b brave foundation

"B Brave helped us when we needed it most. The financial assistance meant we could focus on our child instead of worrying about bills. It's more than money—it's knowing someone understands this journey." Stories like Shelly's drive our mission. bbravefoundation.org

Professional support makes the impossible feel manageable. buff.ly/4Q9OYh3

Navigating rare neurological disorders requires a team approach. The Neurology Social Services Network connects families with specialized social workers who understand the unique challenges of complex medical care, insurance advocacy, and resource coordination.

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Stay connected with the families and mission that drive everything we do. Follow us on social for family stories, updates, and ways you can support rare disease families. Your follow creates a larger community of advocates working to ensure no family faces this journey alone.

When families can't choose their circumstances, they can count on your generosity. buff.ly/MgDbAqJ

Every donation creates immediate impact for families facing rare incurable neurological disorders. Your support funds financial assistance grants, stocks comfort carts at children's hospitals, and provides caregiver wellness resources.

Know a family caring for a child with a rare neurological disorder? You can connect them with B Brave Foundation. Our referral process is simple, and we provide immediate support when families may not even know what they need yet. Refer a family: buff.ly/IomCdWG

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Today would have been Joey Scaparotti’s 12th birthday. His life was brief, but his impact continues to grow. Joey is the heart behind the B Brave Foundation — and every family we support carries a piece of his legacy forward. If you’re able, consider donating $12 in his honor.

Today is Rare Disease Day. Over 300 million people worldwide live with rare diseases—including the families we serve who face incurable neurological disorders. They deserve research, support, and systems that work for them. Learn how B Brave helps: bbravefoundation.org

P Pods aren't just seating—they're comfort, independence, and engagement for children with rare neurological disorders. These specialized seats provide the postural support kids need while creating space for connection and play. Learn more: buff.ly/pYxhxym

Run for a cause at the Cleveland Marathon this May. B Brave is an official charity partner—register with code BRAVE20 for 20% off, and a portion of proceeds supports families facing rare neurological disorders. Register now: buff.ly/59Al8Ku

"This foundation helped us in a time that no family should ever have to think about anything besides caring for their loved ones." The Cluckey family shares how B Brave supported them when their son Logan was hospitalized. Read more stories at bbravefoundation.org

Rare Disease Day is next week. Here's how you can help: Share a post about rare disease. Donate to organizations supporting these families. Ask a rare disease family how they're really doing. Small actions create real change. buff.ly/CXSjjFJ

Support B Brave while representing our mission. Our shop has totes, mugs, and more—every purchase helps fund programs for families navigating rare neurological disorders. Shop now: buff.ly/oBuVrzR

When your child is diagnosed with a rare neurological disorder, the world doesn't stop—but it changes completely. Families face medical complexity, financial strain, and a healthcare system that often doesn't understand their needs. Rare Disease Day reminds us why support matters

Project Rare is our documentary series sharing the real stories of families facing incurable neurological disorders. These films show what courage looks like in daily life—and why every family deserves support. Watch the series: buff.ly/swj0nnV

Over 300 million people worldwide live with a rare disease. That's 1 in 20 people—more than the populations of most countries. Rare Disease Day is February 28, and we're counting down by sharing what rare really means. bbravefoundation.org

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Caregivers of children with rare neurological disorders face burnout at alarming rates. Our Brave Conversations podcast offers practical strategies for maintaining your wellbeing while providing intensive care....