Young Dementia Network

Our short animation explains what the Young Dementia Network is, what it does and how to join, from the perspective of a person living with the condition. Please feel free to share it with your family, friends, colleagues and networks to help us grow our membership.

A campaign to highlight the caring duties that fall on the families of people diagnosed with young onset #dementia launched in April 2026 on Radio 4's 'Woman's Hour' programme. The interview starts 15 minutes into the programme, which you can listen to here: bbc.co.uk/sounds/play/m0…

Today marks the start of Dementia Action Week. We're sharing Dementia UK's animation explaining 'What is young onset dementia', to raise awareness of the condition and how it affects younger people and their families. You can watch it in full here: youtu.be/F56nIVpDglQ?si…

If you are living with #dementia, the University of Worcester would like to hear your thoughts on personal care in a short online survey. This will help them ensure a book chapter they are writing around the experiences of people living with dementia with personal care includes the voices of people living with condition. 📄 You can find the survey and more information here: app.onlinesurveys.jisc.ac.uk/s/ucw/personal…

A new group has been set up in Essex to address a gap in support for younger people with #dementia. 👥 The Young Minds Dementia Group meets weekly on Thursdays from 2.30-4.30pm at the Stroke and Wellness Centre, 85 Frinton Road, Holland-on-Sea, Essex CO15 5UH. For more information about the group, click here: youngdementianetwork.org/wp-content/upl…

Our ID cards were created in collaboration with our members to make it easier for people affected by young onset #dementia to access support while out in the community. 🪪 There are two designs – one for people living with young onset dementia, and the other for family members and supporters. They are one of our most requested resources. Get your ID card now: youngdementianetwork.org/resources/youn…

Good communication is central to meaningful involvement of people with #dementia in #research. Yet research spaces are not always designed with communication differences in mind. The 'Let’s talk dementia' guidance was created to help change that. Find out more here; ucl.ac.uk/population-hea…

Our webinar on Tuesday 19th May 2026 will explore the experiences of autistic people when accessing #dementia healthcare, highlighting some of the barriers they may encounter and the importance of making services more accessible and inclusive. 💻 Sign-up now: youngdementianetwork.org/news-and-event…

The link in our post re: taking part in a special episode about #dementia of Operation Ouch! isn't working. Please use this link instead: youngdementianetwork.org/wp-content/upl…

The Operation Ouch! Production Team is in the early stages of producing a special half-hour programme about dementia for Children's BBC. The team is hoping to film a family in which a parent or grandparent is living with dementia and where a child or young person aged 7 to 15, who has a relationship with them, would feel comfortable sharing their experience on camera. 📹 If you or your family might be interested in taking part, email Rebecca King at rebeccaking@objectivemedia.group or click the link for more information: 👇 youngdementianetwork.org/Operation-Ouch! (Photo credit: BBC)

Tommy, who is living with young onset Alzheimer's disease, met carer Andrew in a pub in Liverpool to chat about a subject many men struggle to discuss openly: #dementia. In the latest episode of Dementia UK's 'My life with dementia' podcast, they talk about navigating the emotional ups and downs of living with dementia and how expectations around masculinity have affected their experiences. Listen to the full episode now: podfollow.com/my-life-with-d… @TommyTommytee18 @Swinno1976

Liverpool Dementia Action Alliance is holding a Young Onset Dementia Awareness Day at Liverpool Central Library, William Brown Street, Liverpool L3 8EW. The free public event, taking place today, Thursday 7th May 2026, from 10am-4pm, aims to raise awareness of the condition, challenge public assumptions that it only affects older people and connect younger people and their families with the support they need. Find out more here: youngdementianetwork.org/wp-content/upl…

🌟 1 Week to Go! Register for our free webinar 🌟 🪧 Why we must improve access to dementia assessment and diagnosis 🗓 Monday 11 May 2026 ⏰ 2–3pm (UK time) 💷 Free to attend 👉 Register here: buff.ly/y0Qkfse 💙 Support us: buff.ly/xKGZ6GE #dementia

We would like to say a massive thank you to everyone who took part in our Share your experiences campaign on peer support. Over 150 people have completed the survey which has blown us away! Over the coming weeks, we’ll be reviewing all survey responses and bringing the insights together. We’ll share our findings with you in the months ahead. We’re also planning to host a webinar later this year to explore this important topic in more depth, so keep an eye out for updates.

The @JDementiaCare webinar on Monday 11th May 2026 will challenge common myths and misconceptions about #dementia assessment and diagnosis. It will explore why it’s important to access an assessment and accurate diagnosis at any stage of the condition, and how other treatable conditions with similar symptoms can be picked up by seeking an assessment. Register here: eventbrite.co.uk/e/why-we-must-…

In a new short film from @DementiaUK, Cici and Izzy talk openly about their experiences of having a parent with young onset #dementia, the impact it has had on their families and how becoming a carer at a young age has impacted their mental health and future plans. You can read their story and watch the film here: dementiauk.org/information-an…

Carefree is a charity which transforms vacant hotel rooms into vital breaks for full-time unpaid carers. To be eligible you need to be over 18 years of age and provide more than 30 hours of unpaid care per week. You can take someone with you, but to ensure you can truly get a break from caring, this should not be the person you care for. For more information, visit the Carefree website: carefreespace.org

Specialist Admiral Nurses from @DementiaUK’s Health Inequalities Team have shared expert advice for people from the LGBT+ community who are affected by #dementia around finding support, dealing with stigma and discrimination and accessing health and social care. 🌈 Read more here: dementiauk.org/information-an…

Stacey Solomon's BBC programme ‘Sort Your Life Out’ helped couple Gerald and Trish and their three children to declutter and makeover their home. Gerald was diagnosed with young onset #dementia seven years ago at the age of 55. You can watch the episode now on BBC iPlayer: bbc.co.uk/iplayer/episod…

🌟 5 Days to Go! Join us for our free webinar 🌟 🪧 Personal care and dementia – support for family carers 🗓 Monday 27 April 2026 ⏰ 2–3pm (UK time) 💷 Free to attend 👉 Register here: buff.ly/14mW2dx 💙 Support us: buff.ly/xKGZ6GE #dementia #personalcare

The third season of our #podcast, #MyLifeWithDementia', is out now! 🎉🎙️ We're so pleased that Ted Lasso's @KolaBokinni presented this season of our podcast - thank you so much for your support Kola. 💙 In 'My life with dementia', you'll hear first-hand #dementia stories from people living with the condition, alongside life-changing advice from our dementia specialist #AdmiralNurses. And Chloe and Amy's episode is out now! Subscribe to 'My life with dementia' on Spotify, Apple Podcasts, or wherever you get your podcasts here: podfollow.com/my-life-with-d…