Sarah Dewfall

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Sarah Dewfall

Sarah Dewfall

@YarnspiderBTS

An FND warrior with passion for the slow cloth movement! Spinning, knitting, weaving. Covering the world in sustainable fibres one length of cloth at a time.

Watchet, England Katılım Nisan 2018
672 Takip Edilen132 Takipçiler
Sarah Dewfall
Sarah Dewfall@YarnspiderBTS·
Definitely THIS ⬇️. Assumptions and misinformation tied to FND are responsible for so much medically induced PTSD. Which in turn, clouds the diagnosis. And treatment. Especially if attempting to detox from medication prescribed by the same Dr.
Tom Plender@TomPlender

1/Gaining control of #FND symptoms in rehab is challenging and requires a lot of courage and determination on the part of the patient, particularly if they’ve had the condition for many years. Symptoms often flare at the beginning of treatment when a new activity is introduced

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FND Portal - is no longer on X
FND Portal - is no longer on X@FndPortal·
“We found no evidence that depression or anxiety influenced outcome in [functional limb weakness]. Large-scale, prospective studies in FND-par, and other FND subtypes, are needed to fully contextualize the impact of concurrent mental health concerns on outcomes.”
Journal of Psychosomatic Research@J_Psychosom_Res

New publication: The impact of depression, anxiety and personality disorders on the outcome of patients with functional limb weakness – Individual patient data meta-analysis sciencedirect.com/science/articl…

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Feargal Sharkey
Feargal Sharkey@Feargal_Sharkey·
Now there's a thing. 🤔
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Peter Stefanovic
Peter Stefanovic@PeterStefanovi2·
I have never heard so much bull**** in a single conference speech This is the round up you won’t see on @BBCNews. If you think the country should see it RT it widely
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Peter Stefanovic
Peter Stefanovic@PeterStefanovi2·
Whilst the Government distracts us with small boats its anti strike bill will rob millions of workers of their democratic right to strike, its Elections Act will lock millions out of the electoral process & new laws will strip back our right to protest. UK media must wake up!
Peter Stefanovic@PeterStefanovi2

Whilst Rishi Sunak distracts us with small boats the Gov’ts anti strike bill will rob millions of workers of their democratic right to strike, its Elections Act will lock millions out of the electoral process & new laws will strip back our right to protest. UK media must wake up!

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Peter Stefanovic
Peter Stefanovic@PeterStefanovi2·
If you stand with our junior doctors & have had enough of UK media’s utterly bull**** reporting of this dispute please RT this widely
Peter Stefanovic@PeterStefanovi2

This disgraceful @BBCBreakfast interview of Health Secretary @SteveBarclay was the absolute worse I’ve seen so far on the Junior doctors strike No mention his offer is another crappy real terms pay cut & no mention Government plans to impose it on them Viewers deserve better!

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Sarah Dewfall
Sarah Dewfall@YarnspiderBTS·
@TomPlender Don't apologise for calling out a clumsy and outdated description. The way that this is worded it is almost encouraging ignorance of current research.
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Tom Plender
Tom Plender@TomPlender·
4/‘distract attention away from body to normalise Incorrect lay beliefs about the body’, indicative of a kind of patronising & patrician tone we were supposed to have moved on from, term ‘Lay beliefs’ holds the assumption all non doctors are somehow irrational & unscientific
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Tom Plender
Tom Plender@TomPlender·
1/When you look at the wording used to describe #FND here you have to ask yourself is it any wonder so many patients reject the diagnosis. I have FND and I accept the diagnosis but I find the way it is portrayed here clumsy, simplistic & insensitive
Journal of Neurology, Neurosurgery and Psychiatry@JNNP_BMJ

BMJ Neurology Open invites submissions to its Topic Collection "Advances in Functional Neurological Disorder (FND)". Guest Edited by Wendy Phillips and Mark Edwards, authors benefit from a reduced APC and increased visibility. Find out how to submit: neurologyopen.bmj.com/pages/topic-co… #fnd

