially since I just won $16,000,000 based on the Fake and Defamatory reporting of Liddle’ George Slopadopolus. He was given warnings, but just couldn’t be restrained by “management.” Now I see they are at it again, and I again give these SleazeBags fair warning! The wonderful country of Qatar, after agreeing to invest more than 1.4 Trillion Dollars in the United States of America, deserves much better than Misleading (Fake!) News. Everyone, including their lawyers, has been told that ABC must not say that Qatar is giving ME a FREE Boeing 747 Airplane, because they are not. Instead, and as Fake News ABC fully knows and understands, this highly respected country is donating the plane to the United States Air Force/ Defense Department, AND NOT TO ME. By so doing, they are saving our country, and the American Taxpayer, hundreds of millions of dollars. ABC Fake News is one of the WORST
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Shane 🇺🇸 retweetledi
Biden's constant and petty backstabbing of Harris is matched only by his insane delusion, both of which speak very badly of him.
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@Michael74669634 @SlowTwitch2 @RepGregLandsman My healthcare costs exceeded $4 million last year and will increase this year. I am in the end stages of a severe genetic disease.
You have no idea what you are talking about.
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@Shane_maps @SlowTwitch2 @RepGregLandsman Nope! And by the way you’re not entitled to anything. You want healthcare go to work and pay for it. If you can’t work, like me, better figure out how to live cheap and smart!
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Shane, a constituent and friend, is living with a rare, painful disorder. Thanks to breakthrough gene therapy he helped test, there’s hope.
But that hope is dwindling.
Trump and congressional Republicans want deep cuts to healthcare and rare disease research.
We’re fighting with and for Shane, and every family that cannot afford these cuts.
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@SlowTwitch2 @RepGregLandsman Are you saying we shouldn’t be trying to treat and cure these awful genetic disorders? Because that would be morally abhorrent.
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@Shane_maps @RepGregLandsman As horrible and devastating as these scenarios can be, there are limits to what a person, family, or even government can do. May God and guardian angels be with you.
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@SlowTwitch2 @RepGregLandsman In these cases, government has to step in to fund research and product development so people suffering from an extremely rare genetic disorder can finally get a treatment or cure.
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@SlowTwitch2 @RepGregLandsman In this case, it literally does. Are you familiar with “orphan diseases”? They’re diseases so rare and so costly to develop a treatment that there’s no way a private company can make a profit treating that condition. It’s basic market failure.
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@dogeai_gov @RepGregLandsman Funny that government propaganda bot @dogeai_gov doesn’t respond when answered by someone who knows what they’re talking about.
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@dogeai_gov @RepGregLandsman And so the trial I was in got the gene therapy approved by the FDA, thanks to government funding for a very rare and devastating disease, and I’m thankful for everyone who made it a success, including the bureaucrat named Bret!
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@SlowTwitch2 @RepGregLandsman This “niche project” means more children with Epidermolysis Bullosa will suffer less and live significantly longer. I was in the trial for a gene therapy and now that the FDA approved it it’s being used to change lives drastically for the better.
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@RepGregLandsman Greg, you're fighting for the status quo but hiding behind some niche project. The status quo is over. It's a new age. We're done with the pet projects, the grift, and the scams that have been put in place "to help the people in need". We're all awake now. The gig is up.
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