Princess, The Tower

“Pain is soul destroying. No patient should have to endure intense pain unnecessarily." #chronicpain #spoonie

“Pacing means listening to your body…so I force myself to close the page. This has always been difficult… I hate leaving tasks left undone—but when you live with #chronicillness, you learn how unsustainable that is… Pace, or pay the price.” buff.ly/3oLtyGE @AChVoice

“‘You’re so lucky! I wish I had a vacation every single day!’ I haven’t had a vacation in ages… And being home, sick and in #pain, every single day, is not a vacation. So many people don’t seem to understand that chronic means forever.” buff.ly/3zjXStJ #chronicillness

”I haven’t had a symptom-free day in years. This is probably one of the most difficult things for people to wrap their heads around. #ChronicPain is just that—chronic. It doesn't matter if I'm smiling, laughing… I'm in pain.” buff.ly/3JR6bDK #chronicillness #spoonies

“If you struggled to shower today; if you can’t get out of bed because the #pain is so bad…if you’re crying at 2am because you can’t handle the severity of your pain… know #YouAreNotAlone—We are all warriors, fighting battles nobody sees or understands.” buff.ly/3TrobYp

“But it's also an extremely misleading answer, if not an outright lie. Because I am never fine, I never feel fine; my chronicillness' #symptoms ensure that… I'm fine is a lie that #chronicillness makes me tell.” buff.ly/3Vksohr @serenebutterfly #chronicpain

“Pain is an invisible condition and some people sadly fail to consider what lies behind the brave face… My pain is 24/7. Every second of every minute of every day I experience pain. It’s relentless and all-consuming. It can be overwhelming.” buff.ly/OFZBp99 #ChronicPain

“While they want so desperately to live a full life connecting with others and showing up when they say they will, people with #chronicillness don’t have the privilege of knowing how they will feel each and every day.” buff.ly/3JK0WnW @CRPS_Warrior #CRPS #ChronicPain

“We never know how we are going to feel… Even with the most meticulous planning, sometimes the pain flares or is just too fierce. Being able to stand up for 3 minutes doesn’t mean we can stand for 20, or give you a repeat performance.” buff.ly/S5MoG9R #ChronicPain

“For those of us living with #ChronicPain or illness, this pressure can feel even heavier. Our bodies don’t work the way we’d like…yet the expectations around us don’t disappear… Some days, simply getting through is an achievement in itself.” buff.ly/w2Lcgkd #disability

“It’s 4 a.m. once again I’m unable to sleep… I am on fire…Intense, unrelenting burning pain is affecting all of my limbs… All I can do is wait, hoping the embers will dwindle to a low, more tolerable smolder.” buff.ly/3ZZ8pXk #painsomnia #chronicpain #cpp

“I have been in a flare for 3 weeks now. The best I can figure is that it’s due to three different issues. The weather… Barometer running up and down the scale…hormonal changes… It feels like a trap or prison.” Habits to avoid in a flare buff.ly/3lNle87 #chronicillness

“We do not fake being sick… We fake being well. We put on our social masks and smile through our struggling to make others comfortable… We’re desperate to be a part of the world and feel some semblance of normalcy—even for a brief respite.” buff.ly/3O327lX #ChronicPain

“My symptoms can flare daily and my pain can be off the charts. I can go from being able to walk with aids to being completely crippled. It’s scary at how quickly my physical symptoms worsen.” My #ChronicIllness Rule Book buff.ly/aPB6hAS @My_MedMusings #spoonie

“While you may have never heard of my #RareDisease, do not doubt its magnitude. The truth is, anyone living with a disease is facing adversity, and we should all be recognized for our raging courage and strength, even if we don’t always feel strong.” buff.ly/7II5T2H #CRPS

“It can be devastating, as we are forced to adjust to a life of relative social isolation… It adds to the #stress of living in #pain when you have to also try to convince that your symptoms are real; #invisibleillness or #disability are so misunderstood.” buff.ly/3mRNlDm

“Those #patients who are the hardest to treat are the ones who have lost. Lost trust… We are not difficult, we are hurting… It is your responsibility to ensure that you never cause your patients the #trauma that we have suffered.” buff.ly/3OEaqSg #MedicalPTSD #PTSD

“Remember that moods are impermanent. Sometimes if I’m feeling down, it’s hard to remember this. But…it allows me to hold a painful mood lightly, knowing it will pass. Doing this clears the way for #SelfCompassion.” buff.ly/Mo772Uk #MentalHealthMatters #ChronicPain

“Nothing positive comes from directing blame at yourself. When it comes to #chronicillness and #chronicpain, it’s crucial to remember that you are not the enemy… It’s not your fault… Don’t make things worse by adding self-blame…instead add #compassion.” buff.ly/MqfrzuY

“It is stressful enough to live with a medical condition, but it can be even more #stressful when you are starting to experience even more health issues. Medical stress is something that a lot of #disabled and #chronicallyill people have experienced.” buff.ly/d35Whzr

“It only causes pain to fight what is. I have #fibromyalgia as well as #mentalillness… I have come to focus on what is in the now. I simply had to fall down to realize that sometimes you cannot fight it.” Finding Acceptance buff.ly/3zKcFzn #chronicillness #chronicpain