A Life with Eczema

536 posts

A Life with Eczema

A Life with Eczema

@alifewitheczema

Living life with eczema. I’m not a medical professional so any treatments mentioned are ones I’ve used myself. Retweets are not endorsements.

Scotland Katılım Nisan 2015
100 Takip Edilen667 Takipçiler
A Life with Eczema
A Life with Eczema@alifewitheczema·
As someone who has suffered with skin conditions all my life, I know how hurtful bullying can be. Hopefully Skye has a brilliant career with Kilmarnock and proves all these absolute idiots how good a player she is
Grassroots@Teamgrassroots_

Please send your love and support to 16 year old Skye Stout from Scotland, and don't let the ignorant bullies win. Yesterday, the official page of the Scottish club Kilmarnock women's team announced that the club had signed a contract with 16-year-old midfielder Skye Stout. A grassroots player signing her first pro contract, should have been a moment to cherish for her, however Skye was forced to endure ridicule from ignorant and disrespectful fans who began to humiliate her over her facial acne. Things escalated to the point where the club decided to delete all posts mentioning Skye Stout in an effort to stop the bullying from haters.

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A Life with Eczema
A Life with Eczema@alifewitheczema·
Having had #eczema since birth I can quite confidently say it would have helped me to have someone to talk to. For many years I had real issues with self confidence and being self conscious about my skin. Speak to people about how you feel.
National Eczema@nationaleczema

In this edition of Ask the Ecz-perts, we discuss what parents should consider when trying to decide if their child with #eczema might benefit from seeing a #MentalHealth professional. ⁠ ⁠ Read the full article: nationaleczema.org/blog/kids-ment… #GetEczemaWise #unhideECZEMA

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A Life with Eczema
A Life with Eczema@alifewitheczema·
Amongst these top tips, I’m allergic to both fish and avocado which both actually make my #eczema flare. The problem with eczema is what works for one person doesn’t work for another and there are no real miracle cures
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A Life with Eczema
A Life with Eczema@alifewitheczema·
One of the worst parts of having #eczema is the stress cycle. Get told that stress can make eczema worse, have a flare for any one of a million reasons, get stressed about the flare, extra stress makes the flare even worse. Just awesome 👍
National Eczema Society@eczemasociety

The mental impact of living with eczema can be enormous. This #NationalEczemaWeek, we've created conversational resources to help you discuss the mental impact of eczema. 📲 Please share with your communities, and together, let's start the conversation. bit.ly/3MWEJFb

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A Life with Eczema
A Life with Eczema@alifewitheczema·
@MARKHERENOW Hi Mark, yes still on 3 weeks and doing ok. Got a bit more itchy towards the end of the 3 week period when i initially started but that’s largely passed now. If you’re 7 months in i’m guessing it’s working well for you 👍
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Mark (EV fan)
Mark (EV fan)@MARKHERENOW·
@alifewitheczema Hi 👋 are you still doing every 3 weeks for the Dupixent? I’m 7 months in with every 2 weeks.
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nameyouradd
nameyouradd@savesins·
@alifewitheczema Thank you for the response and good wishes. Have you done it for 3 years constantly?
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A Life with Eczema
A Life with Eczema@alifewitheczema·
Just back from seeing my dermatologist. I have had a lot of success injecting dupixent/dupilumab ever fortnight so she now wants me to try reducing it to every 3 weeks. Hoping my #eczema doesn’t suddenly flare over the next week!
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A Life with Eczema
A Life with Eczema@alifewitheczema·
@savesins There is nothing to be afraid of. I have been on it for 3 years and it has been great for me. Hopefully it works well for you. The worst bit is getting the injection and/or doing it yourself but you soon het over that. Good luck!
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nameyouradd
nameyouradd@savesins·
@alifewitheczema Hi! I am about the start dupixent for my severe eczema. I am a bit afraid. When did you start first?
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A Life with Eczema
A Life with Eczema@alifewitheczema·
Lawn cut, commence allergies, commence itchiness #eczema p.s yes i didn’t do the edges. But i did have an ice cream
A Life with Eczema tweet media
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A Life with Eczema
A Life with Eczema@alifewitheczema·
@james80_ My understanding is she’s keen to test whether a reduction reduces any of the side effects I experience like pinkness of the face. As i’ve been very stable on it for a few years now she feels it’s worth testing the water. I’ll return to fortnightly if there are issues
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A Life with Eczema
A Life with Eczema@alifewitheczema·
Super helpful for #eczema sufferers. One things that massively frustrates me is when any patient comes out a dermatology appointment, or any medical appointment for that matter, not understanding what’s been discussed due to jargon. This just shouldn’t happen!!
National Eczema@nationaleczema

How's your eczema vocabulary?⁠ 🗣️ 🗣️ 🗣️ 🗣️ 🗣️ ⁠ Let us know what #eczema words you think should be defined next, then learn more about these 5 terms: nationaleczema.org/blog/five-term… #GetEczemaWise #unhideECZEMA #atopicdermatitis #pruritis #Excoriation #flexural #fissure

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A Life with Eczema
A Life with Eczema@alifewitheczema·
@james80_ Great to hear. I’m fortunate that I’ve been given the choice by my dermatology nurses as well. 50:50 also good on a cold day as it gives an extra layer of cosiness 😂
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Sam
Sam@james80_·
@alifewitheczema In my practice I advocate what ever you tolerate and use appropriately however if you are having a flare or particularly dry and itchy you will need a good greasy ointment, cream and gel for maintenance and lotion if you really are intolerant of the preparation
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A Life with Eczema
A Life with Eczema@alifewitheczema·
Applying my usual coating of 50:50 moisturiser this morning and it got me wondering what your preferred #eczema moisturiser is? I prefer the slimy ones to the creamy ones but my clothes have a different opinion!
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Keşfet

@MARKHERENOW @savesins @Ailsa_Reid1 @ActionEczema @alisha_bhanot @ISFcharity @itch_n_bitch @ItsMeAnitaB