TRCnet

Trent Cleft Team doing their Toilet Roll Challenge to raise much needed funds for @CLAPACOMMUNITY @TrentCleftLP We nominate you @CleftTeamWales @NewcastleCleft . What you got? youtu.be/jAZ5Ie52gxQ

Trent Cleft Team doing their Toilet Roll Challenge to raise much needed funds for @CLAPACOMMUNITY We nominate you @CleftTeamWales @NewcastleCleft What you got? youtu.be/jAZ5Ie52gxQ

@KWongRiffMD @anneklassen Great visual abstract summary of original Cleft-Q work #CFSGBI2019 ncbi.nlm.nih.gov/pmc/articles/P…

Interesting data from ⁦@CleftCollective⁩ on Intelligability In Context at 3 years old with cleft palate 24% have difficulty being being understood by strangers. Similar to incidence VPI? #cfsgbi2019

Lovely animation by Suhaym Mubeen and the GOSH team to help patients understand the alveolar bone graft process: youtu.be/YZanCoBSkac @CFSGBI #CFSGBI2019

@claire_cunniffe Gives an update on CLAPA at #CFSGBI2019 in year of CLAPA's 40th birthday. 40 years of making a difference to patients and families. #Awesome

Got a research question that could utilise the Cleft Collective Cohort Data - see more about accessing data bristol.ac.uk/dental/cleft-c… #cfsgbi2019 @CleftCollective

The Intelligibility in Context Scale is free, available in over 60 languages and has been validated in English, German, Vietnamese, Cantonese, Jamaican, Fijian, Slovenian etc. csu.edu.au/research/multi… #CFSGBI2019

Excited to be working with @kennyardouin @CLAPACOMMUNITY on the CLAPA Adult Services Project. Looking forward to sharing detailed results in the near future with cleft teams @CFSGBI #CFSGBI2019

Great first day at #CFSGBI2019 yesterday, lots of interesting research projects happening and it was a pleasure to be able to report back on the @CLAPACOMMUNITY Adult Research Project we’ve been working in with @NicolaMarie. Looking forward to learning more today! 🤓🙋🏼‍♂️👨🏼‍🎓

I'm an advocate of patient-first language "person with a cleft" rather than "cleft patient" @CFSGBI #CFSGBI2019

Great keynote of hugely impressive work changing the field completely #CFSGBI2019 by Mr Martin Snead founder of the award winning National Stickler Syndrome Diagnostic Service in Cambridge -Clinical and molecular genetics of Stickler syndrome jmg.bmj.com/content/36/5/3…

Fascinating keynote from Martin Snead @CFSGBI on the importance of early diagnosis of Stickler's Syndrome #cfsgbi2019

Martin Snead summarises clinical flags to consider diagnosis of Sticklers Syndrome and when to refer for @CFSGBI. Really useful, great keynote. #CFSGBI2019

Dr Wang shows normative nasal emission and nasalance in non-cleft adenoidal regression using nasal emission system. An interesting tool that needs further examination. #CFSGBI2019 glottal.com/product.html #CFSGBI2019

@TomasBONeill that was the kind of candour about training that is needed to move the conversation on. Well done. 👍🏼 Super results 3.5% fistula rate, a great future indicator for your patients. Supports concept of geography of destiny 😄#CFSGBI2019 keylimepodcast.libsyn.com/educational-im…

Another presentation by the @cleftcollective team about the genetics of face shape #cfsgbi2019 @stergiakouli #bigdata

When discussing facial phenotype this is an important concept -50 variables indentify facial difference ? #CFSGBI2019 The Code for Facial Identity in the Primate Brain cell.com/cell/fulltext/…

Sarah Lewis from @CleftCollective talking now on prenatal alcohol exposure and facial morphology #cfsgbi2019