Williams Syndrome UK

Join Genetic Alliance UK for our free Rare Resources Scotland event in Aberdeen on 9 Dec 2025. Get vital info, connect with other people and find support for genetic, rare and undiagnosed conditions. Book your free place eventbrite.co.uk/o/genetic-alli… @quarriers @fragilexuk

7.11 - Williams Syndrome Day Save the Date!! Check out our CDLD 40 facts about WS to learn more, or explore our short course! Facebook @williamssyndromefoundationuk Instagram @WSF_UK

🥰 My Eva, who has #williamssyndrome. What is Williams Syndrome, I hear you ask? Few pics on it and to find out more about Williams Syndrome, visit williams-syndrome.org.uk @WSF_UK #williamssyndromeday #wsf

On Wednesday 25th July, @WSF_UK are holding a webinar on 'Upholding the legal rights of people with William Syndrome (and similar conditions)' - designed to support parents and carers of children and adults with Williams Syndrome. Book your pace now: forms.office.com/pages/response…

Participants needed! @durhamuniversity require people with Williams Syndrome aged 12 - 25 and their parents, to take part in a study looking at the social world of people with WS. Watch the short video to find out more. youtube.com/watch?v=WL-Y4M… email: grace.e.mccabe@durham.ac.uk

NEW WEBINAR!⭐️ Wednesday 25th July - Upholding the legal rights of people with WS with Eliza Sharron and Imogen Jolley. Our webinars are designed to support parents and carers of children and adults with WS. Email: enquiries@williams-syndrome.org.uk

It's learning disability week. This year's theme is about being seen, heard and being valued. People over 14 with a learning disability should have a health check every year. youtu.be/ocU8XhD1kh8 Make sure you ask your GP for your health check youtu.be/TBZpaJbeg2g

Proud to have contributed to Jamie Oliver’s Dyslexia Revolution documentary on Channel 4 with The Jamie Oliver Group, which shines a spotlight on what needs to change in our education system for children with SEND (📚💡 #SEND #EducationReform #Dyslexia #JamieOliver #ComeOnBridget

This week is Carers Week. Thank you to all of the carers in the U.K. and all over the world. #CarersWeek #CarersWeek2025 #Carers

Participants needed for research study! @durham_uni require young people with Williams Syndrome aged 12 - 25 and their parents, to take part in a study on the social world of people with WS. Please scan the QR codes or email: grace.e.mccabe@durham.ac.uk. youtube.com/watch?v=WL-Y4M…

Please watch this wonderful video starring Ashlee and Isabel - two inspirational ladies with #WilliamsSyndrome and ambassadors for the WSF ❤️

See the plain English england.nhs.uk/long-read/heal… and easy read england.nhs.uk/wp-content/upl… guidance on how to the complete the health and care passport template which is for people with a learning disability, autistic people, their families/carers.

Thank you to our wonderful WSF Patrons Elizabeth and Peter for helping to spread awareness of #WilliamsSyndrome for their niece Molly!❤️ Find out more about Williams Syndrome at williams-syndrome.org.uk . #williamssyndromeawarenessmonth #williamssyndrome #shareyourheart #DrWho

We celebrate #WilliamsSyndrome Awareness Month in May. By raising awareness, we can improve early diagnosis and intervention, promote research as well as reduce feelings of isolation and discrimination. Join us and help spread the Williams Syndrome word in May! @WSF_UK

The @WSF_UK Family Convention provides excellent opportunities for everyone to make friends and share support. There are presentations and workshops hosted by professionals and experts in WS. Find out more about our conventions by watching this video: williams-syndrome.org.uk/wsf-family-con…

Thank you for following our #TuesdayTakeover! If you would like to find out more about #WilliamsSyndrome or the @WSF_UK, please contact us at enquiries@williams-syndrome.org.uk or visit williams-syndrome.org.uk 0208 5671374 #Charity #Genetics #Rare #Awareness

We are fortunate to have a fantastic Professional Advisory Panel (PAP) - a panel of professionals who have expertise in WS and/or a special interest in voluntarily supporting families with WS. #WilliamsSyndrome #WilliamsSyndromeSupport @WSF_UK

@WSF_UK supports individuals with WS and their families through research, resources, and events. Learn more: williams-syndrome.org.uk #RareDisease #WilliamsSyndrome #Charity #Genetics #Chromosome #Rare #Healthcare #NHS

The @WSF_UK is a small UK charity, providing help and support for individuals with Williams Syndrome. We fund research, create resources and organise regional events to keep families connected. williams-syndrome.org.uk #WilliamsSyndrome #Charity #Rare #Support

Williams Syndrome is a rare genetic condition affecting around 1/18,000 people in the UK. It’s caused by a deletion on chromosome 7. It causes cardiac, physical and mental health problems as well as learning disabilities. williams-syndrome.org.uk #WilliamsSyndrome @WSF_UK