About IBD (Amber): Writer, Advocate, Podcast Host

🎙️If you've never listened and are wondering about #AboutIBDPodcast -- here's the trailer! In the #podcast biz we call this Episode 0. 😉 This trailer has been available on my podcast feed for several years, but I've only now made a video for it. Much more about my show and all episodes are also on my web site: aboutibd.com/podcast/ It was fun to put this together from a bunch of archive footage. It's like a tour of my hair color over the last 5 years. 💅🏻

When patients and HCPs work together, we can get 💩 done!

When our value is tied to our productivity, where does that leave people with #IBD? Yoga Therapist Bari Gratton drops truth bombs on Ep 201 of #AboutIBDPodcast. Let's break the cycle of tying our humanity to our productivity. ⏸️ 🎧 Ep 201: bit.ly/AIBD201 #IBD #Crohns

How often do you "push through" #IBD symptoms? Yoga Therapist Bari Gratton joins #AboutIBDPodcast to discuss: ✨The 5 Layers of Being ✨Why rest is a necessity ✨Finding community ✨Why our value is not in our productivity 🎧 Ep 201: bit.ly/AIBD201 #Crohns #IBD

@Youcantmakethi4 Yes! I’ve had bleeding after running a 5k and it’s a whole different experience when you have a jpouch. 😆 But long distance runners sometimes ignore the diarrhea and bleeding.

@aboutIBD That’s craziness…

This is so interesting but also scary. I talked with The IBD Athlete on #AboutIBDPodcast about how GI symptoms (like bleeding) are normalized in the elite athlete space. Her #Crohns was hiding because of that.

Enrollment is open for our next 4-week GI Skills Workshop! Thursdays @ 5:30pm starting 5/28. Join one of our expert clinicians to learn practical, evidence-based tools to help manage your GI symptoms & take a more active role in your gut health. Register : GIPsychology.com/groups

Very proud to announce #GoLive!! #PouchTrilogy is live & open for beta testing 🎉 + 🔬 iPouch.org — our #IPAA Consortium to 📚 Pouchology.org — AI interface to >10K pouch articles, evidence-based answers 🩺 Pouchy.org — same, patient-facing

This question comes up often in support groups.

Great slide!

@IBDinsights Please do! Part of being in the space is being aware of and learning about the emerging science and the clinical trials. But also in knowing which of these patients will be most interested in, because they may affect treatment decisions.

Good thinking, Amber!  As patients, we may need to take a leading role, in collaboration with clinicians, in organizing efforts that help bring the best out of congresses and turn them into patient-centered initiatives that directly reach the wider community and improve care. I’ve recently been connecting with cancer patient advocates, and it’s incredibly inspiring to see how something like this can be achieved (will share more about this in a separate post). I may follow up with you on some of my ideas 💜

With all the updates coming out of #DDW2026, it raises an important question: which research advancements will translate into real-world benefits for patients with #IBD?

I forget if I open this app during DDW, I'm going to get waylaid here for a while!

A lot of y’all have upgraded to rode wireless mics. They don’t need to be held near the mouth: clipping them on your collar works great! The wind screen shouldn’t be needed if you’re not outside. If you’re hearing plosives, that’s because it’s too close to the mouth. 💜

@srmbeauroy Thank you! This could do with a bit of formatting maybe. 😃 The part about no sedation I haven’t seen before! But it makes sense.

@aboutIBD I didn't obey the instruction to split the dose because it's unnecessary for me and I value sleep. The results are nevertheless excellent, according to my GI. If they weren't, of course, I'd sacrifice sleep.

As part of my volunteer work, I’m reviewing colonoscopy prep instructions. I’d love to compare to others. I’d be grateful if anyone would like to share the instructions they received before their prep or what their institution uses. I think it will help patients!

@bottomlineibd Thank you so much! I really like the overview at the top telling you that you need to be aware of making changes 5 days prior. I know someone who didn’t read the whole thing until only a few days before, so they hadn’t made those changes. 😬 All turned out well. In the end. 😃

@aboutIBD Last 2 pages

@DrSamirAShah1 For you? Absolutely! 😆

@aboutIBD Would you be willing to to review our groups instructions and provide feedback?

Rainbows in Gastro is excited to highlight🏳️‍🌈🏳️‍⚧️#LGBTQ+ related presentations at #DDW2026! 🌈Please support these 🔥presentations advancing #LGBTQ+ health in GI & hepatology 👏 #GITwitter #LiverTwitter @DDWMeeting @AASLDtweets @AmerGastroAssn @ASGEendoscopy

@srmbeauroy I don’t do split either. Ima sleep.