World Bladder Cancer Patient Coalition (@WorldBladderCan) - Twitter Profili

Sabitlenmiş Tweet

World Bladder Cancer Patient Coalition@WorldBladderCan·4 Mar

💡 Looking for ideas to fundraise for your initiative or patient group? Our new guide “How to raise funds for your patient group” brings together practical ideas used across the #bladdercancer community 🌍 Inside you will find: 🏃 #Fundraising event ideas 💶 Tips on grants, donations and membership models 📸 Ways to build trust with donors 🌍 Real examples from different organisations Explore the guide👉worldbladdercancer.org/news_events/em… #PatientAdvocacy #PatientSupport #HealthAdvocacy

World Bladder Cancer Patient Coalition tweet media

English

0

3

4

304

World Bladder Cancer Patient Coalition@WorldBladderCan·10h

📣 More than 7,000 different chemicals are in tobacco & tobacco smoke- more than 70 of them are known to cause cancer. 🚬 is the biggest risk factor of #bladdercancer. Learn more & stay #BladderCancerAware! 👉 ow.ly/wXGP50Oi65c

English

0

2

42

World Bladder Cancer Patient Coalition@WorldBladderCan·2d

📣 Results from WBCPC Global Survey! 🗣️ “Joining a support group is the best way to connect with others who have been through the same experience as you, or are going through it too.” The report👉 ow.ly/pa8H50OQmXA

English

0

1

3

96

World Bladder Cancer Patient Coalition@WorldBladderCan·3d

📣 Welcome to the team, Bjorn Carlson, our new Programme Support Trainee! 🌍 Bjorn will help strengthen patient engagement, improve access to information & contribute to better care for people affected by bladder cancer. We are excited to have you on board! 👋

English

0

2

97

World Bladder Cancer Patient Coalition@WorldBladderCan·3d

💬 Medical terms should not feel like another obstacle after a bladder cancer diagnosis. 📘 Our new factsheet, Understanding Medical Terms in Bladder Cancer, explains words like biopsy, cystoscopy and immunotherapy in clear, plain language. So patients can feel more confident asking questions and taking part in decisions. 🔗 Learn more about the new factsheet: ow.ly/L2jr50YiGj5 📄 Explore the full Factsheet Series: ow.ly/J2IL50YiGjM #BladderCancer #BladderCancerAware #PatientSupport #HealthLiteracy

English

0

2

4

243

World Bladder Cancer Patient Coalition@WorldBladderCan·3d

🔍 We want to highlight the vital role of nursing support in bladder cancer care. 📢 Let’s advocate for consistent, compassionate care for all patients and recognise the essential role of nurses in providing care to bladder cancer patients. Explore our Bladder Cancer Survey report to learn more 👉 ow.ly/EIFs50RkZR1 #BladderCancer #BladderCancerAwareness #BladderCancerAware #BladderCancerCare #BladderCancerSupport

English

0

3

81

World Bladder Cancer Patient Coalition retweetledi

BCLEAR@EU_BClear·4d

📍 At #EAU26, the #BCLEAR project was presented during the session Health Literacy in #BladderCancer/ BCLEAR is the first EU-funded initiative focused on improving bladder cancer health literacy across Europe, supporting awareness, patient education & shared decision-making.

English

1

4

8

447

World Bladder Cancer Patient Coalition@WorldBladderCan·5d

🔍 Why are women with #bladdercancer often diagnosed later? This question was discussed today at #EAU26 during the session on closing diagnostic and care gaps for women with urinary cancers. Evidence shows 69% of women are initially misdiagnosed, contributing to delayed diagnosis and worse outcomes. 📎 Learn more: worldbladdercancer.org/news_events/wo… #WomensHealth #PatientAdvocacy

English

1

4

5

455

World Bladder Cancer Patient Coalition@WorldBladderCan·5d

📍 Today at #EAU26, we hosted the session on patient barriers to discussing urinary symptoms linked to #bladdercancer. Research based on 4,067 respondents shows that symptom interpretation, stigma and embarrassment can delay care-seeking. Addressing these barriers is key to earlier diagnosis. 📎 Learn more: worldbladdercancer.org/wp-content/upl… #EarlyDiagnosis #PatientAdvocacy

