SmithSolve

Happy birthday! This year, SmithSolve celebrates 2️⃣0️⃣ years! We’re grateful to our team, clients, and patient communities for working side-by-side to improve the lives of people with rare diseases through advocacy and communications.

Thank you, Marissa, for your invaluable insights, for your dedication to #PatientAdvocacy and advocacy leadership, and for sharing with us a deeper understanding of the experience of caregiving for someone with a #RareDisease.

Marissa and Team Joseph’s work – advancing research, empowering patients, and supporting families navigating the challenges of caring for a child with Duchenne muscular dystrophy (DMD) – is true advocacy in action, and an inspiration to us all.

We’re so grateful to have been joined last week – ahead of #RareDiseaseDay – by Marissa Penrod, founder and CEO of @TeamJosephInfo, to share her and her family’s powerful story.

At the state level, we’re working with policymakers like NJ Assemblywoman @AswAuraDunn – who stopped by SmithSolve last week to commemorate #RareDiseaseDay – to strengthen policies that support the rare community, because progress happens when awareness is met with action.

We need to advocate for continued access, clear regulatory pathways, and ongoing research and innovation – at every level and in every space – which is why we commend the hundreds of advocates on Capitol Hill for #RareDC2026 with @EveryLifeOrg this week.

Drug development is a critical source of hope for the rare disease community, but it's not enough on its own.

Last week, ahead of #RareDiseaseDay, we asked the SmithSolve team for their reflections on our 20 years of work with the rare disease community. Here are just a few of their responses, reminding us all why this work is so important.

We’ve come a long way, but there’s much more to do. Three basic truths continue to guide us: ➡️ Listen first. ➡️ Do what’s hard. ➡️ Go the distance. Hear more about what's ahead from our team in the new video at SmithSolve.com!

Happy birthday! This year, SmithSolve celebrates 2️⃣0️⃣ years! We’re grateful to our team, clients, and patient communities for working side-by-side to improve the lives of people with rare diseases through advocacy and communications.

If you’re attending – come find us! We’re looking forward to an energizing week ahead.

We’re excited to attend the 22nd annual #WORLDSymposium this week. Katie, Lisa, and Alex will be in San Diego supporting our clients in the #LysosomalStorageDisease space, and meeting with partners and advocates in the #RareDisease community.

There’s no better way to spark creativity, deepen connections, promote collaboration, and find new/better ways to make progress for patient communities. See you there! #ChiefPatientOfficerSummit #RareDisease

We thrive on these opportunities to step outside our daily routine and dialogue with like-minded professionals and advocates.

Will you be at the 2nd annual #CPOSummit West this week? We’d love to connect! Our EVP Katie Burns will be around to chat about our latest work in #patientadvocacy and #communications.

Wishing you a joyful holiday season and a great start to the new year!

Our team is taking time off during the holidays to rest, reflect, and recharge before returning in 2026, energized to continue making a meaningful impact for our clients and communities.

As we wrap up 2025, we’re grateful for a year filled with growth, collaboration, connections, and meaningful milestones.

If your team is preparing for JPM this year, let’s talk about how strong communications planning can help you make the most of the moment in January and beyond. Get all the tips: linkedin.com/pulse/jpm-2026…

5️⃣Think Beyond One Week in January.

#JPM week comes quick and will be over in a flash. If you want to capitalize on the moment, preparation is everything. Five ways biotech companies can stand out, make the most of #JPM2026, and extend the momentum through the year: