Alpha-1 Belgium

Hallo, ik ben Frank en ik kom uit België. Ik heb AATD: alfa-1-antitrypsinedeficiëntie. #RareDiseaseDay #Alpha1Europe #AATD

Hello, I’m Frank, from Belgium and I live with AATD: Alpha-1 Antitrypsin Deficiency. #RareDiseaseDay #Alpha1Europe #AATD

Bonjour, je suis Frank. J'habite en Belgique et je vis avec DAAT : déficit en alpha-1 antitrypsine. #RareDiseaseDay #Alpha1Europe #AATD

✨Meet Fernanda, President of Alpha-1 Europe and living with AATD. 💜As Rare Disease Day approaches, she calls for visibility, early diagnosis and equitable care across Europe. #RareDiseaseDay2026 #Alpha1Europe #PatientVoices

🌍🦓 #RareDiseaseDay2026 (28 Feb) is a call to action. Over 300M people living with Alpha-1 Antitrypsin Deficiency and other rare and/or undiagnosed diseases need equitable healthcare — tailored solutions, not one-size-fits-all approaches. 💜 Early diagnosis, access to care and treatment must be a reality for all. #Alpha1 #AATD #MoreThanYouCanImagine #EquityForRare #Alpha1Europe #StrongerTogether

As we close International Plasma Awareness Week (IPAW), the Alpha-1 community wants to share a heartfelt thank you to all plasma donors.​ ​ 💛 Your generosity makes life-saving treatments possible for more than 300,000 people across Europe living with rare and chronic conditions.​ ​ At the same time, we join the wider European community in calling on national authorities and stakeholders to ensure a more sustainable and diversified plasma supply within the SoHo framework — to minimize the risk of shortages, protect thousands of lives, and secure the long-term availability of plasma-derived medicines for patients in Europe.​ ​ Let’s make sure access to plasma is secure, fair, and sustainable.​ ​ #IPAW2025 #PlasmaSavesLives #PlasmaPowersPossibility #AATD #Alpha1 #RareDiseases

What is the SoHO Regulation — and why does it matter?​ ​ The SoHO Regulation is the EU’s new legal framework for substances of human origin, designed to strengthen the safety, quality, and accessibility of blood, plasma, and other donations used in healthcare.​ ​ ✅ It gives the member states flexibility to design plasma collection models that fit their healthcare systems.​ ✅ It acknowledges that compensation is compatible with voluntary, unpaid donation.​ ✅ It ensures the health and safety of donors remain a top priority.​ ​ 💡 This new framework is an important step toward increasing plasma collection in Europe, reducing dependency on imports, and securing treatments for patients who rely on plasma-derived medicines.​ ​ #SoHO #PlasmaSavesLives #EuropeNeedsPlasma #RareDiseases #Alpha1 #AATD #Thankyoudonors

🌍 Europe needs more plasma #IPAW2025​ ​ Every day, 300,000 European patients rely on plasma-derived medicines to treat rare, chronic, or life-threatening conditions. For many, these therapies are their only chance to survive.

🩸Europe is facing a plasma shortage.​ ​ Europe is the second largest user of plasma worldwide, after North America, which consumes nearly half of the global supply. Demand keeps rising every year due to increased access to treatment, expanded diagnoses, and more patients being identified. #IPAW2025 #PlasmaSavesLives #PlasmaPowersPossibility #Alpha1 #RareDiseases

💉 International Plasma Awareness Week (IPAW, October 6–10) highlights how plasma donations save lives every day.​ ​ For people living with AATD, plasma donations aren’t a choice — they’re a lifeline.​ Each patient needs around 900 donations every year to receive their treatment.

🌍 300,000 Europeans rely on plasma-derived medicines to treat rare or life-threatening diseases — but Europe can’t meet its own needs. 💛 Plasma is precious. Let’s build stronger donation efforts & infrastructure to save lives. 💉#IPAW2025 #EuropeNeedsPlasma #PDMPs #Alpha1Europe #AATD #PlasmaPowersPossibility

International Plasma Awareness Week (October 6–10) is here!​ 🩸 Did you know that plasma makes up more than half of what flows in our veins? #IPAW2025

Did you know plasma makes up over half of what flows in our veins? 💛 It’s 92% water — yet packed with vital proteins that: ✔ Regulate blood pressure ✔ Help clotting & fight infections ✔ Carry nutrients & electrolytes Donated plasma saves lives through plasma-derived medicines (PDMs) — the only treatment for some rare conditions like Alpha-1 Antitrypsin Deficiency (AATD). 💛 Plasma is precious — and depends on the generosity of donors. Let’s celebrate and thank them this #IPAW2025! #PlasmaPowersPossibility #AATD #Alpha1 #ThankYou #PlasmaDonors

🧬 Nearly 80K Europeans live with the severe ZZ genotype, and over 615K carry the SZ type — both linked to lung disease risk. 📍Most common in Spain, UK, France, Denmark and Baltics. ❗️Alpha-1 is often underdiagnosed.#Alpha1 #AATD

🇧🇪 Meet @alpha1bel ! A dedicated patient-led org working to improve care, access, and support for people with Alpha-1 in #Belgium Officially recognized by lung & liver specialists, they’re a strong voice for Alphas across the country. 💛🫁 ✨Thank you for being part of the Alliance! 🔗alpha1plus.be #Alpha1Belgium #Alpha1Europe #AATD

Could AATD trace back to our 𝑽𝒊𝒌𝒊𝒏𝒈 𝒓𝒐𝒐𝒕𝒔? 🛡️ In AATD, abnormal proteins can damage the liver — even in infants. ⚠️Early signs may include: jaundice, poor growth, swelling, diarrhoea. Timely detection of hepatic diseases is essential and possible with a simple blood test. #TheVikingLegacy #UnitedForAlpha1 #AATD #LiverHealth #Alpha1Europe

Das Wikinger-Oberhaupt teilt ein uraltes Erbe – ein Zeichen in unseren Genen, das Teil unserer Geschichte ist. Es ist wichtig, dies so schnell wie möglich zu erkennen. Entdecken Sie mehr: alpha1awarenessday.org/?lang=be_de #TheVikingLegacy #UnitedForAlpha1

Le chef Viking nous a réunis pour partager un héritage ancien, inscrit dans les gènes de certains d'entre nous - une marque essentielle à reconnaître tôt. Pour en savoir plus : alpha1awarenessday.org/?lang=be_fr  #TheVikingLegacy #UnitedForAlpha1

De Vikingleider wil ons iets belangrijks vertellen dat ons verbindt met hun eeuwenoude geschiedenis.

 Sommigen van ons dragen dit teken in hun genen en het is cruciaal om het zo snel mogelijk te herkennen.

 shorturl.at/IKqYQ  

#TheVikingLegacy #UnitedForAlpha1