Andrew Proctor retweetledi
Getting into the festive spirit but wanting to avoid the itch?🎄
Read our tips to help you enjoy wearing a Christmas jumper without the flare-ups 👇
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Andrew Proctor
333 posts
Andrew Proctor
@andy1online
Chief Executive of National Eczema Society. Passionate about supporting and championing the needs of everyone living with eczema. Views here my own.
London, England Katılım Mart 2009
169 Takip Edilen271 Takipçiler
Andrew Proctor retweetledi
Good luck to Team NES and everyone else taking on the Great South Run today!
All your hard work has led to this moment. We'll be cheering for you every step of the way, so soak in the incredible atmosphere and enjoy the run. You've got this!
Do you know someone who's running? Let us know, below 👇 🏃 💙
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Andrew Proctor retweetledi
📢 Our latest webinar, Expecting with Eczema, is now available to watch on YouTube.
Hosted by National Eczema Society in partnership with St John's DermAcademy, the session explores how pregnancy can affect eczema — from changes in skin and symptoms to safe treatment options and emotional wellbeing.
Whether you’re pregnant, planning a family, or supporting someone who is, this discussion offers clear, expert-led advice and practical reassurance.
Watch the full recording here: bit.ly/477eF46
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@eczemasociety Finding effective eczema treatments can be such a long, painful and demoralising journey for many in our community. Thank you Jenny for sharing your eczema story and inspiring to hear you are at a better place with your skin now. It’s wonderful we now have new medicines!
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Eczema has always been part of Jenny’s life, but in 2021, it flared in ways she never expected. What started as small patches became a cycle of infection, antibiotics, and exhaustion, leaving her barely able to leave the house.
Through persistence, support from her healthcare team, and finding ways to manage her eczema, Jenny gradually regained control over her skin. As she says: “Learning to speak up about my eczema and advocate for the right treatment has made all the difference.”
Her journey is a powerful reminder of why this year’s National Eczema Week theme is 'Be Prepared, Be Heard', showing that having your voice heard can change the experience of living with eczema.
Read Jenny's story, here 👉 bit.ly/4n8P15F
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Andrew Proctor retweetledi
Andrew Proctor retweetledi
Eczema is one of the most common inflammatory skin conditions worldwide. It affects around 20% of children and 10% of adults.
Professor Carsten Flohr is a dermatology researcher at @KingsCollegeLon and an expert in children's eczema.
Read a Q&A with him about why the condition can be such a challenge and how research is finding new treatments: bepartofresearch.nihr.ac.uk/news-and-featu…
#NationalEczemaWeek
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@eczemasociety Thank you Luke for sharing your inspiring story for National Eczema Week! Many people find their eczema flares during major life events like going to university, moving house or starting a new job. It’s important to reach out to your GP when you’re struggling and need extra help.
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“The main lesson I learned was to be prepared and speak up about my condition, not to be passive, especially about how severely it affected me.” – Luke.
Luke has lived with eczema since childhood, but when he went to university his skin flared severely, leaving him exhausted and struggling to cope. It wasn’t until he reached out to his GP and dermatology team that he began to get the support he needed.
Today, Luke is managing his eczema, enjoying life again, and even running to raise awareness and support others living with the condition.
Read Luke’s full story, here 👉 bit.ly/4pqACDt
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Thank you Luke for sharing your inspiring story for National Eczema Week! Many people find their eczema flares during major life events like going to university, moving house or starting a new job. It’s important to reach out to your GP when you’re struggling and need extra help.
National Eczema Society@eczemasociety
“The main lesson I learned was to be prepared and speak up about my condition, not to be passive, especially about how severely it affected me.” – Luke. Luke has lived with eczema since childhood, but when he went to university his skin flared severely, leaving him exhausted and struggling to cope. It wasn’t until he reached out to his GP and dermatology team that he began to get the support he needed. Today, Luke is managing his eczema, enjoying life again, and even running to raise awareness and support others living with the condition. Read Luke’s full story, here 👉 bit.ly/4pqACDt
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Andrew Proctor retweetledi
It’s here! To mark National Eczema Week, we’ve launched 'Be Prepared, Be Heard' — a brand new resource to help you make the most of your GP appointments.
With space to track your symptoms, write down your questions, and share the impact eczema has on your daily life, this guide helps you feel more confident and ensures your concerns are recognised.
Download it, fill it in, and take it with you to your next appointment. Be prepared and be heard during your next eczema appointment.
Download your copy, here 👉 bit.ly/4gv9QpG
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Thank you Chloe for sharing your powerful and inspirational experiences of living with eczema - achieving so much despite the many challenges you’ve faced. Wonderful way to kick off National Eczema Week!
National Eczema Society@eczemasociety
To launch National Eczema Week, we’re sharing Chloe’s story – her experiences highlight the importance of feeling heard in healthcare, which is at the heart of this year's theme. Chloe has lived with eczema since birth. At times, it’s been so severe she’s needed hospital treatment. Alongside the physical challenges, she has faced exhaustion, pain, and the emotional toll of managing a long-term condition. But one thing that has made a huge difference is the support she’s received from her GP. Chloe says: “I feel truly listened to and understood in our appointments, which has been a lifeline through the hardest times with my eczema.” Despite the daily struggles, Chloe refuses to let eczema hold her back. She’s completed two degrees, built a career as a social worker, and is currently in training to run a marathon! Her story shows what’s possible when people with eczema are heard and supported. 👉 Read Chloe’s full story: bit.ly/4gmci1l
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Andrew Proctor retweetledi
📣 National Eczema Week is coming!
From 13–19 September, we’ll be shining a spotlight on the importance of being prepared for GP appointments and making sure your voice is heard.
