TheInformationPoint

From 1 January 2021 this page will no longer be updated. To learn more about the work of The Information Point between 2001 and 2020 visit storiesfromour.world/2020/10/28/an-…. For information about CNM/MTM in the UK follow @myotubulartrust. To keep hearing from Toni follow @ToniLouisa1.

Sunflower grown in Melbourne, Australia, for George who is diagnosed with myotubular myopathy, during #TheBigSunflowerProject 2020. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #sunflower #sunflowers #growasunflower

Need some sunshine in your life this dreary December morning? Take a look at the sunflowers from ten years of #TheBigSunflowerProject at instagram.com/thebigsunflowe…. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #sunflower #sunflowers #growasunflower

Sunflowers grown in Australia, for George who is diagnosed with myotubular myopathy, during #TheBigSunflowerProject 2020. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #sunflower #sunflowers #growasunflower

Tipp father’s joy as he raises funds needed for son’s emergency flight: extra.ie/2020/12/28/mus… #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy

FDA Lifts Clinical Hold On Trial Of AT132 For Treatment Of X-Linked Myotubular Myopathy: nasdaq.com/articles/auden… #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #clinicaltrial #clinicaltrials

BRIEF—FDA lifts clinical hold on Astellas AT132 trial: thepharmaletter.com/in-brief/brief… #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #clinicaltrial #clinicaltrials

Audentes Therapeutics Announces FDA Lifts Hold on ASPIRO Clinical Trial of AT132 for Treatment of X-Linked Myotubular Myopathy (XLMTM): businesswire.com/news/home/2020… #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy

Starting to worry about being alone/lonely on Christmas Day? Take a look at bacp.co.uk/news/news-from…. 2020 is the 10th year of the social media campaign which uses the hashtag #JoinIn on Twitter to connect all of those who could do with some company.

Merry 'different' Christmas everyone. Thank you for being part of our community over the past 12 months and supporting our work with follows, likes, shares and comments. Wishing you all a safe, happy, healthy and peaceful holiday season ... here's to an improved 2021. 🎄 🎅 🌟

Last minute Christmas shopping? Don't forget purchases made at easyfundraising.org.uk/causes/themyot… raise funds for @myotubulartrust. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #fundraising

Love this. ♥ Don't be lonely this Christmas ... join in. #Christmas #JoinIn

Sick baby's return to New Zealand still to take flight stuff.co.nz/manawatu-stand… #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy

Have you seen the @easyuk advent calendar? Visit easyfundraising.org.uk/advent-calenda… for the chance to raise donations for @myotubulartrust and prizes for you. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #fundraising

Christmas shopping this weekend? Don't forget purchases made at easyfundraising.org.uk/causes/themyot… raise funds for @myotubulartrust. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #fundraising

Myotubular Trust announce 16th research grant: mailchi.mp/85bb93ad2f64/y… #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy

@myotubulartrust Thank you. ❤️

@dynacure Thank you @dynacure. 😊

Christmas shopping? Shop at easyfundraising.org.uk/causes/themyot… this week to raise double donations for @myotubulartrust. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #fundraising

Have you see the @easyuk advent calendar? Visit easyfundraising.org.uk/advent-calenda… throughout December for the chance to raise donations for @myotubulartrust and prizes for you. #centronuclear #centronuclearmyopathy #myotubular #myotubularmyopathy #fundraising