Bo Bigelow

Tess Army: we learned a TON from Dr. Schaaf’s phenotyping study. 🔥 Check it out and please RT. #USP7 #HaoFountainSyndrome

Seven men. On foot over 183 miles total. Nearly 300 kilometers. Deep in the heart of Texas. Click to listen to my latest podcast episode. #runhou #runhouston #USP7 #HaoFountainSyndrome @runforusp7 @FoundationUSP7 portlandrootsmedia.com/strongerpodcas…

Stuck here in Houston after the marathon, and I don’t even mind. I’m a fan of H-Town. The people here have been so lovely. #WorthIt #runhou #runhouston

New insight on Hao-Fountain syndrome: clinical severity score, genotype-phenotype correlations and expansion of phenotypic spectrum. @FoundationUSP7 @bcmgenetics @bcmhouston @UniHeidelberg @uniklinik_hd onlinelibrary.wiley.com/doi/full/10.11…

@cpschaaf @FoundationUSP7 @bcmgenetics @bcmhouston @UniHeidelberg @uniklinik_hd This is so amazing, Christian! Congratulations to you and your team on this groundbreaking work - it makes a huge difference to those of us living with this disease and we are grateful to you.

Honored to run with these men today in Houston. We were—and are—unstoppable. #runhou #runhouston #USP7 #HaoFountain @FoundationUSP7 @runforusp7

It is ON tomorrow morning. #runhou #USP7 @FoundationUSP7

My marathon teammates have arrived in Houston! It’s on! @FoundationUSP7 #runhou #HaoFountainSyndrome

I'm running the Houston Marathon on 1/14 with Olivier Emmenecker, whose daughter Zoe is Tess's USP7 sister over in France. Please donate today. Thank you! usp7.org/donate #USP7 #HaoFountainSyndrome #runhou #runhouston

@SierraJoseph15 @CoachJosephFB @fit_leaders Same here! Barely ran in December from the winter funk coming through our house, but back on it now. We can do this! Good luck on Sunday! #RunHou

After being consistent I stopped running when the flu hit our house. Well I’m back on it!! Thanks for the accountability @CoachJosephFB 🏃🏽‍♀️ #FitLeaders #FitEducator #TheRunningTeacher #boycottaverage #LiveBetterLeadBetter #RunHou #HouHalf #Hou5k #makeyourselfproud @fit_leaders

@WashUNeurosurg @WashUONR

Thrilled about this preprint article from Hao Chen & Albert Kim, MD, PhD about USP7 and Hao-Fountain syndrome! You guys had me at "a novel p53-independent ubiquitin signaling pathway." ncbi.nlm.nih.gov/pmc/articles/P… @AlbertHKimMDPhD @WUSTLmed #USP7 #HaoFountainsyndrome @FoundationUSP7

Remember Sports at SPACE, Portland, ME last night. Fantastic

I'm outta here. Find me on Mastodon: @bo@masto.ai

Evals. Not our favorite, but they’re part of our lives. Click to listen to the latest ep of the pod. portlandrootsmedia.com/strongerpodcas…

Tess is such a talker. Not with words exactly, but a complex system of sounds and gestures. And one thing that can sometimes cause us a bit of concern is this: when she clams up entirely. #nonverbal portlandrootsmedia.com/strongerpodcas…

@allen_darren @RobAugustine7 @waynfletesports MPA says it’s based on size:

@RobAugustine7 What say you @waynfletesports ? Tired of beating up on poor class c teams?

4th straight title Class C title for a college prep private school in the middle of Portland. Time for a move to class B.

Win over Oak Hill 9-0 win over Traip 6-3 Win over Mt Abram 3-0 Win over Fort Kent 6-1. Time for a move to class B.

Apple picking. It's not just for people who need to get out of the house with their toddlers. Click to listen to my latest podcast episode. portlandrootsmedia.com/strongerpodcas…

@K_SalemOaks Thanks Kevin! Wish I could be there with you. Your message about 400 made my day. 😀