Alternating Hemiplegia of Childhood UK

What is AHC? #1inamillion #AHCawareness

Living with AHC: "What is it like to live with AHC? Over the next few days you'll get a tiny glimpse of what it's like through stories about how AHC families celebrate birthdays. #1inamillion #ahcawareness

"🎧Make your own 1-minute version of the AHC Song! Scan the QR code for instructions on how to participate in the AHC Song Challenge. #1inamillion #ahcawareness

AHC SONG CHALLENGE 1. Download the materials here/from the link in bio: bit.ly/ahc-chords AUDIO KARAOKE AUDIO ORIGINAL CHORDS & LYRICS SHEET MELODY NOTES VIDEO KARAOKE & LYRICS VIDEO ORIGINAL & LYRICS 2. Record your version 3. Upload your song! #1inamillion #AHCawareness

"Just a few days to go until International AHC Day. Stay tuned and take part in AHC Awareness Week next week"! #1inamillion #ahcawareness

@elonmusk That's a good move especially for very small organisations like @SupportAHCUK will make a massive difference.

Final Day 3: (Theme: The Future) Memories to remember and ways to think ahead with research & involvement of the AHC community ahcuk.org/final-day-3-th… #10yearsatp1a3 #1inamillion #ahcawareness

Day 2: Photo Collage of the 10 Years Anniversary Symposium of AHC & ATP1A3 Diseases ahcuk.org/day-2-photo-co… #10yearsatp1a3 #1inamillion #ahcawareness

Day 1: Picture Collage on Facebook for 10 Years AHC & ATP1A3 Symposium (Edinburgh) 19th Oct 2022 ahcuk.org/day-1-picture-…

Day 2: Photo Collage of the 10 Years Anniversary Symposium of AHC & ATP1A3 Diseases ahcuk.org/day-2-photo-co…

Day 1: Picture Collage on Facebook for 10 Years AHC & ATP1A3 Symposium (Edinburgh) 19th Oct 2022 ahcuk.org/day-1-picture-…

Just awesome and cannot wait for the symposium to start #10YearsATP1A3 #AhcAwareness #1inaMillion #raredisease cc: @SupportAHCUK @aesha_ahcspain @AHCFE_ @olliesmission @kewdoc @RCPEdin @SigurdurJohann4 @PsychDrJo @bridget_vranckx @lyndseyamorton @_adriankowal @AHCkids

What a great 1st day we have had on the 10th year since the gene discovery: Defining the future for AHC & ATP1A3 Diseases. The venue was great @RCPEdin @RCPEVenue with captivating talks from speakers . #10yearsATP1A3

Viewing the posters at the @10yearsatp1a3 - amazing research being done and nice to see new things happening #10yearsATP1A3

Final Day 3: (Theme: The Future) Memories to remember and ways to think ahead with research & involvement of the AHC community ahcuk.org/final-day-3-th… #10yearsATP1A3 #ahcawareness #1inamillion

Join us in Edinburgh or online 19th-21th Oct22 for a 3day unique hybrid event incorporating: 10yrs anniversary conference to recognise the discovery of the ATP1A3 gene for AHC & ATP1A3 diseases, & the 10th Symposium on ATP1A3 in disease #10yearsATP1A3 #ahcawareness #1inamillion

Access no areas: the day wheelchair activists stopped the traffic theguardian.com/society/2022/m…

@Tbrotherstrust hello. We are a very small charity in the UK and were wanting to touch base with you/your team. Have been trying to get your email to make connection. Thank you

To mark #InternationalWomensDay, we’re celebrating the extensive contribution of women to epilepsy research. And when it comes to that contribution, few have had an impact greater than that of our very own President, Professor J Helen Cross OBE. epilepsyresearch.org.uk/international-… #IWD2022

Today 8th March 2022 #InternationalWomenDay we stand & salute all the women involved with an AHC Champions' life. It may be the champion's grandmother, their mother, their sister and all their aunts. Thank you ladies for being that support #AHCAwareness #1inaMillion #IWD2022