English

0

1

4

158

World Bladder Cancer Patient Coalition retweetledi

associazionepalinuro@AssPalinuro·5d

Immagini da @Uroweb #EAU26 con Alessandro Boni e tutta la @WorldBladderCan

Italiano

0

2

3

255

World Bladder Cancer Patient Coalition retweetledi

BCLEAR@EU_BClear·13 Mar

📍 Today at #EAU26, BCLEAR hosted the session “Shared decisions, stronger care.” Discussion focused on how to strengthen #SharedDecisionMaking in bladder cancer care. ➡️ Key insight: only 46% of patients say they receive all the information they need at diagnosis. #BladderCancer

English

0

1

162

World Bladder Cancer Patient Coalition@WorldBladderCan·13 Mar

📍 At #EAU26 & proud to share our poster won 3rd Prize in the Patient Advocacy Poster Session 🏆 Today Alex Filicevas presented our research on behavioural factors influencing whether people seek medical care for urinary symptoms linked to #bladdercancer. Explore the poster 👉 worldbladdercancer.org/wp-content/upl…

English

0

6

160

World Bladder Cancer Patient Coalition@WorldBladderCan·13 Mar

We are glad to have contributed to #CloseTheLoop, which shows how the post-COVID reality is reshaping #patientsupport. Higher demand is not just about numbers, it reflects delayed diagnoses, disrupted care and patients turning to organisations for guidance, navigation &

English

0

3

63

World Bladder Cancer Patient Coalition@WorldBladderCan·10 Mar

🌍 Over two days, the Forum showed how patient advocacy can drive change in diagnosis, policy, care pathways and research. 💬 Day 1 focused on empowering advocates. 📊 Day 2 brought together experts to explore early detection, equity and real world data. 👉 Watch the highlight video: ow.ly/tTKN50XAIF5 🔎 Missed other sessions? Explore all Forum presentations and discussions on the WBCPC YouTube channel. #BladderCancer #PatientAdvocacy #GlobalCollaboration #BladderCancerAware #BladderCancerCare #BladderCancerPatients

English

0

2

163

World Bladder Cancer Patient Coalition retweetledi

Shilpa Gupta@shilpaonc·10 Mar

1 in 4 patients diagnosed with bladder cancer are women. Gender bias can delay diagnosis, care and outcomes. It is critical to raise importance among patients, internists and GPs to not attribute symptoms in women to UTIs alone. @IBCG_BladderCA @BladderCancerUS @BladderConnect @UroDocAsh @karima_oualla @apolo_andrea @PGrivasMDPhD @SpiessPhilippe @AndreaNecchi

World Bladder Cancer Patient Coalition@WorldBladderCan

🚺 #Bladdercancer is often seen as a “man’s disease.” But 1 in 4 people diagnosed are women. In our new opinion piece, patient advocates Fatima Baig and Helen Lacy, together with oncologist Ananya Choudhury, explore how gender bias can lead to delayed diagnosis and overlooked symptoms. This #InternationalWomensDay, we call for: ➡️ Greater awareness among women ➡️ Earlier recognition of symptoms ➡️ Care pathways designed with women in mind Women with bladder cancer should no longer be unseen. 📖 Read the opinion piece: worldbladdercancer.org/news_events/th…

English

3

10

31

2.5K

World Bladder Cancer Patient Coalition retweetledi

Mario I Fernandez@marigfern·10 Mar

'El costo de no ser vistas' -> El sesgo de género en el cáncer de vejiga, enfermedad en la cual 1 de 4 pacientes son mujeres, resulta en diagnósticos tardíos y pobres desenlaces ▶️ ¡Hematuria y sintomatología urinaria en mujeres no siempre es una infección urinaria! Ayudemos a concientizar de esto al cuerpo médico @ResidentesCAU @CAU_URO @autran_anamaria @Urolchi @RSanchez_Salas @HegeltS @joanfundi @DrFelixGuerrero @RodriguezFaba @chavarriagaj @ARRODRIGUEZMD @LuisEbel1 Versión de post en Español 👇nam02.safelinks.protection.outlook.com/?url=https%3A%…