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FND Portal - is no longer on X
FND Portal - is no longer on X@FndPortal·
Pleased to share that I’m teaming up w the folks at ETUDE to contribute to their mission of improving care for folks with FND. More to come ☺️ etude-itn.eu
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Peter Stefanovic
Peter Stefanovic@PeterStefanovi2·
This video calling out the Prime Ministers bull**** on public sector pay got over 200,000 views overnight & has suddenly been deleted! So here it is again. Share it far & wide! Let’s make sure the country knows the TRUTH
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FND Action
FND Action@FNDAction·
We were approached by @ThinkingMindPod to comment on this interview with @Suz_OSullivan. We appreciate Dr O'Sullivan's calls for compassion for #FND patients, but have major criticisms of her work. This is a link to our open statement fndaction.org.uk/fnd-action-res…
The Thinking Mind Podcast: Psychiatry & Therapy@ThinkingMindPod

Do we all have psycho-somatic symptoms? When does medicalising symptoms go too far? Do we see the world as it is or do we see a representation of the world? From our lastest podcast, an epic conversation with @Suz_OSullivan

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Sarah Dewfall
Sarah Dewfall@YarnspiderBTS·
Thank you @FNDAction for such a calm & balanced reply. Once again the Medical Establishment find it safer to blame the patient than to accept that maybe, just maybe they are themselves in error.
Tom Plender@TomPlender

@ThinkingMindPod approached us at @fndaction for comment on their recent interview with @Suz_OSullivan. We felt we had a duty to respond to the claims made about FND which have little scientific evidence to support them & could negatively impact patients fndaction.org.uk/fnd-action-res…

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Sally Pointer
Sally Pointer@sallypointer·
And lo! It was written, (probably in the depths of the dissertation handbook) that the overstressed archaeologist should be fed ice-cream sundaes as large as her head on a regular basis ...
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Sarah Dewfall
Sarah Dewfall@YarnspiderBTS·
@TomPlender Of course it's not. And it's a terrible position to be in. Unfortunately, it is happening time and time again. No-one is prepared to take responsibility. Whilst individuals are more concerned with their own welfare than that of those they treat, I cannot foresee change .
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Tom Plender
Tom Plender@TomPlender·
I was diagnosed with #antidepressant withdrawal syndrome several years ago. At times the symptoms have been so severe I considered ending my life. For years I was met with denial by medical professionals and I'm still unable to find any support from the #NHS. Is this acceptable?
Dr James Davies (PhD) 💭@JDaviesPhD

"We believe that the NHS has a clinical & moral obligation to help those who've been harmed by taking their medication as prescribed...we urgently call upon the UK government to fund & implement withdrawal support services, including a national helpline". bmj.com/content/381/bm…

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Tom Plender
Tom Plender@TomPlender·
@YarnspiderBTS @emilylinka I’m currently trying to get off venlafaxine, been doing it for several years and it’s utter hell, really good to hear of someone who managed to get off it successfully
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Tom Plender
Tom Plender@TomPlender·
The problem is your doctor is unlikely to be well informed about anti depressant withdrawal. I have been unable to find any support for very complex withdrawal issues, we need de prescribing clinics run by informed experts.
Royal College of Psychiatrists@rcpsych

Following today’s @BBCPanorama ‘The Antidepressant Story’, we advise anyone thinking of stopping their antidepressants to talk to their doctor first. These medications should not be stopped abruptly. See our patient resource here rcpsych.ac.uk/mental-health/…

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Liberty
Liberty@libertyhq·
BREAKING Suella Braverman is set to sign off protest restrictions she has no power to create. Restrictions rejected by Parliament Undemocratic Unconstitutional Unacceptable LIBERTY'S LAWYERS HAVE STARTED LEGAL ACTION AGAINST THE HOME SECRETARY
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Sarah Dewfall
Sarah Dewfall@YarnspiderBTS·
@emilylinka @TomPlender You aren't alone. It took years for my husband to get off Venlafaxine . But it is worth it. Until it was gone we had underestimated how much of his illness was actually side effects.
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Linka (She/her) ♿️🏳️‍🌈💜
Linka (She/her) ♿️🏳️‍🌈💜@emilylinka·
@TomPlender Even my psychiatrist was bewildered by how severe my venlafaxine withdrawal was. We currently have to cut my pills as I’m on 17.5mg twice a day and terrified to try stopped again after last time almost cost my life
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LifewithFND
LifewithFND@FndLifewith·
If you aren’t meant to eat midnight snacks, why does the fridge come with a light? 😂🙌 This is my kind of logic! 😂
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Keşfet

@FndPortal @BBCNews @TomPlender @ZacharyGrinDPT @Kitschcreations @FNDAction @ThinkingMindPod @sallypointer