WORLD - Wales Orphan and Rare Lung Diseases

Tickets are now on Sale - 6 months to go WORLD's first Dinner & Dance on #WorldLung Day on Friday 25th Sept 2026 Everyone Welcome. See flyer for details Scan QR Code for more information & the reduced stay over rate. Please share widely 🩵 #RareDisease #LungSupport #DinnerDance

Protect yourself from TB: Preventive treatment keeps you healthy and TB-free! If you are a close contact of a TB patient or belong to a high-risk group such as people who are undernourished or have a weakened immune system including those with HIV or diabetes: - get tested for infection - complete your full course of preventive treatment to protect yourself from getting sick with TB Yes! We can end TB. Led by countries. Powered by people. Stay informed. Stay well. Follow WHO. 🔗 bit.ly/41lMDz9

A new report from Genetic Alliance UK - Equity for Rare (2026), sets out clear calls to action to improve healthcare for people living with rare conditions. Equity must be at the heart of policy and practice 📣 bit.ly/4snPEdU🔗

7 months to go! Preparations underway for our main event of the year! Friday 25/09/26 our 1st Dinner & Dance🍽️ 💃 All Welcome to join us, £35/ticket on sale soon. Please Share 🫁 #Support #dinneranddance #RareLungDisease #raredisease #LungHealth #LungSupport #RespiratoryHealth

Save The Date! Friday 25/09/26 Our 1st Dinner & Dance & main fundraising event for this year. So you have plenty of time to book the sitters, choose your outfit & get excited for a fun-filled evening. All very welcome to join us Tickets £35pp - keep posted for more details….

Filling up at #FOG2026 closing with Sir Stephen Fry

🫁 It’s World Pneumonia Day! Pneumonia is a serious infection that can affect anyone: especially children & older adults. In this week’s episode, we unpack the myths, risk factors, and how to protect yourself & your loved ones. 🎧 open.substack.com/pub/virtualcli… #worldpneumoniaday

The final edition of the COPD Magazine series from the International Primary Care Respiratory Group is now available to read. Please click here to read the issues - COPD Magazine | IPCRG

#TeamSteve are far braver than I am!🏊🥶 @WalesRare is a wonderful Charity supporting individuals and families like mine living with orphan and rare lung disease. Please share to raise awareness and funds Thank You 🙂

Our wonderful supporters Sharon, Carol, Sarah & Luke #teamSteve are bravely planning a New Year's Swim at Saunderfoot to raise awareness & funds for us at WORLD. Contributions & Shares very much appreciated. Thank you all /Diolch pawb justgiving.com/page/sharon-jo…

Excellent talk from Christian Newman , Hywel Dda Health Board -on how stopping smoking is associated with better quality of life in lung cancer after all their treatments👍👍@HywelDdaHB @TRITECH_HD @asthmalungcymru @ASHWalesCymru @PMTJames

Great presentation to The British Thoracic Society today by Suzanne Cass CEO ASH-Wales, on vaping in school children! @ASHWalesCymru @asthmalungcymru @WelshThoracic @TRITECH_HD @HywelDdaHB

À thumbs up from our youngest supporters 👍 Huge thanks to The Sultan, Roy & Lesley Dale for organising & all who came to our Quiz & Curry Fundraiser. Over £500 raised 👏 Remembering this evening Kyle Jenkins, our web designer & special supporter who sadly passed in September.

Join us! For a cancer-themed Genomics Café via Zoom, on Thursday 7th November 11-12:45pm 🧬Hear from our excellent speakers about current cancer research in Wales & find out the role genomics plays in cancer. Register for free here: ticketsource.co.uk/wales-gene-par… @CR_UK @LynchSyndromeUK

Come join us this coming Thursday 7th Nov at 7pm The Sultan, Llanelli for a Quiz & Curry Fundraiser. Unlimited curry, challenging quiz, raffle & great company! All welcome 🙂 For tickets contact 07761 427625 / 07443 936501 Or from Prof Keir Lewis’ office, Prince Phillip Hospital

Checkout our #SocialMedia channels and our website ataxia-and-me.org from #Ataxia / #Raredisease #Charity based in #Wales with a #Global Following #Patient #Pharma #StrongerTogether #Hexagons

Are you a trivia buff, love unlimited curry or enjoy a fun time? Join us for a Quiz & Curry Night at The Sultan, Llanelli on Thursday 7th Nov 7:00pm For your tickets please contact Lesley 07761 427625 or Ray 07443936501 or Prof Keir Lewis’ office, Prince Phillip Hospital.

📣 📣📣Just 3 weeks to go to our next #WORLD Curry & Quiz Night at The Sultan Llanelli. Tickets available from Lesley on 07761 427625 or Ray on 07443936501 or from Prof Keir Lewis’ office at Prince Phillip Hospital. Please book your tickets now to avoid disappointment 🙂