Affinityhub.uk

Hello 👋 - a bit about me and what I do at affinityhub.uk which signposts to emotional support for #parentcarers Jo #specialneedsparents #parentcarerwellbeing #bookstagram

Parent carers and Professionals who support parent carers - to receive info on research, services and news to do with parent carer wellbeing please sign up to the Affinityhub quarterly newsletters here: stats.sender.net/forms/b2krRJ/v… #parentcarerwellbeing  Affinityhub.uk

Sept 2025 🔥 Understanding Parent Blame by Dr Ana Aiello & Prof Luke Clements. Revealing how parents are wrongly blamed by the systems meant to help them. 👀 waterstones.com/book/understan… #ParentBlame #SocialJustice #DisabilityRights #Safeguarding #Inclusion #Neurodiversity

Delighted to present today at the EACD/IAACD on Co-production in research with family carers of people with a learning disability. More info: warwick.ac.uk/fac/soc/cidd/r… @EACD2025 #coproduction #parentcarers #familycarers #accessibleresearch #livedexperience

Professionals with an interest in the psychological wellbeing of parents of disabled children - sign up to info & research quarterly newsletter here: dashboard.mailerlite.com/forms/534658/9… #parentcarers and #specialneedsparents can sign up too #parentcarerwellbeing  Affinityhub.uk

My book Day by Day: Emotional Wellbeing in Parents of Disabled Children is available here:  amzn.to/3k1NReK #CarersWeek #carersweek2025

Almost a third of families (31%) spend more than 10 hours per week on essential administrative tasks to ensure that their disabled child gets the support they need.   Failed and Forgotten report Disabled Children’s Partnership #carers #carersweek #carersweek2025 #unpaidcarers

My book Day by Day: Emotional Wellbeing in Parents of Disabled Children is available here:  amzn.to/3k1NReK

Carers week 2025 focuses on equality for carers highlighting the significant inequalities they face putting them at greater risk of poor mental and physical health, social isolation, financial hardship and poverty. #carers #carersweek #carersweek2025 #unpaidcarers #parentcarers

Do you care for a friend or family member? Are you interested in getting involved in research that could improve health and social care? In today's #TuesdayTips, learn more about why carers’ voices should be heard, and how you could shape research: learningforinvolvement.org.uk/content/resour…

The special needs trap: @johnharris1969 in @NewStatesman on his family's SEND struggles, w/ high praise for SNJ's "battle-hardened SEND veterans" "Don’t take away children’s rights, because if you do, you will have a hell of a fight on your hands.” newstatesman.com/politics/educa…

NEW POST: The seven golden rules of co-production for researchers with guidance for working with family carers- a parent and researcher @Griffinpsych write about their experiences- and the 7 rules work for all kinds of co-production specialneedsjungle.com/co-production-…

Are you a father of a child with a learning disability? This study is looking to include parents in their family carer steering group. Details below 👇

Are you a family carer of a child with a learning disability aged 14-17 years? We need your help for a research project looking at annual health checks! More details below 👇 #familycarer #learningdisability

We’ve set out 5 Strategic Commitments for improving public partnerships, but today we’re going to take a closer look at one of these – embedding research inclusion. A thread 🧵 (1/6)

Professionals with an interest in the psychological wellbeing of parents of disabled children - sign up to info & research quarterly newsletter here: dashboard.mailerlite.com/forms/534658/9… #parentcarers and #specialneedsparents can sign up too #parentcarerwellbeing  Affinityhub.uk

If you care for someone with a learning disability, you could save lives by knowing the signs of constipation and what to do. Here is an easy read leaflet for more information - england.nhs.uk/wp-content/upl…

How do we define the impact of public involvement in research? How can we monitor it, evaluate it and learn from it? Take a look at our new topic page on Learning for Involvement to learn more: learningforinvolvement.org.uk/topic/evaluati…

🔎 Take a look at this infographic by NIHR @ARC_EM which illustrates some key #CoProduction activities that contribute to the long-term sustainability of health and social care innovations 👇 arc-em.nihr.ac.uk/arc-store-reso… #PPIE