TGCT Support

📢 In this interview, Dr Stern (Head of @TGCTSupportorg Programs) discusses how advances in CSF1-targeted therapies are reshaping the treatment landscape, alongside the continued importance of multidisciplinary care and earlier specialist referral. Read: touchoncology.com/insight/sp-syd…

We are so excited to announce that we are presenting at the 23rd International Society of Limb Salvage (#ISOLS) annual conference in Vienna, Austria 🇦🇹 📣 This is our FIRST talk at an orthopedic conference and we are honored to amplify the pts voice in research 🔬 Stay tuned!

We are 1 MONTH away from our #TGCT Day of Learning (TDOL) conference at LUMC in 🇳🇱 (May 08)! Our agenda is jam packed with talks from experts and moments to connect with pts living with TGCT. registered to attend the free day event, go to👇👇👇 eventbrite.com/e/tgct-day-of-…

Good work @stern_sydney Need to spread the word @SarcomaEast @BritOrthoOnc @EastleyNick @MrJDStevenson

We’re proud to share the UK TGCT Consensus Guidelines are now live on Bone & Joint Open, alongside a patient-friendly version on our site. Thank you to @BoneJointOpen and all the authors! Medical: boneandjoint.org.uk/Article/10.130…
Patient: tgctsupport.org/uploads/1/3/5/…

A pt with #TGCT in our community, Timo, presented his experience to amplify the voice of patients at a symposium @ @myESMO Sarcoma & Rare Cancers conference in Lugano🇨🇭! Our community is dedicated to spreading awareness among clinicians. 💪🏻💪🏻💪🏻

Check out our newest webinar on our TGCT Registry, comparing 122 pediatric patients to 497 adult patients with #TGCT 📖 recently published. youtu.be/LK_DpJ66Fo8?si…

🤩 Una de las mayores recompensas de ser oncólogo es realizar ciencia con un beneficio tangible en pacientes 🏥 Pimicotinib es un fármaco muy eficaz en pacientes con tumor tenosinvial de células gigantes, #TumorRaro sin fármacos aprobados en España elmundo.es/ciencia-y-salu…

@DrCeSarcoma Thank you for raising awareness and we hope there’s an approved therapy in Spain soon! 🙏

We have 5 available episode of our Herding Hope: Zebra & TGCT Talk podcast 🎙️🦓! Want to hear firsthand experiences, stories, and key messages from patients with #TGCT? Listen on Spotify or Apple Podcasts: open.spotify.com/show/3myeZL61y… podcasts.apple.com/us/podcast/her…

Thanks to @assotgctfrance for their efforts and collaboration ☺️ we celebrate today 🌍

France 🇫🇷 becomes second European country to get approval/access to ROMVIMZA 👏🏻👏🏻 exciting news for our European patients! has-sante.fr/jcms/p_3860627…

We are wishing @jarenjacksonjr a speedy recovery. Want to learn more? Check out the consensus on the management of #TGCT and why the naming is so important to patients! go to TGCTSupport.org/consensus-guid…

Check out our newest podcast episode featuring Alex 🎙️ Alex shares what it’s really like living with #TGCT amid a changing treatment landscape and why expert care matters so much. Listen now 🔗 on Spotify: open.spotify.com/show/3myeZL61y… And Apple Podcast: podcasts.apple.com/us/podcast/her…

We submitted our #ISOLS2026 abstract 😁 See you in 🇦🇹 to talk about #TGCT!

Ultra-rare ≠ low impact. Grateful to @nationwidekids for spotlighting our pediatric #TGCT registry: ☑️ 2/3 of Peds pts wait ≥1 yr for dx ☑️ high misdiagnosis ☑️ surgery common w/ high recurrence & functional burden ☑️high unmet need pediatricsnationwide.org/2026/02/11/reg… #RareDisease

#funfact about #TGCT: MRI is the optimal imaging approach! TGCT is often stained with an iron storage compound called hemosiderin which has a signature appearance on MRI. X-ray often miss these soft tissue tumors.

@andyblarsen #TGCT is a quality of life disease that can cause pain, swelling, and limitations in range of motion. Treatment is often symptom driven. However, it’s important the right care team sees TGCT because it has been historically under and over-treated surgically.

I think they signaled their concern level by keeping him in the trade and even playing him in three games after discovering the PVNS

@ChrisBHaynes #TGCT is a locally aggressive rare tumor that arises in the joint, tendon sheath, or bursae. It has two distinct subtypes, localized & diffuse. The outdated nomenclature may fragment care. Check out TGCTSupport.org for accurate info on the disease.

BREAKING: Utah Jazz star Jaren Jackson Jr. is likely to miss the remainder of the season to undergo surgery on his left knee to ensure his longterm health after a localized PVNS growth was discovered post trade, league sources tell me.

As of 2013, the name has changed to #TGCT. This is important because it reflects a tumor disease and not a synovitis. Please let us know if we can provide any resources or a chance to raise awareness for this rare disease. @utahjazz @jarenjacksonjr

#TGCT is a rare tumor that arises in the joint, tendon sheath, or bursae. It has two distinct subtypes, localized & diffuse. The outdated nomenclature may impact the ability to get multidisciplinary and necessary care. Check out TGCTSupport.org for info. @jarenjacksonjr