Too often, people with eczema feel dismissed, rushed or left without answers when speaking to their doctor. This year’s theme, “Be Prepared, Be Heard,” is all about empowering our community with the tools and confidence to get the most out of their appointments.
Stay tuned throughout the week as we share resources, personal stories, and practical advice. Together, we can make every eczema appointment count.
Will you join us in supporting National Eczema Week?
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Andrew Proctor retweetledi
Good luck to Team NES and everyone else taking on the Great North Run today!
All your hard work has led to this moment. We'll be cheering for you every step of the way, so soak in the incredible atmosphere and enjoy the run. You've got this!
Do you know someone who's running? Let us know, below 👇 🏃 💙
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Huge thanks Amy and to all our @eczemasociety runners in the Great North Run on Sunday. It’s so much tougher taking on running challenges like this when you have flaring eczema and TSW. So inspirational!
National Eczema Society@eczemasociety
This Sunday, our incredible supporter Amy is taking on the Great North Run – and we couldn’t be more inspired by her determination! 🌟 Hi, I’m Amy, and I’m living proof of how tough and isolating eczema can be. I’ve battled severe eczema for most of my life, and for years, I was prescribed topical steroids without fully understanding the long-term effects. Eventually, my body couldn’t take it anymore, and I developed Topical Steroid Withdrawal (TSW) – a brutal, often misunderstood reaction to stopping steroid creams after prolonged use. It turned my world upside down. During TSW, Amy’s skin became unbearably painful, red, itchy, and raw. She struggled to sleep, go to work, and even leave the house. There’s no approved treatment for TSW, and recovery is slow and uncertain. Yet even while training for the Great North Run, she has faced challenging skin flares – and she hasn’t let them stop her. Her determination to keep going is a powerful reminder of the resilience required to live with eczema and TSW. Amy is running to support research aimed at developing new treatment options – including non-steroidal alternatives – and to help people living with eczema and related conditions like TSW. She has already surpassed her fundraising target, but she’s continuing to push forward to raise as much awareness as possible about what she’s doing and why it matters 💙 Amy says, “Your support could help fund the future of eczema care – one that offers hope, healing, and options beyond steroids.” If you’re inspired by Amy’s journey and want to support her challenge, you can find the link to her donation page in our bio 🙏 Good luck, Amy – thank you for running for all of us! 👏
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Andrew Proctor retweetledi
It’s September, which means #NationalEczemaWeek is just around the corner!
From 13–19 September, we’ll be shining a spotlight on your experiences at GP appointments with our theme: “Be Prepared, Be Heard.”
We know that speaking up about eczema can sometimes feel difficult—but preparation can make all the difference. This year, we’ll be sharing resources, stories, and practical tools to help you feel confident and ensure your voice is heard when seeking care.
Join us as we support the eczema community in being prepared and feeling heard at their next eczema GP appointment 💙
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This is a brilliant opportunity to make a difference for our wonderful eczema community. Please do take a look and apply if you’re excited about helping shape the future of @eczemasociety!
National Eczema Society@eczemasociety
We’re looking for new Trustees to join our Board! This is a fantastic opportunity to use your skills and experience to make a real difference for the millions of people in the UK living with eczema. As a Trustee, you’ll play a vital role in shaping our strategy, strengthening our voice, and helping us improve the lives of everyone affected by eczema. We’re particularly keen to hear from people with professional expertise in: • Income generation • Health policy • Legal/HR If you’re passionate about using your expertise to shape a better future for people with eczema, we’d love to hear from you. Apply by 30 September ⬇️ bit.ly/3JqvU8d
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Andrew Proctor retweetledi
We’re looking for new Trustees to join our Board!
This is a fantastic opportunity to use your skills and experience to make a real difference for the millions of people in the UK living with eczema.
As a Trustee, you’ll play a vital role in shaping our strategy, strengthening our voice, and helping us improve the lives of everyone affected by eczema.
We’re particularly keen to hear from people with professional expertise in:
• Income generation
• Health policy
• Legal/HR
If you’re passionate about using your expertise to shape a better future for people with eczema, we’d love to hear from you.
Apply by 30 September ⬇️ bit.ly/3JqvU8d
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Andrew Proctor retweetledi
New Webinar Alert!🤰
Join us & St Johns DermAcademy for "Expecting with Eczema: Understanding your journey with eczema during pregnancy."
Hear from experts Prof Jemma Mellerio, Dr Ruchika Kumari, Dr Richard Woolf & Dr Perdy Kamali (Q&A).
🗓️ 16 Sept | ⏰ 17:30-18:30 BST
Register your free place here: bit.ly/3UHDm12
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Andrew Proctor retweetledi
We did it.
Thanks to your support, clearer strength labelling for topical steroids is now being rolled out across the UK!
No more guessing – packaging will now say mild, moderate, strong or very strong steroid. A big win for safe, confident eczema care.
Learn more about our journey to change 👇
bit.ly/4o0pbBY
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Andrew Proctor retweetledi
We recently held our annual Medical Advisory Board meeting, a vital moment to shape our research, campaigning and health info with expert insight.
Huge thanks to Prof. Celia Moss as she steps down as Chair, and to Prof. Carsten Flohr for taking on the role.
Read more 📰 bit.ly/450q1XD
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Andrew Proctor retweetledi
We’re attending #BAD2025 in Glasgow this week, representing the eczema community in a space where key conversations about dermatology care happen.
As the leading UK charity for eczema, we’re here to make sure the lived experiences of patients shape how the condition is researched, treated, and understood.
Our team, CE Andrew Proctor, Trustee Prof. Celia Moss, and Research Engagement Lead Charlene Murphy, are sharing our new research activity, steroid safety campaign, and trusted resources with colleagues across dermatology.
People with eczema deserve to be heard, and that’s why we’re here.
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