PR-COIN

Parent lead Kerry Ferraro is sharing about the Patient Education Grant we received from @pfizer. Lots of materials being developed. Would providers use a video? #prcoinlearningsession

Dr. Ari Pollack from @seattlechildren is sharing about using pictures to graph and share patient stories to counter numeracy challenges. Patients have many ways of showing data through visual analogy #prcoinlearningsession

Julia Harris is sharing about the Measures Committee at the #prcoinlearningsession. Active data drives interventions. 21 measures are included in the registry.

We are excited to kick off our spring Learning Session with the State of the Network with @dr_esi! She shared updates like QI training and excitement over what we can achieve with data. There are over 7,000 active patients in the registry

The inaugural Nancy Griffin Award was presented to Angela Young at the Fall Learning Session. Nancy was a longtime QI specialist for PR-COIN at Cincinnati Children’s Hospital. Angela was nominated for her important contributions to patients and families. pr-coin.org/news/inaugural…

We are excited to announce that our #JuvenileArthritis Accommodations Toolkit and College & JIA Toolkit are now available in Spanish. ADAPTACIONES PARA LA ARTRITIS IDIOPATICA JUVENIL et UNIVERSIDAD & AIJ. Check them out and share! pr-coin.org/tools-resource…

A little #mondaymotivation. Our patients are our reason and they say it best. In Kyleigh's words: "The self-management assessment really helps me to stop and think and is training me to better communicate my needs to my physician" Read her story at: pr-coin.org/patient-family…

Thank you John Bostick, CEO of @HiveNetworksInc, for delivering a Keynote that inspires us to use the technology curve to grow and move faster. #PRCOINLearningSession

Thank you Laura Bouslaugh, a parent at @ChildrensMercy, for sharing your and Kasey's story and inspiring providers and parents #prcoinlearningsession

We are kicking off Day 2 of the #prcoinlearningsession with reports on the great work of our committees. Dr. Sandy Burnham of Outcomes, Dr. Sheetal Vora of Scientific Development and Outcomes, Dr. Tzielan Lee of the Informatics and Kerry Ferraro heading up Patient Engagement

Magen Philips shares some exciting new updates to the @HiveNetworksInc Phlox platform at the #prcoinlearningsession

Kristen Hayward of @seattlechildren shares updates on our @pfizer grant funded project to standardize and improve outcomes from telemedicine visits. #juvenilearthritis #prcoinlearningsession

David Hopper of the Improving Renal Outcomes Collaborative (IROC) Learning Network delivers the Keynote address at the #prcoinlearningsession. He shares their journey of becoming a nonprofit and the pathway to mastery of QI they have developed

Parent Heidi Barrett of @seattlechildren tells the story of how they became the "Remicade Family" with multiple diagnoses, and why we need PR-COIN #prcoinlearningsession

We are thrilled to kick off our Fall #prcoinlearninglession with @dr_esi giving the State of the Network. Check in and let us know you takeaways!

We are excited too! #prcoinlearningsession

We are excited about the Fall 2023 Hybrid #PRCOINLearningSession taking place next week in Seattle, WA, and on Webex! Attendees will hear Inspiring parent stories, learn about telemedicine optimization tools, and hear research project updates. pr-coin.org/news/fall-lear…

"How long does it take for the medicines to work?" "What vaccines shouldn’t my child receive?" You have many questions when your child is diagnosed with #juvenilearthritis. Our FAQ provides guidance on many of them. pr-coin.org/tools-resource…

School is starting and we have toolkits for college students, as well as a general accommodation guide. We've also just added a new FAQ to make it easier for families learning to manage JIA to get answers. It's all on our Tools & Resources page. pr-coin.org/tools-resource…

Congrats to all including PR-COIN members at @nationwidekids @HMHNewJersey and @wakeforestmed!