Sjögrens Canada

JointHealth™ express - Call for patient input on sarilumab (Kevzara®) for polymyalgia rheumatica. Send your input to feedback@jointhealth.org. Learn more: bit.ly/ACEPatientInpu… #ArthritisAwarenessMonth @Arthritis_ARC @ArthritisSoc @fibrocanada @SjogrensCa @SpArthritis

1️⃣ Start With the Basics ✅ Exclude other causes: B12, diabetes, paraproteins, vasculitis 🧪 Rule out cryoglobulins, HBV/HCV, and lymphoma Sjögren’s can be small fiber hell or central confusion. Neuropathy ≠ always antibody-driven Treat what you see. Not just what glows. 📌 Neuro-Sjögren is a diagnosis of inclusion, not exclusion.

@Rheumat_Aravind @IhabFathiSulima @NeuroSjogrens @SjogrensOrg @elisa_comer At an accredited Sjögren’s Conference a patient asked prominent US specialist what to do if the expert you see does not believe in the treatment you hope to try. He said “Get another opinion”, a problem with long waits and few drs. who treat SD.

Which treatment is most evidence-based for primary Sjögren’s with fatigue and arthralgia? A. HCQ B. Methotrexate C. Belimumab D. Non-pharmacological care 🧠 Clinical vs evidence—how much does HCQ help? @IhabFathiSulima @NeuroSjogrens @SjogrensOrg @SjogrensCa @elisa_comer @SarahSchaferMD #MedTwitter

🧵 Thread: The History of Sjögren Syndrome – From Dry Eyes to Autoimmunity👇 @elisa_comer @NeuroSjogrens @SjogrensForum @SjogrensOrg @SjogrensCa @CatSjogren @SarahSchaferMD @IhabFathiSulima @DrAkhilX @nirmalregency #MedTwitter #RheumTwitter

Did you know that Sjögren’s disease can cause dry mouth, dry eyes, or arthritis, painful and weak muscles, neuropathy, and fatigue? Check out Sjögren’s Society of Canada @SjogrensCa to learn more #Sjögrens #SjögrensDisease #SjögrensAwareness #SjögrensAwarenessMonth

💧 Sjögren’s isn’t just dry eyes & mouth. It can cause fatigue, neuropathy, lung disease, and lymphoma risk. Think systemic. Diagnose early. #Rheumatology #MedTwitter #SjogrensSyndrome #Autoimmune #FOAMed #InternalMedicine @IhabFathiSulima @Janetbirdope @SarahSchaferMD @NeuroSjogrens @elisa_comer

Hmm. So they're blaming the *19%* rise in tuberculosis between 2015 and 2022 in Latin America on imprisonment rates. What are they blaming the *MORE THAN FIFTY PERCENT* rise in tuberculosis between 2022 and 2024 in England on?

#sjogrensdisease: what's next for patients and research? My lessons from #ACR24 @neurosjogrens @elisa_comer @ACRheum @CreakyJoints @SjogrensIrl @SjogrensOrg @SjogrenEurope arthritisdietitian.com/post/sj%C3%B6g…

📢 Are you a person living with a #rheumatic and musculoskeletal disease? Share your thoughts on #cardiovascular risk and prevention in this 15-min survey. s2survey.net/rmd_cardio/ 🇬🇧🇮🇹🇪🇸🇩🇪🇵🇹🇭🇺 (and more to come) You can help improving the care of people with RMDs! Thank you!

Two papers: both a bit right and both a bit wrong about shared decision making and 'patient decision aids'. Both are interdependent and therefore = complex interventions. Tough to implement ... pubmed.ncbi.nlm.nih.gov/39334566/ journals.sagepub.com/doi/full/10.11…

Osteoporosis is an increasingly common phenomenon. This World Osteoporosis Day, We are here to remind you to care for your bones. Watch out for mini-attacks by Bone Pirates! - Brittle bones - Frequent fractures (fragile bones) - Loss of height - Stubborn back aches

Participate in Canadian Patient Safety Week 2024 with an engaging activity designed to broaden your team's understanding of healthcare harm. Download: healthcareexcellence.ca/en/resources/b… #CPSW2024 #PatientSafety #UnderstandHarm

@christmasali @SjogrensCa You might want to read this blog post: sjogrensadvocate.com/post/sjogren-s…

🎉 Exciting milestone! My tweet on the #BRIDGE report launch has hit 10,000 views! Thank you to everyone supporting our mission to close the information gap for #women with #chronic #conditions during #pregnancy & breastfeeding! Next stop: New York!🇺🇸🌍for the #UNGA79 - We need a paradigm shift & I’m excited to highlight the report's recommendations on the global stage 🔗bridgeforwocba.org/recommendation… #BRIDGE4WomensHealth

Many people living with various forms of autoimmune #arthritis have reported to have serious side effects (e.g. long-term disease flares) to mRNA COVID-19 vaccines. Unfortunately, the federal government has not ordered any protein-based (non-mRNA) vaccines which will have...(1/2)

Congratulations to Drs. Ngai Chow, Vinod Chandran and Dafna Gladman, 2024 CIORA grant recipients! They will research early detection of psoriatic arthritis: Implementing an interdisciplinary triage clinic. Learn about the 2024 CIORA research projects - crafoundation.ca/for-researcher…