WWOX Foundation

💜 March 26 – Epilepsy Awareness Day 💜 Today, we stand in support of all those living with epilepsy, especially the children and families affected by WWOX-related syndromes. #EpilepsyAwareness #PurpleDay #WWOX #raredisease #Woree

🧡 February 16th is International WWOX Awareness Day 🧡 Today we come together to raise awareness for WWOX-related disorders and to honour the incredible strength of the children and families affected worldwide. Help us spread awareness by sharing this post today.

THANK YOU! Each and everyone of you who supported our February campaign WALKS for WWOX. Together we raised a total of: $32,455.14 Your generosity will help us to continue to search for effective treatments for our children's disease. #wwox

🧡FUNDRAISER UPDATE 💙 As of today we have raised a total of $16.675 This puts us at a 13% of our target amount of $125.000. Can you help us reach our goal? US Dollars campaign: givebutter.com/walksforwwox24 International Currencies: donorbox.org/walks-for-wwox…

WALKS FOR WWOX 2024 FUNDRAISER Join us and walk 16 miles in the month February! Walk, share and donate for a better future for children living with WWOX diseases TO DONATE IN US DOLLARS givebutter.com/walksforwwox24 TO DONATE IN OTHER CURRENCIES donorbox.org/walks-for-wwox… #wwox

Probably Genetic has recently launched a no-cost genetic testing program for individuals with seizure disorders. Testing only requires a saliva sample collected at home. Apply to see if you are eligible here: bit.ly/42mWrry

It has been a very difficult season for our community as we have lost several warriors in a short period of time They will never be forgotten, and in their memory we will continue to fight for a cure, one that will save lives. Rest in Peace Little Warriors #wwox #fightforacure

Norway, Czech Republic, Georgia, Malta, Mexico, Spain, Turkey, Israel 2 Argentina, Bahrain, Canada, Chile, Netherlands, Philippines, Romania, Russia, Saudi Arabia, Serbia, South Africa, UAE, New Caledonia, NZ, Bosnia, Slovenia, El Salvador 1 Undisclosed 7 Total cases: 139

We have WWOX warriors all over the world! PART I USA 38 UK 16 France 12 Germany 9 Australia 8 Brazil 7 Italy 5 India 4 (continued in next tweet)

Check out our newsletter and get the latest news from our foundation! Link to subscribe at the end. shoutout.wix.com/so/c2ORwqAzh?l…

#RareDiseaseDay 70% of genetic rare diseases start in childhood. This is why we keep fighting to find a cure for our warriors, so they can be treated as soon as possible after diagnosis. #wwox #genetic #genetherapy #epilepsy #disabilities

#RareDiseaseDay 72% of rare diseases are genetic. In our case the mutations on the WWOX gene. #wwox #rare #epilepsy #genetic

#RareDiseaseDay is here! Today we join all of the other warriors worldwide suffering from different rare diseases. Together we are strong! #rare #icareforrare #wwox #genetic #warriors

#RareDiseaseDay There are more than 6000 identified Rare Disease in the world! #wwox #rare #epilepsy #genetic

#RareDiseaseDay 300 Million People World Wide living with a Rare Disease #wwox #genetics #rarearemany #epilepsy

Do you know what WWOX means? It is actually not the name of the disease our children battle daily, but the name of the gene that when mutated causes the disease. Learn more: youtu.be/ni_p8WJsvBE #wwox #wwoxday #raredisease #rareepilepsy

🎄 Merry Christmas and Happy New Year from all the WWOX Warriors and their families around the world, may this time be filled with love and peace for all of you. 🎄 #wwox #merrychristmas #holidays #wwoxwarriors #raredisease #epilepsywarrior

Happy Hanukkah to all the families celebrating, from all of us at the WWOX Foundation. #hanukkah #lightandlove #wwox #holidays #community

⭐️ You can now join our efforts to advance the research to find a cure for WWOX-related diseases. ⭐️ Here’s list of the different ways you can participate as a parent or caregiver. #wwox #raredisease #epilepsy #research #genetherapy wwox.org/team-3

🛑 ATTENTION FAMILIES AFFECTED BY WWOX RELATED DISEASES🛑 We are looking for families to join a survey research study to gather disease burden feedback. If you are interested in joining the study please email: wwox@patientinterviews.com #wwox #rareepilepsy #raredisease