PNOC DMG-ACT

The more that we talk about it the more common it becomes to those that aren’t directly affected

It was an honor to present to families about our #DIPG/#DMG #CART cell lab and clinical work at the @PNOC_kids @act_dmg Symposium. The central focus was work by Carl, Javad, and Sabine to push the DMG-ACT trial forward and advance combinatorial treatment options for our patients.

Announcing a GAME CHANGER Grant led by SUJATHA VENKATARAMAN University of Colorado “Targeting DIPG using novel CAR-T cell therapy” chadtough.org/research/grant… #UniversityofColorado #DIPGResearch #GameChanger #DefeatDIPG #ChadToughDefeatDIPG

Come meet some of the @chadtough @DefeatDIPG team at our table at @CureFestUSA! We can’t wait to talk with you. TOGETHER, we will #DefeatDIPG! #curefest #toughertogether #DIPG

Loved hearing Dr. Javad Nazarian speaking from the stage on Freedom Plaza for @CureFestUSA — grateful for his efforts on so many #DIPG/#DMG initiatives! @DefeatDIPG

5 yr old Hudson lost his life to DIPG last December. Science couldn’t save him then, but his parents, like the rest of our Family Partners, continue to fight for the kids who will face this disease in the future. #ChadToughDefeatDIPG #DefeatDIPG #ChildhoodCancerAwarenessMonth

We are excited to announce the commencement of enrolment on one of the DMG-ACT clinical trials PNOC023: the ONC206 phase 1 study. A true testament of DMG-ACT global working group. More to follow.

@carsonleslie3 @JaceWard3 We are so incredibly sorry. Jace will be missed. Our search to find a cure will continue in his honor

Just before midnight last night, the world lost a #childhoodcancer hero—a courageous young man in every sense of the word. @JaceWard3, you will be missed.

Our hearts are with the Carr family 🧡 detroitnews.com/story/sports/c…

Particularly devastating for younger children with brain tumours

Fly high sweet girl. Thank you for changing my life for the better. I will never forget the love you taught me. Happy birthday my love. I will love you forever.

#memorymonday @nbcsvu @therealmariskahargitay was at a #Knicks game and G said “Ant I wanna hang out with her” I’m like I duno about that and she said “you’re @AnthonyMSG you can make it happen” TY @mrjimboslice @warrenleight 4 making it happen. I’ll never forget it. 🙏🏼❤️😢

Mark my words the world of DIPG gained a boost today. About 15 of THE best research-clinicians, parent advocates, data architects had a visionary call (on Saturday). No one works harder than DIPG greats to end this horror. Retweet if you’re ready to EndDipg! #DIPGWontwait

It was a pleasure to be a part of that meeting. Looking forward to the amazing work that will come to fruition

DMG-ACT is excited to be the recipient of the Swiss National Science Foundation funds. This is one of the largest (over $3Million) European funding in support of DIPG/DMG research. med.uio.no/ncmm/english/n…

Congrats

If there were a stronger word than urgent, it should be applied to finding a cure for Kids #DIPG Brain Cancer. We have 190 cosponsors for H. Res. 114. We need 28 more for a floor vote. Please cosponsor & help kids facing a death sentence. bit.ly/114c-c @RepTomGraves

@adamcresnick @NCIDirector @theNCI @CBTNetwork Congratulations to the amazing work from an incredible team

@NCIDirector @theNCI @CBTNetwork Undoubtedly, this will be one of the first of many partnerships between #CBTN -- CBTN.org (formerly #CBTTC) -- and #cptac. An amazing team, with amazing leadership #NCI leading a vision prioritizing clinical translation through empowered collaboration.

@theNCI's #CPTAC collaborated w/ @CBTNetwork for the first large-scale, multi-center #proteogenomics study on pediatric brain tumors, revealing new insights across 7 distinct tumor types. #ChildhoodCancer #Data4ChildhoodCancer #BrainCancer #Glioblastoma cell.com/cell/fulltext/…

dipgcenter.ch We are pleased to launch our Zurich website for DIPG/DMG Center Zurich