COBra Study

@brainstrust is working with researchers who have developed a questionnaire for people with glioma and their carers - if you meet the criteria (see below) please do consider taking part. The questionnaire can be accessed below.

Well done @BaddeleyElin presenting qualitative data from the @StudyCobra today at the #EANO2023 focusing on understanding the holistic needs of patients with glioma and their caregivers. @DPMRes @CUmedicengage @BrainTumourOrg @annmarienelson0 @CPROR_UoB ,

Great to see Elin Baddeley and @stephsivell represent the centre at the #EANO2023 to help present work from the @StudyCobra, led by Prof. Anthony Byrne, a mixed methods study to develop a core outcome set for use in #glioma trials in the UK. academic.oup.com/noa/article/5/…

We are back again at #EANO2023 today. Find our poster on understanding the holistic needs of people living with glioma and their caregivers all day today by @BaddeleyElin @stephsivell and colleagues from @MCPCRCCardiff and @CPROR_UoB. @EANOassociation @BrainTumourOrg

See the full paper 'Development of a core outcome set for use in adult primary glioma phase III interventional trials: A mixed methods study' academic.oup.com/noa/article/5/…

Members of the COBra team are at #EANO2023! Find the final core outcome set results poster all day today by Ameeta Retzer and colleagues @CPROR_UoB @MCPCRCCardiff. Come visit @BaddeleyElin and @stephsivell by the poster between 6-7.30 CEST @EANOassociation @BrainTumourOrg

Tonight we launch our new work programme! 🚀 This follows the successful refunding of our Marie Curie core programme award for a further 5 years. Watch this space for updates from the event.😍@DPMRes @Cardiffuninews @MarieCurieCymru @annmarienelson0 @MarieCurieEOLC

📢GET IT NOW! @PIRIToolkit Free download at: cardiff.ac.uk/marie-curie-re… @MCPCRCCardiff @theWCRC @CUmedicengage @DPMRes @NIHRinvolvement @ResearchWales @annmarienelson0 @MarieCurieEOLC

The countdown has begun! join us for the @PIRIToolkit launch today at 1.30. Register free at: goodgrieffest.com/events/lets-ta…

In support of #BrainTumourAwarenessWeek here's a quick showcase of some of the brain tumour work that has been done @MCPCRCCardiff 🧠 @StudyCobra @SilviaGoss1 @BaddeleyElin @annmarienelson0 @stephsivell

It is brain tumor awareness week. This poster (paper coming) from one of our MS students is about the role played by speech and language therapists @RachelEvansMK @cudippallmed @annmarienelson0 @FionaRawlinson1 @stephsivell @DPMRes @MarieCurieEOLC @MCPCRCCardiff @BrainCancerAwa

📣Still time...... an important chance to shape the future of GP practice and end of life care. We are looking for your feedback whether you have ever taken part in the Daffodil Standards programme or not. Thank you. Find out more➡️ bit.ly/3r5AI6y

Wonderful talk from Alisha @alishaannnewman and Robert McAllister (PPI) to start the NIHR Centre for Engagement and Dissemination event series @MCPCRCCardiff @annmarienelson0 @DPMRes @stephsivell @SilviaGoss1 @EmilyHarrop10 @kathyseddon @Daniella_M_H @DrMichelleEdwar @SimonNoble

Missing data pose risks to research findings. See new guidance on how to reduce, handle and report missing data in palliative and end of life care trials here: mariecurie.org.uk/globalassets/m… @annmarienelson0 @SimonNoble

Interested in glioma patient-reported outcomes? @StudyCobra are seeking clinicians, researchers, policymakers, third sector participants & patients/caregivers to complete a survey to help develop a standard way of reporting patient outcomes➡️email Elin: baddeleye1@cardiff.ac.uk

We are recruiting! If you, or a loved one, has been diagnosed with a glioma brain tumour, we want to know your views. Please get in touch to find out more - baddeleye1@cardiff.ac.uk @BrainTumourOrg @brainstrust @MCPCRCCardiff @CPROR_UoB

We are recruiting experts to a 2-round survey to develop a core outcome set for glioma interventional trials. Have your say now! If you meet the criteria, get in touch baddeleye1@cardiff.ac.uk @MCPCRCCardiff @CPROR_UoB #glioma #braintumour

We are looking for people #Wales with problems with memory or understanding (e.g people living with dementia, learning disabilities or have been critically ill) & carers, to help us develop a tool to ensure research is more inclusive of these groups @ResearchWales @CTRCardiffUni