World Bladder Cancer Patient Coalition@WorldBladderCan

🚺 #Bladdercancer is often seen as a “man’s disease.” But 1 in 4 people diagnosed are women. In our new opinion piece, patient advocates Fatima Baig and Helen Lacy, together with oncologist Ananya Choudhury, explore how gender bias can lead to delayed diagnosis and overlooked symptoms. This #InternationalWomensDay, we call for: ➡️ Greater awareness among women ➡️ Earlier recognition of symptoms ➡️ Care pathways designed with women in mind Women with bladder cancer should no longer be unseen. 📖 Read the opinion piece: worldbladdercancer.org/news_events/th…

Español

0

4

8

612

World Bladder Cancer Patient Coalition retweetledi

Karima Oualla, MD,MSc@karima_oualla·10 Mar

Bladder cancer isn’t a man’s disease and often misdiagnosed in women leading to late diagnosis Speak about any urinary symptoms to your doctors! @shilpaonc @UroDocAsh @achoud72 @WorldBladderCan @IBCG_BladderCA

World Bladder Cancer Patient Coalition@WorldBladderCan

🚺 #Bladdercancer is often seen as a “man’s disease.” But 1 in 4 people diagnosed are women. In our new opinion piece, patient advocates Fatima Baig and Helen Lacy, together with oncologist Ananya Choudhury, explore how gender bias can lead to delayed diagnosis and overlooked symptoms. This #InternationalWomensDay, we call for: ➡️ Greater awareness among women ➡️ Earlier recognition of symptoms ➡️ Care pathways designed with women in mind Women with bladder cancer should no longer be unseen. 📖 Read the opinion piece: worldbladdercancer.org/news_events/th…

English

1

3

9

481

World Bladder Cancer Patient Coalition retweetledi

Ashish M. Kamat, MD, MBBS@UroDocAsh·10 Mar

A must read! 🚨 Women with bladder cancer often face delayed diagnosis, with serious consequences. Hematuria in women deserves the same urgency and evaluation as in men. + New factsheet: Bladder Cancer in Women: Unique Challenges – an important step toward greater awareness and equity in care. ♀️🧿 worldbladdercancer.org/news_events/ne… #EAU26 @achoud72 @MargoWickersham @shilpaonc @karima_oualla @ImmunoBladder @AmandaMyersMD @SimaPorten @spsutkaMD @LauraBukavinaMD

World Bladder Cancer Patient Coalition@WorldBladderCan

🚺 #Bladdercancer is often seen as a “man’s disease.” But 1 in 4 people diagnosed are women. In our new opinion piece, patient advocates Fatima Baig and Helen Lacy, together with oncologist Ananya Choudhury, explore how gender bias can lead to delayed diagnosis and overlooked symptoms. This #InternationalWomensDay, we call for: ➡️ Greater awareness among women ➡️ Earlier recognition of symptoms ➡️ Care pathways designed with women in mind Women with bladder cancer should no longer be unseen. 📖 Read the opinion piece: worldbladdercancer.org/news_events/th…

English

0

5

17

1.6K

World Bladder Cancer Patient Coalition@WorldBladderCan·9 Mar

📣 Yesterday, for #InternationalWomensDay, we released a new factsheet: “Bladder Cancer in Women: Unique Challenges.” #Bladdercancer is often seen as a disease that mainly affects men. Yet 1️⃣ in 4️⃣ people diagnosed are women, and women are more likely to be diagnosed at a later stage. The factsheet highlights: 🔎 Why symptoms in women are often misinterpreted 🩺 Why early investigation matters 💬 The physical and emotional impacts of treatment 🤝 The role of support networks and patient organisations 🔗 Read more: worldbladdercancer.org/news_events/ne…

English

0

4

241

World Bladder Cancer Patient Coalition@WorldBladderCan·8 Mar

🚺 #Bladdercancer is often seen as a “man’s disease.” But 1 in 4 people diagnosed are women. In our new opinion piece, patient advocates Fatima Baig and Helen Lacy, together with oncologist Ananya Choudhury, explore how gender bias can lead to delayed diagnosis and overlooked symptoms. This #InternationalWomensDay, we call for: ➡️ Greater awareness among women ➡️ Earlier recognition of symptoms ➡️ Care pathways designed with women in mind Women with bladder cancer should no longer be unseen. 📖 Read the opinion piece: worldbladdercancer.org/news_events/th…

English

0

12

17

6K

World Bladder Cancer Patient Coalition

Keşfet