ausEE Inc.

There can be many possible causes for dysphagia, and support is available. 🔗 Find out more about #Dysphagia and Swallowing Awareness Day via Speech Pathology Australia: speechpathologyaustralia.org.au/Public/Public/…

Today is #SwallowingAwarenessDay 💙 Dysphagia is difficulty swallowing. Trouble swallowing, or needing lots of liquid to help food go down, can be a symptom of EoE. Sound familiar? Speak with your doctor. Learn more about EoE: bit.ly/CoulditbeEoE-g… #SwallowAware2026

Supporting EoE research 💚 We’re pleased to share a fundraiser from the Hunter Children's Research Foundation supporting research with teams at Hunter Medical Research Institute and John Hunter Children’s Hospital. Learn more or support the project: hcrf.org.au/eoe

New research from Claire Reilly explores temporary feeding tube care in children, highlighting challenges clinicians face and the need for better family-centered support. Read more: aspenjournals.onlinelibrary.wiley.com/doi/full/10.10… 🎥 Watch Claire share more research insights: feedingtubeaware.com.au/events/virtual…

Thank you to everyone who supported #FTAW2026 💜💙 This infographic shares a snapshot of the reach and impact. Your stories, posts and photos helped raise awareness and unite our community. Explore more at #FeedingTubeAware: feedingtubeaware.com.au Next FTAW: 7–13 Feb 2027

Supporting our NZ community this March for Rare Disorders Month in Aotearoa 🧡 ausEE stands with @RareDisordersNZ to raise awareness for the 300,000 Kiwis living with a rare disorder. Glow up and Show up for Rare this #RareDisordersMonth Get involved 👉raredisorders.org.nz/get-involved/r…

Delighted to attend the @crohnscolitisau advocacy event at Parliament House this week. Important discussions around the IBD State of the Nation Report and the need for earlier diagnosis, better specialist access and coordinated care, challenges that also echo for our community.💜

This week, ausEE joined fellow APAA members and invited guests in Canberra for two days of presentations and important conversations about the future of healthcare in Australia. APAA unites health organisations representing Australians living with complex and chronic disease.

Yesterday ausEE attended the #RareDiseaseDay Parliamentary Event in Canberra. A highlight was the launch of the nationally codesigned Rare Disease Disability Toolkit to support the rare disease community by providing practical information and resources: 🔗 rarevoices.org.au/toolkit-page/

The Questions. The Experts. The Answers. #ANMM2026 - not another lecture series. Case-based. Interactive. Evidence you can use Monday morning. Join us 13-14 March | Brisbane Register now - bit.ly/ANMM2026 Brought to you by the Dept. of Gastroenterology & Hepatology, Princess Alexandra Hospital. #DGBI #Neurogastroenterology #GutBrainAxis

💜🌍 Today is Rare Disease Day! ausEE Inc. stands with the 300M people worldwide living with a rare disease. Join us in raising awareness and supporting the community. Get involved: rarediseaseday.org 🤝 #RareDiseaseDay

Save the dates! 📅 Our Virtual Support Group Chats are an opportunity to share and hear stories, ask questions, and connect with others with lived experience. Register your email to receive invitations to our first support group chats for 2026: ausee.org/support/

Our latest newsletter is out! Get ready for #RareDiseaseDay this Saturday, read the wrap-up on #FTAW2026, explore research opportunities, discover upcoming virtual support groups, and more 👉 bit.ly/ausee22026news… 📬 Subscribe to future newsletters here: ausee.org/newsletterform/

EoE can make swallowing food or drinks difficult and uncomfortable, sometimes causing food to feel stuck while eating. Eupraxia Pharmaceuticals is conducting a clinical study to evaluate an investigational treatment for adults with active EoE. Call +61 1800 577 363 to learn more.

ausEE Inc. is proud to be a Friend of @rarediseaseday. We stand alongside individuals and families impacted by rare conditions, and we support the call for greater awareness, equity and understanding. 🤝 Learn more and get involved here: rarediseaseday.org

There is only one week to go until #RareDiseaseDay, a globally coordinated movement dedicated to rare diseases, striving for equity in social opportunities, healthcare, and access to diagnosis and therapies for the 300 million people worldwide living with a rare disease.

Would you like to help guide EGID research? EGID Partners is an online cohort of patients with eosinophilic gastrointestinal diseases (EGIDs), brought to you in a collaboration between patient advocacy groups and researchers. Find out more: egidpartners.org

Did you know there are programs designed specifically to help children and young people feel more confident and supported during medical procedures? Discover practical tools and supports from EPIC Kids at epickids.org.au

Happy Valentine’s Day 💜🩷 Use these free colour ins today to celebrate and acknowledge someone you love who lives with a feeding tube or eosinophilic disease. You can download them from our website: feedingtubeaware.com.au/abouttubefeedi… #EOSaware #FeedingTubeAware #ValentinesDay

Launched during #FTAW2026 we’re excited to offer some free print copies of Issue 5 of The Blend! Read every issue online: theblendmag.com Contact us to receive a copy of Issue 5 (while stocks last) with free delivery in Australia and New Zealand: feedingtubeaware.com.au/aboutus/contac…