TSC Alliance

TSC RESEARCH IN THE NEWS! Apertura Gene Therapy and the TSC Alliance Announce Collaboration to Advance Gene Therapy Programs Designed to Treat Tuberous Sclerosis Complex (TSC) hubs.li/Q04fq26-0

Join Session 1: Introduction to TSC 🔎Review the clinical diagnostic criteria for Tuberous Sclerosis Complex, including key dermatological findings. 🧬Explore the genetic basis of TSC and implications for care. 📅 Apr 29 | 12–1 PM 🔗 Register: oen.echoontario.ca/qs-tuberous-sc…

New to a TSC diagnosis? You are not alone. Join us tonight at 8 pm ET for TSC 101 for newly diagnosed individuals or families, to gain a clear understanding of TSC and learn how to build a coordinated network of care for your journey. Register: hubs.li/Q04dTrWV0

TSC Alliance Walk In Chicago Team Ezra! Cure TSC @tscalliance

2026 TSC Alliance Research Grant and Postdoctoral Fellowship program is now accepting LOIs! LOIs must be submitted by Monday, May 18, 2026, on ProposalCentral. Access the program description, information on how to submit an LOI, and more: hubs.li/Q047w-tw0

Jerry, sorry no. Terry, no wait, that’s not right... Jim! Jim O’Heir and the @tscalliance stopped by the office to talk about tuberous sclerosis complex and the fight to improve care and research for families living with it. We’ve got to keep supporting the medical research that helps turn breakthroughs into real treatments.

2026 TSC Alliance Research Grant and Postdoctoral Fellowship program is now accepting LOIs! LOIs must be submitted by Monday, May 18, 2026, on ProposalCentral. Access the program description, information on how to submit an LOI, and more: hubs.li/Q046X2Qc0

Join us for the 2026 TSC World Conference, from July 30-August 1 at the Gaylord Rockies in Aurora, CO! 🏔️ Register and learn more at hubs.li/Q046RcQc0.

The TSC Alliance wishes you a happy and safe new year! #2026 #tscalliance

#AES2025 #WhereIsSavannahRaine @LGS_Foundation #LennoxGastautSyndrome @CanineAssistant @curedravet @tscalliance @PERCepilepsy

Join us at AES 2025! The TSC Alliance is excited to attend AES 2025 in Atlanta, GA this year. Come find us at our booth (#639) at the Georgia World Congress Center from December 5-9. **Not sponsored or endorsed by AES.

The TSC Alliance wishes you a happy and safe Thanksgiving holiday!

Eleventh Annual Infantile Spasms Awareness Week Scheduled for December 1-7. Learn more: hubs.li/Q03VSK420 #ISAW

SUDEP Action Day is Oct 15. This year’s theme, “Hope Begins with a Conversation”, reminds us that talking openly about SUDEP risks & prevention can save lives. Every conversation builds safety, understanding & hope. Learn more & join us: hubs.li/Q03NLMF90

SUDEP Action Day on Oct. 15 is a crucial time to raise awareness about Sudden Unexpected Death in Epilepsy (SUDEP). Join us and our partners in continuing this important conversation. Learn more: pameonline.org #SUDEPActionDay2025 #BreakDownBarriers

2025 TSC Biosample Seed Grants Available! The TSC Alliance announces a funding opportunity for 2025 Biosample Seed Grants to support research using blood, tissue, and/or cells, DNA, or RNA isolated from samples in the TSC Biosample Repository. Apply here: hubs.li/Q03MJR7-0

Safety is a top priority when managing your epilepsy. Building your healthcare team can help reduce your risk for SUDEP. Visit the @AmEpilepsySoc website to find specialty care and discuss how to reduce risks for SUDEP: my.aesnet.org/findadoctor

2025 TSC Biosample Seed Grants Available! The TSC Alliance announces a funding opportunity for 2025 Biosample Seed Grants to support research using blood, tissue, and/or cells, DNA, or RNA isolated from samples in the TSC Biosample Repository. Apply here: hubs.li/Q03L_gpQ0

We are officially one year out from the 2026 TSC World Conference, scheduled for July 30 to August 1, 2026, at the Gaylord Rockies Resort & Convention Center in Aurora, CO, and hotel booking is now open! Book your stay: tscalliance.org/wc2026.

Join our TSC Regional Conference aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers. September 6, 2025 at Iowa Memorial Union at the University of Iowa in Iowa City, IA. More info: tscalliance.org/news/join-us-f…