Phoenix Rising

😲 In case you missed it! 😲 #MEAwarenessHour 🇲🇽 In the first of a three-part series, people describe the challenges of living with #MEcfs or #fibromialgia in Mexico. 🧐We try to understand why the latest science is not informing proper medical treatment.phoenixrising.me/myalgic-enceph…

🫤 We all know the stigma of #MEcfs all too well. But it's not the only stigmatized neurological illness triggered by infection. 😯 Hear a story about a boy suffering from PANS (Pediatric Acute-onset Neurological Syndrome): #pans #pandas #panspandashour forums.phoenixrising.me/threads/a-boy-…

👩‍🔬 From the @CDCgov to @PlzSolveCFS to @BatemanHorne, @SuzanneDVernon has been trying to crack the case of #MEcfs for over 25 years. 🗣️ We spoke with her to learn more: phoenixrising.me/myalgic-enceph…

🎆Happy New Year (early) Lastly, Quote 3 from #MEcfs expert Dr. Komaroff: "Brain MRI has shown elevated levels of lactic acid consistent with oxidative stress... [Oxidative stress] may be a marker for […] inflammation in response to infection or injury."phoenixrising.me/myalgic-enceph…

🎆 Happy New Year (early) 🎆 We end this year with quotes from #MEcfs expert Dr. Komaroff: Quote 2 "If [neuroinflammation] were confirmed by multiple other investigators it would, for me, say there is a low-grade, chronic encephalitis in these patients." phoenixrising.me/myalgic-enceph…

🎆 Happy New Year (early) 🎆 We end this year with a few quotes from #MEcfs expert Dr. Komaroff: Quote 1 "I think most people in this field think that [...] the symptoms are caused primarily by brain abnormalities, that include [...] neuroinflammation..."phoenixrising.me/myalgic-enceph…

🤔 Confused about #autoimmunity in #MEcfs? You're not alone! 🗣️ We spoke with @C_Scheibenbogen to try to understand where the science currently stands... phoenixrising.me/myalgic-enceph…

Some scientific discoveries, unfortunately, are only possible by examining dead patients. There have been very few public autopsy reports on #MEcfs patients, but these few reports may reveal significant findings: forums.phoenixrising.me/threads/autops…

@OmCatz @MEsufferer @tagaktiv_ @BhupeshPrusty Link to full documentary here: #post-2326966" target="_blank" rel="nofollow noopener">forums.phoenixrising.me/threads/movies…

ME/CFS paper Alert: Our study on tissue specific, localized herpesvirus infection in ME/CFS is now accepted for publication. Many thanks to the reviewers and the funders. frontiersin.org/articles/10.33…

@tagaktiv_ @BhupeshPrusty Summary of the few autopsy results thus far collected: forums.phoenixrising.me/threads/autops…

@BhupeshPrusty Where might we be today with #MECFS research if we had looked at brain biopsies back in 1984?

Y aquí hay una excelente perspectiva desde el sur: twitter.com/ssaraviaandre/…

He pensado que podría interesarte esto☝️@GTorreAmione @AcpeCovid @CovidVictimas @longcovidlatam @COVIDPERSISTEN2 @LongCovidMexico @Pilar_RguezLedo

🇲🇽 En México, los pacientes con #COVIDpersistente están espantados por la nueva realidad a la que se enfrentan. 🤔 Hablamos con @CovidComunidad para saber más. phoenixrising.me/covid-persiste…

@longcovidchile @peru_covid @CovidPersist_UY @Covid19persist2 @covidpersisarg @covideuskal @covidpersistecl @AIREyVIDA2021 ¡Por seguro! 👍 twitter.com/ssaraviaandre/…

@aboutmecfs @peru_covid @CovidPersist_UY @Covid19persist2 @covidpersisarg @covideuskal @covidpersistecl @AIREyVIDA2021 @aboutmecfs una perspectiva desde el sur vendría bien 🙋🏻‍♂️ saludos!

🇲🇽 In Mexico, patients with #LongCOVID are shocked by the new reality they face. 🤔 We spoke with @CovidComunidad to learn more. phoenixrising.me/myalgic-enceph…

#MEAwarenessHour 🇲🇽 In the first of a three-part series, people describe the challenges of living with #MEcfs or #fibromialgia in Mexico. 🤔 The science is discussed, & we try to understand why the latest science is not informing proper medical treatment.phoenixrising.me/myalgic-enceph…

He pensado que podría interesarle esto☝️ @JudithTaffur @frida0705 @drjorgerachid @chile_amigos @FibroEnAccion @FibromialgiaPu1 @AsofibRegion4 @KarimBianchi @chronic_rainbow @VidFibromialgia @alexandrarevolu

🇲🇽 En la segunda de una serie de tres partes, se describen los retos de buscar derechos fundamentales para los pacientes con enfermedades neuroinmunes en México. 🤔En concreto, analizamos el profundo reto que supone ser paciente y defensor al mismo tiempo.phoenixrising.me/mexico-defenso…

🇲🇽 In the last of a three-part series, people with neuroimmune diseases in Mexico speak up about the wide-ranging consequences of the disease on their life. 🤔 Common themes include exercise, gender bias, and domestic abuse. phoenixrising.me/myalgic-enceph…