IWMF

New long-term data from the phase 2b CLOVER WaM trial showed promising results for iopofosine I-131 (CLR 131) in relapsed/refractory Waldenstrom macroglobulinemia. Read more: ow.ly/JqUx50Z2ie4 @CellectarBio #WaldenstromMacroglobulinemia #IopofosineI131

Today is WM World Awareness Day. Join the IWMF for all the latest updates in research, education, and support for those affected by Waldenstrom! iwmf.com/join-the-iwmf/ We are stronger together. #Waldenstrommacroglobulinemia #strongertogether #IWMF #WMWorldAwarenessDay2026

Dr. Anne-Marie Becking and Dr. Josephine Vos reveal the groundbreaking findings from the WM-VOICE Study. Wednesday, April 15 12:00 – 1:00 PM EDT Live on Zoom Don't miss the results and Q&A session. Register: ow.ly/zi4V50YyUI6 #WMVoiceStudy #IWMF #WMWorldAwareness

Can virtual integrative medicine improve cancer outcomes? It did in this clinical study. The IWMF Integrative Wellness Program offers these same evidence-based approaches for the WM community - virtually. iwmf.com #IntegrativeMedicine #VirtualWellness #IWMF

Have questions about Waldenstrom macroglobulinemia? This is your opportunity to hear directly from some of the world’s leading WM experts. Submit your questions via this link or the QR code: ow.ly/UwHH50Yt6fX #WM #Waldenstrom #IWMF #AsktheDoctors #ConnectinColumbus

This year, the European Educational Forum explores how timing shapes every stage of living with WM. Connect with experts and peers on April 24, 2026 in Athens, Greece. 📅 Register here: ow.ly/biKr50Ypm37 #WM #Waldenstroms #RareDisease #BloodCancer #PatientEducation

Exciting news! Dr. Steven Treon has been named the first Robert F. Tannenhauser Chair for Waldenström’s Research. Established through an anonymous gift, this investment will help power the next generation of discoveries. A cure for WM is within reach. #Waldenstrom #IWMF

"Alone, we can do so little; together, we can do so much." – Helen Keller Community is about connection, shared purpose, and collective strength. Find all that and more at IWMF’s annual Educational Forum in Columbus, OH from May 1-3. Register now: ow.ly/g4mX50YniOA

Australia WMozzies leadership gathered to ensure the continued, dedicated support and advocacy for the Australian WM patient community. Are you a WM patient or caregiver living in Australia? Connect with WMozzies: ow.ly/tXg050Yn4fG #WaldenstromsMacroglobulinemia

What does having a rare disease mean to you or your loved ones? Show your stripes - add your comment below. Visit NORD, one of our patient advocacy partners, at rarediseases.org to find out more about living with a rare disease. @RareDiseases

Join us to strengthen the WM community across Europe and beyond. ⏳ Early-bird registration available until Friday 13 March for the European Educational Forum on Friday 24 April in Athens, Greece. Register: ow.ly/6giJ50YipjR #EuropeanEducationalForum #IWMF #ECWM

Join us for a special 30-minute practice: journey within to celebrate your own precious rarity in honor of Rare Disease Day. Relax to the sound of authentic Himalayan Singing bowls. Register here: ow.ly/liZi50YioAO #RareDiseaseDay2026 #IWMF #Waldenstrom @rarediseaseday

The 2026 U.S. Educational Forum in Columbus will feature leading WM specialists sharing the latest insights in care, research, and living well with WM.  See who’s speaking and secure your spot! We can't wait to connect with you. na.eventscloud.com/website/90420/…

Waldenstrom macroglobulinemia (WM) is rare, but you aren’t alone. WM is a manageable journey, and our latest eNews is packed with the tools you need to navigate it. Read and subscribe here: conta.cc/4aLoWWA #IWMF #RareDisease #NewlyDiagnosed #CancerSupport

We’re pleased to invite the global Waldenstrom Macroglobulinemia (WM) community to join us for the 2026 European Educational Forum. 📍 Athens Capital Hotel, Greece
 🗓️ Friday, April 24, 2026 
✅ Registration is now open Register here: iwmf.com/iwmf-european-… #Waldenstrom

Registration is officially open! Join us in Columbus, Ohio, for IWMF’s cornerstone educational event at the Hilton Columbus Downtown. 🌟 U.S. Educational Forum | May 1–3, 2026 Register here: ow.ly/Vam350Y8Yx5 #EducationalForum #IWMF2026 #ConnectInColumbus #WMCommunity

Let’s mark February 4th - World Cancer Day - onto our calendars and set aside part of this day for honoring the journey. We are not just another cancer story. We are united by unique. #unitedbyunique #bloodcancer #Waldenstrom #worldcancerday2026

Registration is opening soon! On May 1-3, Join the 2026 IWMF Educational Forum in Columbus, Ohio. Patients, caregivers, healthcare providers, and researchers will come together to learn, connect, and find hope. 🌐 Please check IWMF website for updates: iwmf.com/iwmf-education…

👋🏾Janssen is seeking approval from the European Medicines Agency (EMA), for #Imbruvica to treat WM. This offers a vital new option for those with limited choices, potentially addressing a significant unmet need in Europe. #WaldenstromsMacroglobulinemia #Janssen #Imbruvica

I've been on Zanubrutinib for six months. At 61 years old, I feel I have a future again, gaining muscle and doing my 10,000+ steps daily. My doctors are impressed with my progress and I'm feeling better than I have in years! -Thomas E., Waldenstrom Patient #workoutwithWM