Visual Snow Initiative

Sierra Domb, Founder & CEO of the Visual Snow Initiative (VSI), was recently featured by The Mighty. In the article, Sierra shares more about #VisualSnowSyndrome (VSS) 🧠, the mission behind VSI, and her personal medical journey living with

📖 Extraordinary Latinas is a book series that highlights powerful stories of Latina women making an impact, sharing experiences of resilience, leadership, and meaningful change. The latest volume features Sierra Domb, Founder of the Visual Snow Initiative.

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5️⃣ Manage medications and treatments more safely 6️⃣ Monitor related conditions like migraines or tinnitus 7️⃣ Request workplace or academic accommodations 8️⃣ Contribute to research and broader awareness visualsnowinitiative.org/research/shari…

Getting an official VSS diagnosis can help patients 1️⃣ Validate and medically recognize their symptoms 2️⃣ Reduce the risk of misdiagnosis 3️⃣ Advocate for their needs with confidence 4️⃣ Access specialized care, resources, and research

Sharing journeys of individuals with Visual Snow Syndrome from around the world 🌏 Spotlight on Her Zindagi 📖, featuring the story of Shafali Chadha, a 28-year-old Communications Manager from Delhi, India 💙 From the article written by Saumya Rastogi. herzindagi.com/society-cultur…

Dr. Sui Wong has created a video sharing helpful insights for anyone wondering whether they might have Visual Snow. @drsuiwong?si=IAUu52FJaEUviaRT" target="_blank" rel="nofollow noopener">youtube.com/@drsuiwong?si=…

the condition in different ways, even with the same genetics. This is also the first documented report of identical twins both diagnosed with #VSS in the medical literature. The case provides insight into possible genetic influences and symptoms associated with the condition. ❄️

medical testing including eye examinations, brain #MRI scans, blood tests, and cerebrospinal fluid analysis found no abnormalities, except for mild nearsightedness. The differences between the twins suggest that Visual Snow Syndrome exists on a spectrum. People can experience

🧠 A recent case report from #Poland documented 24-year-old identical twin sisters who were both diagnosed with #VisualSnowSyndrome (VSS). 🔗 Learn more via the following link: visualsnowinitiative.org/research/twins…

Visual Snow Syndrome is a neurological condition, and its symptoms are not always visible or noticeable. On top of these symptoms, many people are also managing other challenges in life.

Thank you to our supporters, Max and Laura, for raising awareness of Visual Snow Syndrome (VSS) and the Visual Snow Initiative (VSI)! Wearing some of our original hoodie designs from the organization’s early days, they continue to honor their relative living with VSS. 🩵

A #visualsnowsyndrome diagnosis can be the first step toward feeling less alone. It brings clarity, validates your experience, and helps connect you to a growing community, trusted resources, and ongoing research focused on better understanding VSS 🤍

art 🎨, nature 🌿, and human connection can become powerful forms of survival. The novel is now available on Amazon 🛒 and is also free on Kindle Unlimited 📲 🔗 You can check it out via the following link: visualsnowinitiative.org/awarness/she-s…

like VSS were widely dismissed. As a tribute to the researchers who helped bring awareness to VSS 🔬, she named two characters after Dr. Peter Goadsby and Dr. Christoph Schankin. Above all, She Saw the Wind is about finding beauty and meaning in an overwhelming world 🌎and how

Bruna Dolan is an indie author from #Brazil 🇧🇷 who has loved storytelling since childhood ✨📖. She lives with #VisualSnowSyndrome (VSS), a neurological condition that has profoundly shaped her life, especially during the years when her symptoms were unnamed and invalidated.