
Ian Macdonald
266 posts








Tofersen is an effective new treatment for those with the SOD1 genetic variant of motor neurone disease. It works. It can slow progression of their #MND. Join the community and call for NICE to make an exception to its normal criteria. Sign our petition below. #PrescribeLife


A drug locked away from @MNDPatients yet readily available from NHS for other conditions & shown provisionally to delay death in #MND. Confirmation is needed but why is #Mirocals Trial Consortium developing a drug different from the trial drug? @mndresearch" target="_blank" rel="nofollow noopener">united2endmnd.org/2024/05/14/mir…
@neuroshef

We urge @mndassoc, involved @mndresearch scientists & #Mirocals Consortium to urgently release paper from trial & do everything possible to ensure rapid access to #Proleukin, a drug available now in @NHS pharmacies. Pls read & share our Open Letter united2endmnd.org/2023/07/25/pro…

After lots of nominations, Sir Kev has done his 🧊 #IceFoot92 Challenge Join in yourself, put your feet in a bucket of ice for 92 secs & donate £10 to @mndassoc by texting MNDLEN to 70085 - film it & spread the word Kev nominates @BrianODriscoll @HelenSkelton & @DionDublinsDube





The #RLWC2022 is here! To celebrate here's your chance to win an A3 print of my 'Extra Smile' artwork. To enter just retweet & like this post & then follow @armleyartist & @mndassoc Winner drawn tomorrow 5pm at @JAMRugbyLeague kick off #rugbyleagueworldcup #Rugby UK only. pls RT













