Excellent conference. Lots of learning and networking. Great ideas to take back to @TeessideCF team. Exciting times in cystic fibrosis care #ecfs2024
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Teesside Cystic Fibrosis Centre
805 posts
Teesside Cystic Fibrosis Centre
@TeessideCF
Teesside Cystic Fibrosis Centre. Delivering care to children from newborn to 18 years. Contact us on 01642 854684
James Cook University Hospital Katılım Mayıs 2019
384 Takip Edilen365 Takipçiler
Thought provoking presentation by Charlie Dawson @GreatOrmondSt on the ever evolving role of the CF nurse
#ECFS2024 @CFNA_UK
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Teesside Cystic Fibrosis Centre retweetledi
Following NICE's statement today, our Chief Executive, David Ramsden, has shared the following video, giving an update on where things stand.
You can read the statement from NICE here.
➡️ ow.ly/JlwO50QwhLv
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@CFpaedsGNCH @Carol_A_Sharpe @GreatNorthCH @NewcastleHosps Enjoy your retirement, it is well deserved. You will be missed by the whole CF community for your passion and dedication. We will miss seeing you around at meetings. Have fun and keep in touch ❤️ xx
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Today we said goodbye to @Carol_A_Sharpe who has retired after over 30 years as a CF nurse specialist in Newcastle. Enjoy your well earned retirement Carol, we miss you already! @GreatNorthCH @NewcastleHosps #TeamCF
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Well done on completing the “CF Trust Exercise Practitioner Fellowship” Lucia 👏🏻 We are very proud! @cftrust @Lucia44535015
Lucia@Lucia44535015
Last day of the fellowship spent at Lancaster University, great talks late trains! Thanks to all that has supported my fellowship journey
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Teesside Cystic Fibrosis Centre retweetledi
A huge congratulations to childrens outpatients JCUH for achieving a diamond accreditation 💎 Truely putting children, young people and their families at the heart of all they do! @hilarylloyd13 @NatalieCock29 @spittsy @Nicola_Howe79
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Teesside Cystic Fibrosis Centre retweetledi
And here’s a link to the paper I presented last week at #ecfs2023.
Important to know that research into better treatments continues and doesn’t end with kaftrio.
#CysticFibrosisweek
NIHR Manchester CRF@ManchesterCRF
Prof Alex Horsley, Medical Director at NIHR Manchester CRF @WythenshaweHosp presented new data on the next-generation triple therapy for Cystic Fibrosis at the @ECFSConference in Vienna last week. This study was led from Manchester CRF 🔬 #CysticFibrosisWeek
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Teesside Cystic Fibrosis Centre retweetledi
Do you receive any hospital-prescribed medicines directly to your home? Have you experienced any problems?
With a recent review announced of a homecare delivery company, we want to hear about your experiences.
Click the link to fill in the survey:
surveymonkey.co.uk/r/ZPDSSNM
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Teesside Cystic Fibrosis Centre retweetledi
Paeds physios! Questionnaire on Infant/Baby PEP provision in UK and Ireland. Big variations in the way baby PEP is taught, the questionnaire aims to identify any consensus.
forms.gle/a2KSnVjmxCxgN6…
Any questions please contact Emma Dixon @EmmaDIX39217881
Many thanks!
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Teesside Cystic Fibrosis Centre retweetledi
Worth reflecting on #InternationalClinicalTrialsDay quite how far cf care has come, not just through modulators. It’s an amazing story, driven by clinical trials and by amazing people (patients and researchers).
ManchesterCFResearch@Manchester_cf
Manchester is proud to be part of CTAP and we strive to offer research opportunities to as many of our patients as possible. We are one of the highest recruiting centres in the uk and in Europe!
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Teesside Cystic Fibrosis Centre retweetledi
Teesside Cystic Fibrosis Centre retweetledi
We need your help to reach our survey response goal!
Here are three simple steps you can take to help out:
⭐ Fill in the survey.
⭐ Share the survey with your friends and family.
⭐ Retweet this post.
Make your voice heard today!
🔗 surveymonkey.co.uk/r/YourlifeandCF
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Good luck team ☘️
York Hull Adult CF Centre@yorkhullcf
Our CF Nurse and other team members are doing the coast to coast raising money for York Hull CF, through York and Scarborough Hospitals Charity. Good luck!! Any donations will be most welcome! York & Scarborough Hospitals Charity: Beat the Tide (enthuse.com)
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Teesside Cystic Fibrosis Centre retweetledi
Petitions that get shared more often, get more signatures. If you know someone with CF please share this every day this week. Thanks.
petition.parliament.uk/petitions/6337…
@Wessex_adult_CF @ChildrensUnit @AdultCystic
@CF_PROSPER @saporedisale14 @TeessideCF @nickluck @yorkhullcf #cfaware
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@SouthTees @STRIVEEvents looking forward to being part of the annual developmentally appropriate healthcare transition and health conference tomorrow at the Strive, JCUH #steestransition2023
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We also have a brilliant supportive social worker. I’m sure our families will agree Sara is amazing too
Alex Horsley@AlexRHorsley
Shout out to Fiona, one of our brilliant CF social workers!
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Teesside Cystic Fibrosis Centre retweetledi
We’re developing training resources to help CF centres improve exercise provision for people with #cysticfibrosis.
If you’re an adult with CF, or a healthcare professional, you can help by filling in our survey about exercise and CF.
➡️ ow.ly/IJle50NmNBK
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Teesside Cystic Fibrosis Centre retweetledi
Pleased to be able to share this nice piece of work from @Manchester_cf and @ChrisvanderGast team at MMU. Posting sputum back to the lab does not reduce our ability to culture CF bugs!
sciencedirect.com/science/articl…
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Teesside Cystic Fibrosis Centre retweetledi
Nutrition and Hydration week in CYPED, #anappleadaykeepsthedoctoraway #hydrationstation #NHW2023 @ste_mck1 @Sir_Souter @CathyBrammer @KeepGoinEoin @algordon94.
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