United Mitochondrial Disease Foundation

It’s estimated to take the average #mitochondrialdisease patient up to 8 years to get a correct diagnosis – which means years of missed opportunities for care. Your support of our Spring Appeal can help bring answers to families still searching for them. umdf.donordrive.com/SpringAppeal/d…

Join sponsors like Leslie Engle and her company, Team Recovery, one of the sponsors behind UMDF’s Team Activate, who will be running at this year’s 2026 Bank of America Chicago Marathon for the #mitochondrialdisease community. Contact Tara Gallessich at tara.gallessich@umdf.org.

We’re in the final stretch before our Energy for Life Walk in St. Louis on Saturday, May 16. There’s still time to register, donate, or join us in person, as we come together to move the #mitochondrialdisease community forward, one step at a time. energyforlifewalk.org/stlouis

At this year’s #MitoMed Conference 2026 in Orlando, FL, patients and affected families are invited to join a special program focused on #Leighsyndrome on June 18 from 3:30 – 6:00 pm. To learn more about the Leigh Syndrome Family Programming visit: umdfconference.org/leigh-syndrome…

This #MothersDay, we honor every mother, caregiver, and mother figure whose love shows up in countless ways. To the mom’s celebrating, grieving, advocating, remembering, and loving, we see you and are holding space for you today and every day.

The May edition of the #UMDF newsletter is live and full of exciting news and updates for the #mito community. To read the latest, including what you need to know ahead of #MitoMed 2026, upcoming virtual webinars, our Spring Appeal, and more, visit: umdf.org/may26_newslett…

Looking for people who truly understand? Our weekly Virtual Support Meetings bring patients and families together to connect, share, and lift each other up. Visit our events calendar for upcoming meetings for the #mitochondrialdisease community. umdf.org/events-calenda…

UMDF’s mobile app for this year’s #MitoMed Conference 2026 is now live and is where you’ll find easy access to things you need to know about attendees, speakers, exhibitors, sessions, and more. Download the app for IOS and Android today to join the conference community online!

Since UMDF’s inception, the #mito community has seen meaningful advancements bring hope to patients and families. Support our Spring Appeal, so we can build on that momentum and work toward a future free from the challenges of #mitochondrialdisease. umdf.donordrive.com/SpringAppeal/d…

On #NationalNursesDay, we honor the individuals who are at the heart of every patient’s journey. Thank you #nurses for all that you do to care for patients and families in the #mito community, and the impact you make every day.

We’re excited to share a new addition to the #MitoMed Conference focused on Mitochondrial Encephalomyopathy, Lactic Acidosis, and Stroke-like episodes (#MELAS) on 6/20 from 9am – 12pm. Learn about this masterclass for clinicians and resource for families: umdfconference.org/melas-programm…

The countdown to UMDF’s Energy for Life Walk in St. Louis is officially on! Every step brings us closer to connection and to a future with more answers for the #mito community. Who’s ready to walk with us on May 16? There’s still time to register. energyforlifewalk.org/stlouis

In honor of the mothers in our community who continue to love, remember, and carry their children with them every single day, we are holding space for you this #InternationalBereavedMothersDay. If you’re seeking support, visit: umdf.org/get-support/

What’s happening at this year’s EuroMit and #MitoMed Conferences? Register for our upcoming Bench-to-Bedside Webinar on Monday, May 11 at 12 PM ET to hear from conference chairs from both conferences and get a preview of what to expect. umdf-mitou.teachable.com/p/mitou-umdfbtb

Join UMDF each week at one of our Virtual Support Meetings to connect with patients and families navigating a #mitochondrialdisease diagnosis. Visit our events calendar for upcoming meetings and login details. umdf.org/events-calenda…

Our #MitoMed Conference 2026 is coming up in Orlando FL from June 17-20. Hear from Peter J. McGuire MS, MBBCh from the National Institutes of Health, about why this conference is not to be missed. View the Scientific & Clinical Program Agenda: umdfconference.org/clinical-scien…

Help UMDF celebrate 30 years of progress for the #mito community. Together, we’ve made meaningful breakthroughs, but there’s more ahead. Support our Spring Appeal and help build a future free from the challenges of #mitochondrialdisease. umdf.donordrive.com/SpringAppeal/d…

On #GlobalUndiagnosedDay, we recognize the millions of individuals and families still searching for answers. The journey to diagnosis can take years, and at UMDF, we are committed to changing that through research, education, and advocacy. Learn more at umdf.org.

From families to physicians to advocates, the message is clear: PDCD patients need a science-based path forward now. U.S. Food and Drug Administration, we are united.  #ApproveDCA #PDCD #FDA

Our UMDF Ambassadors recently brought together the #mitochondrialdisease community in MN where they created space for shared experiences at an in-person meeting. Looking to get an in-person support group together? Email Margaret Moore at margaret.moore@umdf.org to get started.