Angela McBride - Alpha-1 Foundation

Base editing in vivo is here! so exciting! Beam Therapeutics Announces Update on BEAM-302 for alpha-1 antitrypsin deficiency .alpha1.org/beam-therapeut…

Take a deeper look at liver care and transplant options at the NY/NJ A1F Education Day on April 11th. Dr. Hawksworth will present "Liver Transplant Surgery," helping the Alpha-1 community better understand what to expect and how to navigate this important aspect of care. Attend in person or virtually by registering here: alpha1.org/event/2026-ny-…

Excellent Science, hopefully the way of the future (maybe as bridge to Liver Transplant)

From research to advocacy, the Alpha-1 Global Meeting in Argentina showcased the power of global collaboration in improving outcomes for people living with Alpha-1. Read more here: alpha1.org/alpha-1-global…

Wishing our Alpha-1 community a happy and healthy New Year! Thank you for your continued support as we move forward together with hope, progress, and purpose. ✨

A new year means new opportunities. See what the A1F staff is most looking forward to in 2026! alpha1.org/video-library/…

What’s new in Alpha-1 research? Find out in Charleston, SC, on December 6th during the A1F Education Day with Dr. Strange as he presents the latest advancements in Alpha-1 research and care. Register today: alpha1.org/event/2025-cha…

The Alphas of the Ozarks Support Group in Branson, MO, recently gathered to share experiences, build community, and learn together. Support groups like this are at the heart of the Alpha-1 Foundation’s mission, offering connection, education, and encouragement to those affected by Alpha-1. Looking to connect with others in your area? Find an A1F Support Group near you: alpha1.org/find-a-support…

Highlighting this important work done by the National center for immunization and respiratory diseases at the CDC; for children born 1994–2023 routine childhood vaccinations would save $540 billion direct costs & $2.7 trillion in societal costs cdc.gov/mmwr/volumes/7…

An amazing clinical triumph for regenerative medicine! A great example of how federal funding results in patient cures. Let’s keep these stories going, America! “World's First Patient Treated with Personalized CRISPR Therapy” #helpisontheway! pennmedicine.org/news/news-rele…

🎉 Pulmonologist Darrell Kotton is BU’s Innovator of the Year: bu.edu/articles/2025/…

To our Alpha-1 Research Registry and Clinical Trial volunteers, your involvement drives critical breakthroughs and brings hope to the Alpha-1 community. We’re so thankful for your contributions toward a future with better outcomes. #ThankYouVolunteers

Happy to share our patient-oriented quarterly MGH transplant webinar. We cover a lot of topics, including measles, organ allocation, and many audience questions. youtu.be/oHfXYFDXk40

Alpha-1 doesn’t just affect the lungs, it can impact the liver, too. On #WorldLiverDay, we’re shining a light on Alpha-1 liver disease and the importance of early diagnosis and support. To learn more about Alpha-1 and the liver, visit: alpha1.org/liver-disease/ #Alpha1Awareness

What a fantastic Mass Thoracic Society meeting this year. Thank you to MTS President Dr. Finn Hawkins @BUPulmonary for leading an outstanding day of lung 🫁 clinical and research presentations!

New article published : Vaccination strategies for solid organ transplant candidates and recipients: insights and recommendations #abstract" target="_blank" rel="nofollow noopener">tandfonline.com/doi/full/10.10… #vaccines #organtransplant @KottonNelson

Day 1 of the A1F 7th Global Research Conference and 10th Patient Congress is in full swing in Lisbon, Portugal! Experts, researchers, and the Alpha-1 community have come together to exchange insights, drive research forward, and empower those affected by Alpha-1. 🧬🔬

Mark your calendar for the 2025 A1F National Conference, where the Alpha-1 community gathers to advance awareness, education, and support! This year’s event features expert-led sessions, opportunities to connect with fellow Alphas, and the latest Alpha-1 research and care updates. Whether you're newly diagnosed or have been part of the community for years, there’s something for everyone. Register today: alpha1.org/national-confe…

Vote for @CReM_Boston's own Valerie Gouon-Evans, in #STATMadness! Her work using iPSCs to regenerate liver in vivo, earned her a spot in the sweet 16. Let's get her to the Elite 8: statnews.com/feature/stat-m…

Glad to see that the FDA (with input from the CDC and DOD) made recommendations for Influenza Vaccine for next season fda.gov/vaccines-blood…