Thankyou @chrisglover @NickelBelt @jamiewestndp for joining @CFCanada for breakfast and continuing the conversation about developing a #rarediseaseprogram
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Sasha Haughian
969 posts
Sasha Haughian
@Sweet_Sasha30
Old fashion housewife at heart. Candy Maker. Blogger. Mother of 3. Cystic Fibrosis advocate. Baking sweets is my hobby, a healthy lifestyle is my passion.
Katılım Şubat 2016
607 Takip Edilen224 Takipçiler
Sasha Haughian retweetledi
Today I was happy to meet with Sasha Haughian and Jamie Laroque from Tottenham to discuss @CFCanada and how our government can continue to support Ontarian's living with #CysticFibrosis #cysticfibrosiscanada
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I could not be a more proud Mom! Josh ran 53 laps last week! Keeping those 🫁 healthy. We are so fortunate to have such a great school in our backyard.
Father F.X. O'Reilly@SMCDSB_FFX
Congratulations to the FFX running team. These students run each day before classes start. Special shout out goes to Josh and Carter for running over 53 laps last week.
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@Sweet_Sasha30 Absolutely fantastic to see a positive mindset and active lifestyle being promoted to help improve health. Keep up the great work guys 🙌🙌
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Joshua doing the lung function test- this is the deal breaker 💊His #’s are off the charts right now, and we are so grateful for his health. It has been amazing to watch the impact that a positive mindset can have on a patients health ❤️🫁
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@bethdenniss Thankyou Beth! I do think keeping them active has helped immensely
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@Sweet_Sasha30 So awesome to see this, we need to consider the excellent example you and Jamie set to keep all your kids active in sports over and above all of the meds and treatments. Such great news!!
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@LouiseHirte Thanks Louise! This long hair appears to be the style now 🤷♀️ They love it!
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@Sweet_Sasha30 So happy to hear the numbers are great - and loving the long hair!!
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@caryn_lieberman Thankyou Caryn! Your stories have helped pave the path for so many patients to access these medications. Always grateful for the time you gave us ❤️🙏
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@Sweet_Sasha30 Waiting to hear the update. Go Joshua! (and way to go Mom. You are a true warrior.)
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A & J @ CF clinic 🫁 A is officially starting the process of transitioning from Symdeko to Trikafta. J has gotten so darn healthy he doesn’t qualify for it with the current criteria attached. We are just grateful to have such a miracle drug available should his health decline 🙏
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Happy 12th Birthday to my dearest Andre! 🎈 This is a family favourite clip of him when he was just so little 🥰🥰
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Thankyou Jim & @bethdenniss for talking about such an important issue 🙏
Jim Wilson@mppjimwilson
It is always nice to meet with Beth Vanstone. We had an excellent conversation about the Trillium Drug Program and some of the inefficiencies that exist for families in need of medication to treat cystic fibrosis. I hope to raise the issue with the government in the coming weeks.
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Sasha Haughian retweetledi
Let go 🇨🇦🇨🇦Best of luck to all of the athletes!!
Team Canada@TeamCanada
Glory is more than a medal. ✨ It's found on the journey to the Beijing 2022 Olympic Games. It's found in the sacrifices that #TeamCanada athletes make to pursue their dreams. gloryfromanywhere.ca #TeamCanada | #Beijing2022
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Sasha Haughian retweetledi
It’s #Bronze for Isabelle Weidemann of Canada in the #SpeedSkating women’s 3000m!
Congratulations!
#StrongerTogether | #Beijing2022 | @TeamCanada | @i_weidemann
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A great interview for any parent that is confused right now ❤️ Straight from an Ontarian’s infectious disease specialist. It explains so much! podcasts.apple.com/ca/podcast/sho…
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Amazing 🧬💊Such a fascinating discovery journey!!
Vertex Pharmaceuticals@VertexPharma
10 years ago, the FDA approved of our first ever #CysticFibrosis medicine that was discovered in our San Diego labs. Learn more about our CF drug discovery journey as our scientists press forward in our pursuit of finding a cure in CF.
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